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Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
10 months ago
Advice re covid jab
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
Ana-16
in
PMRGCAuk
8 months ago
Baby Athletes Foot
My baby is 5 months old and I think he may have athletes foot if that’s at all possible! I think it’s probably from where he has had sweaty feet and then worn baby gros overnight with covered feet, we keep his feet bare during the day when at home to let them air out and dry. Is there anything over the
My baby is 5 months old and I think he may have athletes foot if that’s at all possible! I think it’s probably from where he has had sweaty feet and then worn baby gros overnight with covered feet, we keep his feet bare during the day when at home to let them air out and dry. Is there anything over the
PrincessGurn1984
in
Pregnancy and Parenting Support
9 months ago
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Post meningitis
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Lovehope2
in
Meningitis Now
8 months ago
Covid vaccine during tapering down PMR?
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
kangaroojohn
in
PMRGCAuk
8 months ago
Taste loss
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
Rich806
in
Acoustic Neuroma Support
10 months ago
Rising PSA last Lutetium 177 December 2022
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
Janhpr
in
Advanced Prostate Cancer
8 months ago
Should I suspend my methotrexate and hydroxychloroquine until my covid is over?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
Hellerup
in
NRAS
8 months ago
Lunch chat about vaccines
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
oldtimer2
in
NRAS
8 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
8 months ago
Post Covid for a Cllier
Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti virals sent by the hospital on the second day at 10pm- great service Chelsea and Westminster hospital. Now tested negative yesterday but still got heavy cold and sore throat and feel weak. When will it go away??
Came down with Covid 7 days ago - like a horrid bout of flu. Managed to get anti virals sent by the hospital on the second day at 10pm- great service Chelsea and Westminster hospital. Now tested negative yesterday but still got heavy cold and sore throat and feel weak. When will it go away??
Nucleusman
in
CLL Support
7 months ago
Lichenoid Dermatitis
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
Skywriter0
in
MY SKIN
10 months ago
Cold Agglutinin
Another test in my continuing saga. I am now being tested for cold agglutinin. Dr's note below. "A prior DAT was negative, but a second one conducted on Feb. 14 was positive. Subsequently, a monospecific DAT was performed, which was positive for CD3 and negative for IgG, suggesting the possible presence
Another test in my continuing saga. I am now being tested for cold agglutinin. Dr's note below. "A prior DAT was negative, but a second one conducted on Feb. 14 was positive. Subsequently, a monospecific DAT was performed, which was positive for CD3 and negative for IgG, suggesting the possible presence
rcusher
in
CLL Support
5 months ago
Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
lankisterguy
Volunteer
in
CLL Support
8 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
8 months ago
Cold water swimming
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
WitchingHour2point0
in
Thyroid UK
5 months ago
GCA relief of symptoms?
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Chespoll
in
PMRGCAuk
10 months ago
well another drug fail.
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
J1707-
in
NRAS
9 months ago
New to PMR
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Charlotteab
in
PMRGCAuk
8 months ago
walking aids???
has any used a walking aid to improve balance as I walk looking at the ground and I can’t look to the side without stopping first .. flat ground is the best and uneven or incline causes pain in my old hamstring injury and the new hip pain I have developed .. I also still walk slightly to one side
has any used a walking aid to improve balance as I walk looking at the ground and I can’t look to the side without stopping first .. flat ground is the best and uneven or incline causes pain in my old hamstring injury and the new hip pain I have developed .. I also still walk slightly to one side
Teazymaid
in
Headway
16 days ago
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