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Ambiee
Hi there diagnosed with PMR April 23, after having very bad lower middle back pain, pain in shoulders arms & neck (ha MRI as originally thought it was slipped lower disc, but negative on this, raised blood results confirmed PMRBeen on Prednisolone tapering regime started on 30mg now at 1mg only seen
Hi there diagnosed with PMR April 23, after having very bad lower middle back pain, pain in shoulders arms & neck (ha MRI as originally thought it was slipped lower disc, but negative on this, raised blood results confirmed PMRBeen on Prednisolone tapering regime started on 30mg now at 1mg only seen
Singham1
in
PMRGCAuk
4 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
8 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
4 months ago
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Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
8 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
8 months ago
Otomize ear spray
HiI have an outer ear infection in both ears and I've been prescribed Otomize ear spray but it's making me feel really sick when I use it, has anyone else had this experience? I don't know if it's helping my tinnitus as I only started taking it yesterday afternoon. I'm currently using a hot water bottle
HiI have an outer ear infection in both ears and I've been prescribed Otomize ear spray but it's making me feel really sick when I use it, has anyone else had this experience? I don't know if it's helping my tinnitus as I only started taking it yesterday afternoon. I'm currently using a hot water bottle
Coxy00
in
Tinnitus UK
9 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
8 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
8 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
8 months ago
Newbie - Should have wrapped up warm! Any tips? 😊
Hi all. I am new here so I thought I would say hi 👋. I started the C25K programme (again!) in Sept 23 and everything was going really well until I picked up a flu bug. I had to stop for a few weeks and I started the programme up again, only to the catch COVID 😭. I tried to start again after Christmas
Hi all. I am new here so I thought I would say hi 👋. I started the C25K programme (again!) in Sept 23 and everything was going really well until I picked up a flu bug. I had to stop for a few weeks and I started the programme up again, only to the catch COVID 😭. I tried to start again after Christmas
N3vrGiv3up
in
Couch to 5K
4 months ago
covid 19 December 2023
Hello and Happy new year to all 😀 has anyone else had Covid recently and after testing negative after 7 days of positive and going back to work for few hours for two days as felt improved suddenly now got worse!! cough and chest tight with bad guts and headache sore throat and cold and hot need to
Hello and Happy new year to all 😀 has anyone else had Covid recently and after testing negative after 7 days of positive and going back to work for few hours for two days as felt improved suddenly now got worse!! cough and chest tight with bad guts and headache sore throat and cold and hot need to
Geeforce99
in
Fibromyalgia Action UK
7 months ago
Steroids
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
TedTheMaineCoon
in
PMRGCAuk
8 months ago
update on rls treatment
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Hidden
in
Restless Legs Syndrome
10 months ago
My story
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hikingman
in
ICUsteps
10 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
8 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
4 months ago
Acid Reflux - coughing
I have been suffering for the last 7 weeks with a constant cough. I take Gaviscon and 1 x 20mg omeprazole, I have not seen a doctor yet as I have been away. Does anyone else get a constant cough which may be related to GERD? I also now have a runny nose but can't be a cold as I've had it so long. Can
I have been suffering for the last 7 weeks with a constant cough. I take Gaviscon and 1 x 20mg omeprazole, I have not seen a doctor yet as I have been away. Does anyone else get a constant cough which may be related to GERD? I also now have a runny nose but can't be a cold as I've had it so long. Can
Gib90
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
unintended weight loss
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
Crochetgardener
in
PMRGCAuk
8 months ago
FLU SYMPTOMS
Has anyone ever had flu symptoms , eg; achy, with vague headache could this be a symptom of not enough medication of Levothyroxine any answer would be appreciated.
Has anyone ever had flu symptoms , eg; achy, with vague headache could this be a symptom of not enough medication of Levothyroxine any answer would be appreciated.
13vc
in
Thyroid UK
5 months ago
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