Search
Search
About
Log in
Join
Experiences with
Vitamin B12
Posts
Communities
49,505 public posts
Filter results
blood test needed
Quick question group - is it good practice to get a GP blood test (stating NO to B12 test as of IM) yearly for someone with AG PA? (Also take complex B12 supplements so being conscious about skewing results). What bloods should I ask for ? The usual group ? Many thanks
Quick question group - is it good practice to get a GP blood test (stating NO to B12 test as of IM) yearly for someone with AG PA? (Also take complex B12 supplements so being conscious about skewing results). What bloods should I ask for ? The usual group ? Many thanks
PAapr22
in
Pernicious Anaemia Society
3 months ago
Needle colour and gauge advice.
Hi, been IM injecting for a while now. I use the green needle to draw the B12 and use the orange needle to inject. Iโd like to use a finer needle to inject and wondered what colour and โGโ I should buy. I use medisave many thanks ๐
Hi, been IM injecting for a while now. I use the green needle to draw the B12 and use the orange needle to inject. Iโd like to use a finer needle to inject and wondered what colour and โGโ I should buy. I use medisave many thanks ๐
SallyRees
in
Pernicious Anaemia Society
3 months ago
urge to urinate, with pink in pee
Had an iron infusion and started B12 injections EOD a week ago, and today have strange sensation in bladder and sudden urge to pee, and it was pink. I have read that extra b12 can cause this. What are peoples experiences. I hope it is just excess B12 and nothing more sinister.
Had an iron infusion and started B12 injections EOD a week ago, and today have strange sensation in bladder and sudden urge to pee, and it was pink. I have read that extra b12 can cause this. What are peoples experiences. I hope it is just excess B12 and nothing more sinister.
Chickens44
in
Pernicious Anaemia Society
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Started B12 injections and feel unwell. Lethargic, no energy, headache, brain fog, sore hands and feet.
Only two injections from six, so far. Don't feel great. Is this normal?
Only two injections from six, so far. Don't feel great. Is this normal?
Gogsy066
in
Pernicious Anaemia Society
3 months ago
Methionine restricted diet for recurring PSA and positive PMSA pet scan w/ 1 bone met
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
quick to the point. PSMA pet showed 1 L2 small met and some lymph activity. My PSA went from 2.01 to 2.9 in one month. after doing some research on diets and supplements . I found that the keto diet is extremely high in the amino acid methionine and I made it worse trying to reduce my blood pressure
Eieio
in
Advanced Prostate Cancer
3 months ago
using both cyano and methy b12
hello, just a question please has anyone used both cyano and methyl b12 injections either alternating them or switched during treatments, I have methyl b12 left over and just got a new prescription to try the cyano cobalamin, I am injecting tomorrow again and was going to use one or the other. thank
hello, just a question please has anyone used both cyano and methyl b12 injections either alternating them or switched during treatments, I have methyl b12 left over and just got a new prescription to try the cyano cobalamin, I am injecting tomorrow again and was going to use one or the other. thank
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
Reversing out symptoms
is it generally right that the last symptom that you developed before starting B12 injections is usually the one that flares up first when reversing out begins. I have terrible burning across my abdomen just under my skin, which I developed in the last year, and it seems to be getting worse. Iโm telling
is it generally right that the last symptom that you developed before starting B12 injections is usually the one that flares up first when reversing out begins. I have terrible burning across my abdomen just under my skin, which I developed in the last year, and it seems to be getting worse. Iโm telling
Chickens44
in
Pernicious Anaemia Society
3 months ago
Why do GP like to group everything as depression and anxiety?
HI All I have questions about NHS and GP which I never understood. This is based of my experience of dealing with GPs not possible not a norm I am not sure why this so normalised. 1) Why do GPs prefer to brand every symptom (exhaustion, memory loss, tiredness, sleep disorder so many more) under
HI All I have questions about NHS and GP which I never understood. This is based of my experience of dealing with GPs not possible not a norm I am not sure why this so normalised. 1) Why do GPs prefer to brand every symptom (exhaustion, memory loss, tiredness, sleep disorder so many more) under
thyroidsymtoms
in
Thyroid UK
3 months ago
B12 injections - mouth spray as well?
I've had 2 B12 injections so far, with another tomorrow morning. While I was waiting for the treatment to start I ordered some mouth spray for B12 - 1 dose is 1,200ug. Today I was so tired I had to stay in bed after dragging myself on a dog walk so I had a dose of it. I just wanted to check that this
I've had 2 B12 injections so far, with another tomorrow morning. While I was waiting for the treatment to start I ordered some mouth spray for B12 - 1 dose is 1,200ug. Today I was so tired I had to stay in bed after dragging myself on a dog walk so I had a dose of it. I just wanted to check that this
eatingbiscuits
in
Pernicious Anaemia Society
3 months ago
Paying method for ampoules
I have put in an order for B12 ampoules with Versandapo; I have an email thanking me and asking me to pay before they ship; I cannot pay euros through my bank. Any ideas?
I have put in an order for B12 ampoules with Versandapo; I have an email thanking me and asking me to pay before they ship; I cannot pay euros through my bank. Any ideas?
NOTI1
in
Pernicious Anaemia Society
3 months ago
Latest Blood tests results.
