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90 day Update.
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
WIZARD6787
in
Pernicious Anaemia Society
5 days ago
How do my results look?
(range: <2.90iu/L) * TSH:
<0.01 mIU/
L (range: 0.27 - 4.20mIU/L) * T3:
14 pmol/L
(range: 3.10 - 6.80pmol/L) * T4:
36.4 pmol/L
(range: 12.00 - 22.00pmol/L) * Serum ferritin:
80 ug/L
(range: 30.00 - 400.00ug/L) * Serum folate:
16 ug/L
(range: >2.90ug/L) * Active
vitamin
(range: <2.90iu/L) * TSH:
<0.01 mIU/
L (range: 0.27 - 4.20mIU/L) * T3:
14 pmol/L
(range: 3.10 - 6.80pmol/L) * T4:
36.4 pmol/L
(range: 12.00 - 22.00pmol/L) * Serum ferritin:
80 ug/L
(range: 30.00 - 400.00ug/L) * Serum folate:
16 ug/L
(range: >2.90ug/L) * Active
vitamin
LorenzIsher
in
Thyroid UK
1 year ago
3 Months of EOD B12 Injections
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
Hi I have been doing EOD sub cut injections of Hydroxycobalamin for 13 weeks now. The peripheral neuropathy in my feet has not improved. If anything it might be worse, but that could be from something else. Have I given this long enough to rule lack of B12 out or do I need to keep going? Some
FancyPants54
in
Pernicious Anaemia Society
8 months ago
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Ringing in Ear
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Dottie44
in
Thyroid UK
29 days ago
HNY!... and a warning for those who lead busy lives (aka all of us)
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
Firstly, I'm conscious I haven't posted in a while. 2023 has been a tumultuous and stressful year for me personally which involved a very close family member being diagnosed with cancer at the start of the year and much of my life for the next 6 months revolving around that. It's not why I'm here, but
ottiliefloyd
in
Pernicious Anaemia Society
8 months ago
Haematologist’s unsupportive B12 response
If anything,
B12
assists the bone marrow make healthy red blood cells and cannot be toxic to the body?? I will be seeing this haematologist in five weeks for a review of my latest results and hopefully, that will be it.
If anything,
B12
assists the bone marrow make healthy red blood cells and cannot be toxic to the body?? I will be seeing this haematologist in five weeks for a review of my latest results and hopefully, that will be it.
GoneWithTheWind1972
in
Pernicious Anaemia Society
4 months ago
World Mental Health Day
[/i] This group of patients are not tested for
vitamin
B12
deficiency/Pernicious Anaemia, folate or ferritin deficiency. They are prescribed antipsychotics and neuroleptics. In the U.K., they can become institutionalised under the
Mental Health Act (1983)
. I reflected on Vincent Van Gogh.
[/i] This group of patients are not tested for
vitamin
B12
deficiency/Pernicious Anaemia, folate or ferritin deficiency. They are prescribed antipsychotics and neuroleptics. In the U.K., they can become institutionalised under the
Mental Health Act (1983)
. I reflected on Vincent Van Gogh.
Narwhal10
in
Pernicious Anaemia Society
11 months ago
Timings for taking supplements
So from looking at previous posts, am I right in thinking: First thing - Levothyroxine With breakfast - b vitamins (start with
b12
and a week later add b complex?) and
vitamin
d Four hours later - iron Also, do I need to take magnesium if I’m taking vitamin d?
So from looking at previous posts, am I right in thinking: First thing - Levothyroxine With breakfast - b vitamins (start with
b12
and a week later add b complex?) and
vitamin
d Four hours later - iron Also, do I need to take magnesium if I’m taking vitamin d?
Smartypants1
in
Thyroid UK
6 months ago
The B12 & Digestion - A Big Picture on our Digestive Biomes...
