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Vitamin B12
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Am I on enough thyroid medication for my weight
Please note I have Lupus and kidney issues and have been advised to keep D levels on a maintenance dose only as can cause stones which I am prone to - and also ferritin - I do not get on with iron - have good diet and taking
B12
and
Vitamin
C - I am nutritionally aware and consider I am only alive today
Please note I have Lupus and kidney issues and have been advised to keep D levels on a maintenance dose only as can cause stones which I am prone to - and also ferritin - I do not get on with iron - have good diet and taking
B12
and
Vitamin
C - I am nutritionally aware and consider I am only alive today
posthinking01
in
Thyroid UK
4 months ago
diagnosis
GP just called after a lot of messages from me to be told I’m not B12 deficient as told 6 years ago I’m actually menopausal she saidI’m literally confused and gobsmacked and said I was clearly misdiagnosed then who do I sue I’m literally at the end of my tether and going to pay privately for my injections
GP just called after a lot of messages from me to be told I’m not B12 deficient as told 6 years ago I’m actually menopausal she saidI’m literally confused and gobsmacked and said I was clearly misdiagnosed then who do I sue I’m literally at the end of my tether and going to pay privately for my injections
Judedench
in
Pernicious Anaemia Society
9 months ago
PA, or just getting older?
I recently came across an article about PA and back pain. I wonder if I can blame my B12 deficiency for my sciatica and wrist tendonitis? I had thought of them as unrelated. In a way this would be good news as it means they might improve as I get my B12 levels back up. PA seems to cause so many symptoms
I recently came across an article about PA and back pain. I wonder if I can blame my B12 deficiency for my sciatica and wrist tendonitis? I had thought of them as unrelated. In a way this would be good news as it means they might improve as I get my B12 levels back up. PA seems to cause so many symptoms
Permexpi
in
Pernicious Anaemia Society
9 months ago
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Help with blood results
I wondered if anyone had experienced similar blood tests results;T4 16.8p/mol TSH 8.1 miu B12 , folate normal Ferritin low end of "normal" at 17 but haemoglobin 130 Symptoms : fatigue, aching joints heavy periods, feeling weak. 46 year old female I'll be seeing the GP again next week. Thanks in
I wondered if anyone had experienced similar blood tests results;T4 16.8p/mol TSH 8.1 miu B12 , folate normal Ferritin low end of "normal" at 17 but haemoglobin 130 Symptoms : fatigue, aching joints heavy periods, feeling weak. 46 year old female I'll be seeing the GP again next week. Thanks in
Greyhound92
in
Thyroid UK
2 months ago
vitamin results and advice on tweaking or changing supplements
Folate 45.4 (no range) TIBC 62 (range 45 - 81) 47% UIBC 37 (range 13 - 56) 56% Transferrin saturation 39 (range 25 - 45) 70%
B12
150 (range 37 - 188) 75%
Vitamin
D 76 (range 50 - 250) 13% I’m surprised my level isn’t higher & I checked out the Vit D calculator which suggests I’m taking the right
Folate 45.4 (no range) TIBC 62 (range 45 - 81) 47% UIBC 37 (range 13 - 56) 56% Transferrin saturation 39 (range 25 - 45) 70%
B12
150 (range 37 - 188) 75%
Vitamin
D 76 (range 50 - 250) 13% I’m surprised my level isn’t higher & I checked out the Vit D calculator which suggests I’m taking the right
Slowrunner1208
in
Thyroid UK
6 months ago
Extra folate & biotin?
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
Since 24th April, I’ve taken 50mg levo daily, with BioCare Adreno Complex, Igennus Super B-Complex and separate Igennus B12. It’s early days, but in due course I plan to increase levo to 75mg, then 100mg, if my obliging GP will prescribe it. My question is this: is it safe/advisable/helpful to add in
KingJohnVII
in
Thyroid UK
3 months ago
Private GP visit
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
I saw I private GP today as I felt with more time to go through my symptoms and tests I might get somewhere. But she is of the opinion that my B12, ferritin and folate levels were all fine and nothing to worry about. They are within range. I asked about my symptoms, but she didn’t feel they warranted
Chickens44
in
Pernicious Anaemia Society
3 months ago
Another adjustment
So, I do know I have actively worked on the
B12
situation, I also continue to struggle with
Vitamin
D (I take 5,000 daily, along with the K vitamin) and would like to see that higher, and my ferritin is off the top (and the scale changed, so I don't really know how to compare).