D 74 Cholesterol 7.1 Folate 15 ug/L
B12
119 pmul/L Tsat 19% Ferritin 59 ug/L HB 148 g/L
D 74 Cholesterol 7.1 Folate 15 ug/L
B12
119 pmul/L Tsat 19% Ferritin 59 ug/L HB 148 g/L
Dawney63
in
Thyroid UK
2 months ago
Please help me re medication for hyperthyroidism and B12 deficiency - huge brain fog and tiredness.
I am really lost at the moment. I was told in Jan I was just anxious and turned away from A&E when I actually had a pulmonary embolism. I was rushed back in and given 3 months of thinners as I am apparently otherwise healthy - no need for a longer course. Case closed they said, despite me asking why
I am really lost at the moment. I was told in Jan I was just anxious and turned away from A&E when I actually had a pulmonary embolism. I was rushed back in and given 3 months of thinners as I am apparently otherwise healthy - no need for a longer course. Case closed they said, despite me asking why
eatingbiscuits
in
Thyroid UK
3 months ago
revering out symptoms from beef
hello, I had not had an injection for 2 1/2 weeks and started to eat beef, I felt so energized and strong I even started to walk for exersice again, I gained 6 pounds with I'm way under weight from b12 deficiency, then my ankles and feet started with the waking up symptoms like when I first started
hello, I had not had an injection for 2 1/2 weeks and started to eat beef, I felt so energized and strong I even started to walk for exersice again, I gained 6 pounds with I'm way under weight from b12 deficiency, then my ankles and feet started with the waking up symptoms like when I first started
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
I just popped this on Thyroid Uk but thought I would lift your day too.
I sure did put the cat amongst the pigeons with my letter to my endocrinologist. I just recieved this email from my surgery.......... Thank you for discussing your concerns today. I am sorry we were not able to provide the timely care you indicated you needed on the phone. As next steps we will: -
I sure did put the cat amongst the pigeons with my letter to my endocrinologist. I just recieved this email from my surgery.......... Thank you for discussing your concerns today. I am sorry we were not able to provide the timely care you indicated you needed on the phone. As next steps we will: -
Jillymo
in
Pernicious Anaemia Society
3 months ago
Just to lift your day...... ๐
I sure did put the cat amongst the pigeons with my letter to my endocrinologist, I just recieved this email from my surgery.......... Thank you for discussing your concerns today. I am sorry we were not able to provide the timely care you indicated you needed on the phone. As next steps we will:
I sure did put the cat amongst the pigeons with my letter to my endocrinologist, I just recieved this email from my surgery.......... Thank you for discussing your concerns today. I am sorry we were not able to provide the timely care you indicated you needed on the phone. As next steps we will:
Jillymo
in
Thyroid UK
3 months ago
Causes of lower Active B12
Hi - what are the reasons for Active B12 being low or rather lagging behind serum B12 for some people? I am, very fortunately, currently getting 3x a week Hydroxocobalamin injections and am finally starting to do well!! My B12 was tested during a short gap in treatment - it was >2000 (I know testing
Hi - what are the reasons for Active B12 being low or rather lagging behind serum B12 for some people? I am, very fortunately, currently getting 3x a week Hydroxocobalamin injections and am finally starting to do well!! My B12 was tested during a short gap in treatment - it was >2000 (I know testing
GW1000
in
Pernicious Anaemia Society
3 months ago
B12 deficiency and night sweats query
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains ๐ I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
Hi - I don't have a diagnosis but I hope you don't mind if I pick your expert brains ๐ I (Female, 45) have fairly regular blood tests due to medication I take for inflammatory arthritis. My MCV has been a little bit high for years (up to 102). Early on doctors would question it and because of a family
rmros
in
Pernicious Anaemia Society
3 months ago
Losing my worms
I struggle to find my words and it feels like it's getting worse. I'm really hoping that it's reversing out. Has anyone else felt their mental symptoms (fog, confusion, memory, mood) get worse before getting better on B12 treatment? I've been SIing eod for about 9 months and am also, much more recently
I struggle to find my words and it feels like it's getting worse. I'm really hoping that it's reversing out. Has anyone else felt their mental symptoms (fog, confusion, memory, mood) get worse before getting better on B12 treatment? I've been SIing eod for about 9 months and am also, much more recently
Enuffisenuf
in
Pernicious Anaemia Society
3 months ago
JUNE NEWSLETTER
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
our June newsletter will be coming out soon. If you are not already a member then sign up to the Pernicious Anaemia Society https://pernicious-anaemia-society.org/member/ so you don't miss out! If you are a member and are not getting your newsletter make sure to check in Spam/Junk or check that we
PAScomms
in
Pernicious Anaemia Society
3 months ago
Immunologist tomorrow! What to ask?
And we'll ask for tests on ferritin, folate,
B12
and
vitamin
D? Iron panel/ Free T4 Free t3? Any other suggestions for what we should hope for? She has shown "oral allergy syndrome" in the past as well, where she reacts to certain fruits/vegetables. Thanks in advance!
And we'll ask for tests on ferritin, folate,
B12
and
vitamin
D? Iron panel/ Free T4 Free t3? Any other suggestions for what we should hope for? She has shown "oral allergy syndrome" in the past as well, where she reacts to certain fruits/vegetables. Thanks in advance!
LostinHeadSpace
in
Thyroid UK
2 months ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
21737 results
Pernicious Anaemia Society
13361 results
Cure Parkinson's
1457 results
View top 10 communities
Sort by
Most Relevant
Newest