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Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
8 months ago
Management of Cough Variant Asthma
Hello all, My youngest (almost 8 yo) has Cough Variant Asthma (CVA) and is on Seretide 50 (2 puffs morning + night) and Montelukaust (1 tab) at night. His coughing goes CRAZY when he gets a cold or other upper respiratory infection but he's totally fine outside that (i.e. no wheezing, cough and laboured
Hello all, My youngest (almost 8 yo) has Cough Variant Asthma (CVA) and is on Seretide 50 (2 puffs morning + night) and Montelukaust (1 tab) at night. His coughing goes CRAZY when he gets a cold or other upper respiratory infection but he's totally fine outside that (i.e. no wheezing, cough and laboured
Ollie1976
in
Asthma Community Forum
7 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
8 months ago
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Warfarin not raising inr....why?
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
Charts
in
Hughes Syndrome APS Forum
8 months ago
Old Musician With Tinnitus.
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
VonAdder
in
Tinnitus UK
8 months ago
ct abdominal scan with contrast
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
I have limited systematic scleroderma for 10 years affecting hands and joints with calcium deposits xx due to bowel problem need a ct scan with contrast is this okay to have dye contrast into your arm With my condition will the dye effect kidneys . Your advice appreciated thank you I have scan for
Pycat123
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Heart Calcium Score scan scare
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Slickrock
in
Anxiety Support
8 months ago
Cystitis post endometriosis surgery
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Ayesfreen
in
Endometriosis UK
8 months ago
endo and extreme dizziness
does anyone have extreme dizziness constantly? Almost like feeling a bit drunk? I’ve spoken to one other girl with it. I also feel super sick like I’m getting my the flu all the time but then never actually get the flu. Just very very unwell lately. Any answers would help,
does anyone have extreme dizziness constantly? Almost like feeling a bit drunk? I’ve spoken to one other girl with it. I also feel super sick like I’m getting my the flu all the time but then never actually get the flu. Just very very unwell lately. Any answers would help,
Irish_Endo
in
Endometriosis UK
7 months ago
MAJOR CANCER CURE! (yeah, I know it's not PD)
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
PDWarrior1900
in
Cure Parkinson's
8 months ago
Covid and flu vaccine
I had both my covid and flu boosters yesterday and have just had a really uncomfortable night. I was experiencing fever and chills and pain all over my body. Has anyone else had this problem? I wondered if it was associated with the scleroderma as my body always does overreact to anything foreign. I’
I had both my covid and flu boosters yesterday and have just had a really uncomfortable night. I was experiencing fever and chills and pain all over my body. Has anyone else had this problem? I wondered if it was associated with the scleroderma as my body always does overreact to anything foreign. I’
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Filgotinib with Colds Sore throat
Hello Can I ask I anyone on filgotinib, if you get cold (which feels like it's a head cold all stuffed up) and sore throat, do you stop filgotinib till its better or keep taking it? I know I have to stop if needing antibiotics but wasn't sure for a cold. Your experiences would be very welcome Thank
Hello Can I ask I anyone on filgotinib, if you get cold (which feels like it's a head cold all stuffed up) and sore throat, do you stop filgotinib till its better or keep taking it? I know I have to stop if needing antibiotics but wasn't sure for a cold. Your experiences would be very welcome Thank
EarthRock
in
NRAS
7 months ago
flu jab with adjuvent
My lovely gurus. I am so very worried. This morning I had my flu jab and I stupidly forgot to ask for the under 65 jab without the adjuvent. I have always made sure that I had the safe one before. I am really frightened that I will have a huge flare having had the over 65 jab. Has anyone had it
My lovely gurus. I am so very worried. This morning I had my flu jab and I stupidly forgot to ask for the under 65 jab without the adjuvent. I have always made sure that I had the safe one before. I am really frightened that I will have a huge flare having had the over 65 jab. Has anyone had it
Smokygirl
in
PMRGCAuk
7 months ago
Flu jab & AF
Good morning everyone, I am due to get my flu jab this morning, but I woke in the early hours with AF episode, still in it now. Due to take my regular meds at 9am. Flu clinic closes at 1pm. Any thoughts on my getting the jab while still in AF as most likely, going by previous episodes I probably
Good morning everyone, I am due to get my flu jab this morning, but I woke in the early hours with AF episode, still in it now. Due to take my regular meds at 9am. Flu clinic closes at 1pm. Any thoughts on my getting the jab while still in AF as most likely, going by previous episodes I probably
sugaredalmonds
in
AF Association
7 months ago
Update 7.7.5 = Benign
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
hunter5582
in
MPN Voice
5 months ago
vaginal estrogen and vag valium question
I was wondering if any of you lovely ladies are using both vaginal estrogen cream and vaginal valium suppositories. I'm supposed to insert a valium suppository every night (10mg) and I also insert 1 gram of estradiol cream three nights a week. I'm worried that the valium will keep the estrogen cream
I was wondering if any of you lovely ladies are using both vaginal estrogen cream and vaginal valium suppositories. I'm supposed to insert a valium suppository every night (10mg) and I also insert 1 gram of estradiol cream three nights a week. I'm worried that the valium will keep the estrogen cream
sungirl55
in
Pelvic Pain Support Network
9 months ago
Hyperhomocysteinemia or lack of vitamin 12
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
BK47
in
LUPUS UK
8 months ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
8 months ago
PiP - Aids being 'prescribed'
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
Alanna012
in
Fibromyalgia Action UK
8 months ago
latest flu Jab
I had my flu jab on 15th September,three days later I was like a stiff statue..My whole body including all of my joints and muscle tissue hurt! I am not a lot better and yesterday I couldn’t walk up the stairs… could this be from the Jab. I have never had this reaction before.I feel as though I have
I had my flu jab on 15th September,three days later I was like a stiff statue..My whole body including all of my joints and muscle tissue hurt! I am not a lot better and yesterday I couldn’t walk up the stairs… could this be from the Jab. I have never had this reaction before.I feel as though I have
Antoinette48
in
Atrial Fibrillation Support
7 months ago
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