A Shingrix thank you: Hi, I just wanted to... - CLL Support

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A Shingrix thank you

Schubert1870 profile image
23 Replies

Hi,

I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years.

After seeing a photo online of someone with Shingles recently, it was even more inspiring to go for it. We need all the protection we can get. Thank you!! 😊

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Schubert1870
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23 Replies
SofiaDeo profile image
SofiaDeo

I get my second one Monday; please advise us of any Side Effects!

Schubert1870 profile image
Schubert1870 in reply toSofiaDeo

I will definitely do so, but right now I've been swinging my arm around every which way, and drinking water. I told the pharmacist I could barely raise the arm on round one to play the piano, so he inserted the needle higher up, bless his heart. Wishing you well for your second one tomorrow!

Fran57 profile image
Fran57 in reply toSofiaDeo

Paul also gets his second tomorrow 😉x

Walkingtall62 profile image
Walkingtall62 in reply toSofiaDeo

Somebody once told me to keep my arm active. So I walk back home swinging my arm, clenching fist and singing! Don’t care who looks at me, but it is a quiet area that I walk in. At most have had a sore arm for a day

Schubert1870 profile image
Schubert1870 in reply toWalkingtall62

It was a nurse who first told me about swinging the arm to disperse the injection when I had a flu vaccine, and stretching the shoulder across the chest to reduce inflammation. Having CLL is not fun, but it’s good in that it is not only an education but makes us much more self-aware of our bodies. Keep on singing! 🙂

AussieNeil profile image
AussieNeilPartnerAdministrator in reply toSofiaDeo

It's 70 hours since my second Shingrix vaccination and the injection site tenderness, which was less than I have from flu boosters for both Shingrix shots, has mostly faded away. I only felt slightly under the weather for the first two days and more tired for the first 24 hours. No other side effects.

Newdawn profile image
NewdawnAdministrator in reply toAussieNeil

Good to hear Neil 👍

Newdawn

MB60 profile image
MB60 in reply toSofiaDeo

We all have different experiences with these vaccines. I still work out routinely and maintain decent muscle mass on my shoulders and arms(maybe a benefit) as I only had mild discomfort at the shot area and just general malaise for a week. Never missed work. Night sweats returned for a couple days as well. Good luck.

Sepsur profile image
Sepsur

I got my second jab at beginning of Feb. My wife ( unknowingly) has had shingles for about 2 wks - glad I got jabbed!!

Schubert1870 profile image
Schubert1870 in reply toSepsur

Oh, my! I hope your wife will heal soon, and can't imagine what it feels like. Your timing for getting the second vaccine turned out to be perfect for you!

Sepsur profile image
Sepsur in reply toSchubert1870

I was told 6-8wks in between both was best for efficacy

Suzie42 profile image
Suzie42

I had bad reaction to 2nd jab, in bed for 48 hrs, flu like symptom. 2 weeks later atm still painful but is no longer red and inflamed. I still think it's worth having though

paulgf54 profile image
paulgf54

I had my second one thursday, swollen inj site and mild flu like aches and headache.All bearable and expected. Rested and took regular analgesia. All good after two days.

Mate had same jab same day only effect sore arm.

I am very glad i have had them both, especially when you hear how painful shingles is.

I have two flu vaccines a year and have had seven covid jabs. Minimal reactions just usual sore arm.

Spiritlove11 profile image
Spiritlove11

I had my second shingles jab 10 days ago and still feeling the effects, my arm is still painful. I was very poorly the first night fainting and nausea which very slowly improved over the following week. But I am sure it is worth it, better than having shingles and I know many people are fine with it

Daisy396 profile image
Daisy396

I had the shingles vaccine and felt no side effects from either injection, other than a slightly sore arm.

Schubert said: "getting the second one today, after 2 1/2 years."

Months after my first Shingrex jab while having mild MCBL, I developed full blown CLL, I was told to not get the second since between the CLL and treatment, I did not have enough good B-cells for the vaccinations to be effective. I was put on acyclovir and told in no uncertain terms that the first jab was not to be considered effective, that I would have to start over in the future and get two if I eventually reached a good remission. (Which occurred, first shot done, second coming up in another month.)

Your statement is the first time I've ever heard of considering a second jab years later to be meaningful. Is there any documentation for this? I would want to be sure that you are off the hook for another.

OWLS26 profile image
OWLS26

Well done, trust me you want to avoid shingles like the plague (literally)

Edalv profile image
Edalv

I am sure you will get some protection from your 2nd shot after 2 1/2 years, but the recommendation is to get the 2nd shot 2-6 months after the first. You may want to check with your doctor but I am sure it would be better than not getting the 2nd shot...

Schubert1870 profile image
Schubert1870 in reply toEdalv

I did let the PA know at the appointment 2 months ago how long it's been since the first shot, and though he didn't sound alarmed, he did say to have the second one sooner than later.

I just read on the cdc.gov site that if more than 6 months have elapsed between the first and second Shingrix, that one doesn't need to restart from square one, thank goodness!

Edalv profile image
Edalv in reply toSchubert1870

Yes, I read the same recommendation… that’s good news…

cyclist123 profile image
cyclist123

Does anyone know if Shingrix vaccine works like covid vaccine in the following way....if one gets both Shingrix shots and, with bad luck, gets shingles...is it a milder case?

Phil4-13 profile image
Phil4-13 in reply tocyclist123

cyclist123, that's what my doctor told me, a milder case. 🙂 Sandra

MickUK profile image
MickUK

I had my second shingrix jab 5 days ago. My arm was aching and tender for 24 hours and was still a little tender after three days, but not too bad at all thankfully.

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