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Serositis and Hypotension anyone?
Diagnosed with Adult Onset Stills Disease aged 17 in 1979 now 61. Stills manifests as RD for me with many overlaps with RA and Lupus. I have other AI conditions such as Lichen Sclerosis and Enthetitus. Amazingly I’ve been mainly medication free since my mid 20s relying on pain relief and limb splints
Diagnosed with Adult Onset Stills Disease aged 17 in 1979 now 61. Stills manifests as RD for me with many overlaps with RA and Lupus. I have other AI conditions such as Lichen Sclerosis and Enthetitus. Amazingly I’ve been mainly medication free since my mid 20s relying on pain relief and limb splints
Stills
in
NRAS
6 months ago
Histamine Intolerance
Hi all. I've been ill for almost 14 years without a diagnosis. I have learned through my own trial and era that I have an intolerance to foods high in histamine and foods containing gluten. My question is can chemical intolerance go hand in hand with histamine intolerance or Mast Cell Disease? I get
Hi all. I've been ill for almost 14 years without a diagnosis. I have learned through my own trial and era that I have an intolerance to foods high in histamine and foods containing gluten. My question is can chemical intolerance go hand in hand with histamine intolerance or Mast Cell Disease? I get
Dixzeland
in
PMRGCAuk
6 months ago
Would you believe it?
Sod's Law. Due for colonoscopy this morning, so spent the last 3 days on a white diet, no alcohol, yesterday went through the Moviprep routine to empty bowels, spent all evening on and off toilet, most unpleasant. Got up at 2am this morning for toilet, and guess what, of course, AF suddenly kicked in
Sod's Law. Due for colonoscopy this morning, so spent the last 3 days on a white diet, no alcohol, yesterday went through the Moviprep routine to empty bowels, spent all evening on and off toilet, most unpleasant. Got up at 2am this morning for toilet, and guess what, of course, AF suddenly kicked in
50568789
in
Atrial Fibrillation Support
6 months ago
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FLARE at 5.25mg??
Hi all, I have been in Australia for almost a year and have been doing very well lately. I have steadily been reducing SLOWLY. No flares that I can remember for a very very long time. My Mast Cell Activation Syndrome / Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle
Hi all, I have been in Australia for almost a year and have been doing very well lately. I have steadily been reducing SLOWLY. No flares that I can remember for a very very long time. My Mast Cell Activation Syndrome / Histamine Intolerance / Multiple Chemical Sensitivity issues have been my struggle
Slosh
in
PMRGCAuk
6 months ago
Any advice on tapering prednisolone with Methotrexate and RoActemra?
hello...would be grateful for words of wisdom and experience. Feeling confused on how to manage steroid reduction. Started Methotrexate 5 weeks ago and 3rd RoActemra injection tomorrow. Was told to reduce steroids from a high of 55mg at 5mg/week back in May. Am now on 20mg, reducing to 15mg on this
hello...would be grateful for words of wisdom and experience. Feeling confused on how to manage steroid reduction. Started Methotrexate 5 weeks ago and 3rd RoActemra injection tomorrow. Was told to reduce steroids from a high of 55mg at 5mg/week back in May. Am now on 20mg, reducing to 15mg on this
tweety_pie
in
PMRGCAuk
10 months ago
Clean endoscopy and colonoscopy but persistent gastric pain
HiI am a 40 years old female. Family history : my mom who got diagnosed with colon cancer at the age of 50 and passed away a few years later. Over 2 months I have been suffering from gastric (upper stomach ) pain which is more like sharp pain , that radiates to back, no reflux , no acidity , but feeling
HiI am a 40 years old female. Family history : my mom who got diagnosed with colon cancer at the age of 50 and passed away a few years later. Over 2 months I have been suffering from gastric (upper stomach ) pain which is more like sharp pain , that radiates to back, no reflux , no acidity , but feeling
Burper007
in
Colon Cancer Connected
6 months ago
Dry eyes and mouth
Is sea buckthorn oil capsules good for sjogrens syndrome? I had this diagnosis yrs ago and I know there is a correlation between sjogrens and hashimotos which I also have. Tried lots of eye lubricants (Prescriotion and OTC ) and oral sprays over the years but nothing has helped. Think I may have heard
Is sea buckthorn oil capsules good for sjogrens syndrome? I had this diagnosis yrs ago and I know there is a correlation between sjogrens and hashimotos which I also have. Tried lots of eye lubricants (Prescriotion and OTC ) and oral sprays over the years but nothing has helped. Think I may have heard
Hollybushroad
in
Thyroid UK
10 months ago
Hives from cold weather and after getting sun burn
Has any one else had this problem I started to get hives a few years ago when exposed to cold and now have it very badly after getting sunburned. Rash with large itchy lumps. Is this part of the PMR effect on the immune system.
Has any one else had this problem I started to get hives a few years ago when exposed to cold and now have it very badly after getting sunburned. Rash with large itchy lumps. Is this part of the PMR effect on the immune system.