Hello Folks I often find myself thanking many lovely peeps in here for their "shares" and useful information sources and guidance. It's really quite a wonderful thing...what the Internet should be about I feel. By way of small return, I am posting a picture that I have found helpful in "seeing
Hello Folks I often find myself thanking many lovely peeps in here for their "shares" and useful information sources and guidance. It's really quite a wonderful thing...what the Internet should be about I feel. By way of small return, I am posting a picture that I have found helpful in "seeing
Treesong2023
in
Pernicious Anaemia Society
1 month ago
ongoing issues
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
it’s been a tough month this weather is making the fibro non stop but in turn my RA has also kicked in within the joints so I am creaking away like an unoiled motor and even hubby went you need some calm weather! Trip to GP yesterday and he looked at me and said I know you have a lot going on what’
Deeb1764
in
NRAS
8 months ago
Loading doses
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
I will try and keep this as short as possible. 21 years ago GP diagnosed PA and up until 3 years ago I had B12 injections every 12 weeks. 3 years ago the CCG instructed GP's to cut down giving injections to anyone unless they had PA. My jobsworth GP decided to give me a blood test, which was in range
Lilian15
in
Pernicious Anaemia Society
8 months ago
Nature provides B12 drops
I received these drops today (recommended by this helpful forum), which are high strength 3000 mcgs. The instructions state 12 drops per day to give you the correct dose of 3000 mcgs. Could I make sure that these are not too high for a first purchase of B12 vitamins as others seem lower in strength
I received these drops today (recommended by this helpful forum), which are high strength 3000 mcgs. The instructions state 12 drops per day to give you the correct dose of 3000 mcgs. Could I make sure that these are not too high for a first purchase of B12 vitamins as others seem lower in strength
Sailing14
in
Thyroid UK
1 month ago
Hele36
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
How do you obtain B12 injections in Australia? There seems to be a serious scarcity. Does anyone know an outlet .?
36Hele
in
Pernicious Anaemia Society
8 months ago
Borderline B12 Deficiency
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Hi, I have been diagnosed with Borderline Vit B12 Deficiency and am wondering if long term Pred could have caused itHad PMR from 2014 for six years, it is back again and have been on Pred since August 2023 I would value your opinions. Thank you Jenny
Attic
in
PMRGCAuk
8 months ago
Advice needed re Hashimotos.
TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5
Vitamin
D 95 I am on
b12
injections and supplementing with folic acid, vit D, ferrous sulphate,
vitamin
C, B complex, fish oil, magnesium. I’m gluten free now, no caffeine, no alcohol and a non smoker. Not much sugar and try to eat clean food.
TSH 2.71 Free t4 14 Ferritin 84 Folic Acid 15.5
Vitamin
D 95 I am on
b12
injections and supplementing with folic acid, vit D, ferrous sulphate,
vitamin
C, B complex, fish oil, magnesium. I’m gluten free now, no caffeine, no alcohol and a non smoker. Not much sugar and try to eat clean food.
Artist23
in
Thyroid UK
4 months ago
How to inject Hevert ampoules
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
I ordered the Hevert B12.A few responses were from people who had used these ampoules. These ampoules contain a lot more liquid than Panpharma ones. Can you tell me how to use them please. Do I inject in two goes or is it safe to inject the full amount at once. I am now doing sub cut but will go back
3rdNettydoon
in
Pernicious Anaemia Society
8 months ago
Lab Results and asking for increase in meds
T4 1.02 ng/dl Range: .82-1.77 TSH 0.599 ulU/Ml Range: .45-4.5
Vitamin
D 25 Hydroxy 20.8 Range: 30-100
B12
421 ng/ml Range: 232-1245 T3 2.8 pg/ml Range: 2-4.4
T4 1.02 ng/dl Range: .82-1.77 TSH 0.599 ulU/Ml Range: .45-4.5
Vitamin
D 25 Hydroxy 20.8 Range: 30-100
B12
421 ng/ml Range: 232-1245 T3 2.8 pg/ml Range: 2-4.4
spookyscaryskeletons
in
Thyroid UK
7 months ago
Hypothesis VIIIl
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
That B12 is a progressive condition with an unknowable age of onset and intermittent to varying degrees. That all symptoms can be caused by B12 deficiency in the cells including hematological symptoms and digestive issues. Symptoms are only measurable at an untreated advanced stage. A few competent
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
B6 and tingling in toes
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
My brother has been experiencing tingling in his toes. A retired doctor who my brother sees socially told him to have B12 tested, and also B6. I briefly googled B6 and saw reports in general websites that both high and low levels of B6 can cause tingling in toes. My brother told me that his B6 tested
WiscGuy
in
Pernicious Anaemia Society
8 months ago
New smaller needle issue
Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've previously been using 1inch needles for I M injections. I have just used the new 31G needle and have a lump on my thigh under my skin is this normal? Has the B12 gone in? What have I done wrong??
Following recommendations on here. I used 31G 6 mm Needle for subcutaneous, I've previously been using 1inch needles for I M injections. I have just used the new 31G needle and have a lump on my thigh under my skin is this normal? Has the B12 gone in? What have I done wrong??
pinkpaddleboarder
in
Pernicious Anaemia Society
8 months ago
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