So, I do know I have actively worked on the
B12
situation, I also continue to struggle with
Vitamin
D (I take 5,000 daily, along with the K vitamin) and would like to see that higher, and my ferritin is off the top (and the scale changed, so I don't really know how to compare).
Recon
in
Thyroid UK
2 months ago
Fading away
Hi I'm going to jump straight into this. I collapsed and the hospital diagnosed b12 disorder from the p anemia and gave me loading doses, followed by a year of 12 weekly injections. Then they say I was cured and stopped giving me them which brought back all my symptoms. I then got NAFLD (non alcoholic
Hi I'm going to jump straight into this. I collapsed and the hospital diagnosed b12 disorder from the p anemia and gave me loading doses, followed by a year of 12 weekly injections. Then they say I was cured and stopped giving me them which brought back all my symptoms. I then got NAFLD (non alcoholic
Danni455
in
Pernicious Anaemia Society
9 months ago
New small sub cut needles..
I've recently bought the small needles after advice on this platform to change from IM to Subcutaneous and advised not to pinch skin. However yesterday my daughter was discharged from hospital following surgery and the nurse demonstrated giving blood thinning injections with longer needle pinching
I've recently bought the small needles after advice on this platform to change from IM to Subcutaneous and advised not to pinch skin. However yesterday my daughter was discharged from hospital following surgery and the nurse demonstrated giving blood thinning injections with longer needle pinching
pinkpaddleboarder
in
Pernicious Anaemia Society
9 months ago
stopping Hydrea for 8 weeks…
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Pachena
in
MPN Voice
9 months ago
Slow Covid Recovery
I am currently taking a one a day
vitamin
. I have also heard that
B12
may help with energy. If anyone else is struggling with this, I feel your pain and frustration.
I am currently taking a one a day
vitamin
. I have also heard that
B12
may help with energy. If anyone else is struggling with this, I feel your pain and frustration.
Utballa
in
AF Association
1 year ago
Which Martyn Hooper book?
Hi people. Please could someone remind me of the title of the Martyn Hooper book about b12? There seems to be more than one available? Many thanks!
Hi people. Please could someone remind me of the title of the Martyn Hooper book about b12? There seems to be more than one available? Many thanks!
luckymaria
in
Pernicious Anaemia Society
9 months ago
Reversing out worse than actual symptoms
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
I am 32 years old and had B12 deficiency. B12 was <83 pg/ml (normal 180-914) as the lab could not test below this value and Vitamin D was 16 ng/ml (normal 30-100). I had multiple symptoms, some are mentioned below 1. Vertigo 2. Consistent dizziness (feeling like sitting on a boat all the time) 3.
Trialerror
in
Pernicious Anaemia Society
3 months ago
b1 vitamins
what has been your experience with taking B1 supplements? Dosage and frequency?
what has been your experience with taking B1 supplements? Dosage and frequency?
Teacher111
in
Cure Parkinson's
3 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
3 months ago
Interesting Dynamic
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Ongoing saga of getting back my b12 prescription.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Pharmacy telephone appointment on having to change surgeries. B12 reinstated May 2023 The removed in Ausgust Then reinstated The removed. Told I needed s Gps appointment . Reinstated 12/10 Removed 27/ 10 3 letters. No reply. Then 1 ampoule reinstated. The one I geg at the surgery I presume.
Nackapan
in
Pernicious Anaemia Society
9 months ago
Muscle Cramps?
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
Carrielam
in
Cure Parkinson's
3 months ago
Symptoms: what made you go to the GP initially ?
I still had daily diarrhoea, could barely stand up straight and so was having blood tests, stool sample analysis and a gastroenterologist appointment was booked. 2 days later, I got home from work to phone messages from the GP: ring the surgery,
vitamin
B12
deficiency found and 6 injections needed.
I still had daily diarrhoea, could barely stand up straight and so was having blood tests, stool sample analysis and a gastroenterologist appointment was booked. 2 days later, I got home from work to phone messages from the GP: ring the surgery,
vitamin
B12
deficiency found and 6 injections needed.
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
1 year ago
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