BLUEPMR
in
PMRGCAuk
10 months ago
Picolax
Hi, I have done bowel prep lots of times over the years however I have always used moviprep so I know exactly what to expect as it goes through my system and I understand how it works especially with the volume of fluids it gives plenty of fuel to keep going all day and night however there is a shortage
Hi, I have done bowel prep lots of times over the years however I have always used moviprep so I know exactly what to expect as it goes through my system and I understand how it works especially with the volume of fluids it gives plenty of fuel to keep going all day and night however there is a shortage
MyStar86
in
IBS Network
6 months ago
Picolax
Hi, I have done bowel prep lots of times over the years however I have always used moviprep so I know exactly what to expect as it goes through my system and I understand how it works especially with the volume of fluids it gives plenty of fuel to keep going all day and night however there is a shortage
Hi, I have done bowel prep lots of times over the years however I have always used moviprep so I know exactly what to expect as it goes through my system and I understand how it works especially with the volume of fluids it gives plenty of fuel to keep going all day and night however there is a shortage
MyStar86
in
Bowel Disease Support
6 months ago
Hashimoto and Thyroid Eye Disease
Hi, I developed symptoms in my left eye about two weeks ago. First thought it was hayfever related, but it's only in my left eye. It started feeling worse (itching, sensation of swollen eye, some swelling in the under eye area) so I went to go see an ophthalmologist. He diagnosed me with Thyroid Eye
Hi, I developed symptoms in my left eye about two weeks ago. First thought it was hayfever related, but it's only in my left eye. It started feeling worse (itching, sensation of swollen eye, some swelling in the under eye area) so I went to go see an ophthalmologist. He diagnosed me with Thyroid Eye
thyroidqueen12
in
Thyroid UK
10 months ago
EMBARK Study: Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Fight Prostate Cancer
6 months ago
Celiac testing and Obinutuzumab
So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my grandma had it, but it never got that bad. Now I've had diarrhea for months and am losing weight - so it seems sensible to get it checked out. But I'm on V & O, completed the O infusions in July (about
So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my grandma had it, but it never got that bad. Now I've had diarrhea for months and am losing weight - so it seems sensible to get it checked out. But I'm on V & O, completed the O infusions in July (about
Greenbunnies
in
CLL Support
6 months ago
ET and healing
Hello. Has anyone experience of slow healing/healing complications following surgery? On both occasions of punch biopsy the wounds have been slow to heal, have become infected requiring antibiotics, similarly with a tooth extraction. I am on the waiting list for eye surgery and am anxious that I may
Hello. Has anyone experience of slow healing/healing complications following surgery? On both occasions of punch biopsy the wounds have been slow to heal, have become infected requiring antibiotics, similarly with a tooth extraction. I am on the waiting list for eye surgery and am anxious that I may
YogaLover
in
MPN Voice
10 months ago
Wrist and hand operation.
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). It’s a big deal and not without risks I’m very worried. I was wondering if anyone else had a similar operation? Thank you 🙏
Hi again lovely helpful people. I am due to have a wrist and knuckle replacements (MCPJ silastic replacement) and intrinsic releases (tendons I think). It’s a big deal and not without risks I’m very worried. I was wondering if anyone else had a similar operation? Thank you 🙏
debjw
in
NRAS
6 months ago
Help with results please.
I would be very grateful for insights on the following . Thyroid results Feb prior to any treatment TSH 2.06 FT3 3.77 FT4 25.2 RT3 0.33 Anti TG 25 Anti TPO 13 Prescribed Armour 30 mgs twice day from Feb to June Results in June TSH 0.9- gone down significantly FT3 3.2 - ie gone
I would be very grateful for insights on the following . Thyroid results Feb prior to any treatment TSH 2.06 FT3 3.77 FT4 25.2 RT3 0.33 Anti TG 25 Anti TPO 13 Prescribed Armour 30 mgs twice day from Feb to June Results in June TSH 0.9- gone down significantly FT3 3.2 - ie gone
evelynmreid
in
Thyroid UK
10 months ago
My Condition
I was diagnosed with Asthma and mild Bronchiectasis 2 years ago I had a cough for almost 35 years after a severe bout of bronchitis I eventually saw a lung consultant in Glasgow who diagnosed my condition I have had 3 lung scans and my condition is stable My asthma is cough and I have about 4 to 5
I was diagnosed with Asthma and mild Bronchiectasis 2 years ago I had a cough for almost 35 years after a severe bout of bronchitis I eventually saw a lung consultant in Glasgow who diagnosed my condition I have had 3 lung scans and my condition is stable My asthma is cough and I have about 4 to 5
leonierose
in
Lung Conditions Community Forum
10 months ago
Questionn
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
LonerIQ
in
Lung Conditions Community Forum
8 months ago
FIT and Feacal Calprotectin
Hi. Hoping someone can ease my nerves as I feel sick and cannot sleep due to worry. I am a 30 year old female with 3 children aged 9, 6 and 1. I did a FIT test due to seeing blood on the tissue when I wiped a couple of weeks ago. I don’t poo very often (once or twice a week). And tmi but my poo was
Hi. Hoping someone can ease my nerves as I feel sick and cannot sleep due to worry. I am a 30 year old female with 3 children aged 9, 6 and 1. I did a FIT test due to seeing blood on the tissue when I wiped a couple of weeks ago. I don’t poo very often (once or twice a week). And tmi but my poo was
Rbbre2415182724
in
Colon Cancer Connected
6 months ago
Alternative to Anticoagulation?
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
This is very new and exciting. Just a case history for now, but apparently they have done a Left Atrial Appendage (LAA)Closure during an RF catheter ablation procedure, guided by 3D printing technology! As many of you know, there now exist several devices like Watchman and Amulet that are inserted
mjames1
in
AF Association
10 months ago
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