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Familial Polycythemia
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Hi,I wondered if anyone could advise on what care we should be getting for familial polycythemia? my 2 children (age 24 & 27) and I were tested at Guys a few years ago for the Jak2 gene, it was negative & we were discharged. Our blood tests always show a red cell count around 5.6, Haemoglobin 160
Vicky_b
in
MPN Voice
3 months ago
Eye strain
Hi could anyone help me with this problem I have been getting the feeling that my eyes are strained and sensitive to light would this be related to thyroid problems I have had surgery to remove the right side of my thyroid and I am not currently taken any meds for this ?
Hi could anyone help me with this problem I have been getting the feeling that my eyes are strained and sensitive to light would this be related to thyroid problems I have had surgery to remove the right side of my thyroid and I am not currently taken any meds for this ?
Rocksonfire
in
Thyroid UK
9 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
3 months ago
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Chronic diarrhea after chemo; any suggestions?
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is given. 4 finished so far. But i'm experiencing terrible diarrhea. Everyday more than 10 (sometimes 18) visits to restroom and pain during after
Sybil71
in
My Ovacome
3 months ago
h pylori treatment
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
hello I’d like to hear from anyone who has successfully eradicated helicobacter pylori with either a natural or antibiotic protocol. I’m on low dose NDT with Dr Frey and have thyroid nodules (biopsy tested benign) Tested positive for h pylori via a breath test in October and was offered quadruple
Crankyoldbag
in
Thyroid UK
3 months ago
Red yeast rice
Hi does any know anything about red yeast rice I know it can lower cholesterol but can it be taken with levothyroxine??
Hi does any know anything about red yeast rice I know it can lower cholesterol but can it be taken with levothyroxine??
Angela
in
Thyroid UK
9 months ago
probiotics stomach upset
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
Hi, I was interested in trying probiotics, namely Kefir to help restore gut microbiome since the Lanzoprazole destroys them. The dietitian recommended this too, as did my surgeon. I already eat lots of live yoghurt with no problems. However I’ve been getting a lot of wind and diarrhoea since I started
PopandMo
in
Oesophageal & Gastric Cancer
3 months ago
PMR resurgence
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
Mervetheswerve
in
PMRGCAuk
9 months ago
Wheat Diet may Exacerbate Multiple Sclerosis Severity
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Wheat diet may exacerbate multiple sclerosis severity, research finds - Jan 2024
by Natkritta Hüppe, Universitätsmedizin der Johannes Gutenberg-Universität Mainz https://medicalxpress.com/news/2024-01-wheat-diet-exacerbate-multiple-sclerosis.html
Highlights:
A research team at the University
Bolt_Upright
in
Cure Parkinson's
3 months ago
Anyone else have severe daily heartburn?
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
Diagnosis of autoimmune atrophic gastritis with intestinal metaplasia and also PA. Currently SI B12 (cyanobalamin ) EOD. Does anyone else with this get severe heartburn? I’ve cut out acidic and spicy. It seems to happen mostly on an empty stomach right before lunch. Sometimes Pepsid Complete works and
ReallyWondering
in
Pernicious Anaemia Society
3 months ago
New to world of IBS - How do you balance your diet and still enjoy life?
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Hi everyone, I am new to this network and I look forward to sharing experiences with my fellow community😀 I have always loved bread, especially craft-baked / slow fermented / sourdough types but have moved away from even these until I better understand the gremlin in my gut 👿 Before IBS said "Hello
Nomorewheat
in
IBS Network
3 months ago
Ct scan with contrast
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Just had a ct scan with contrast. It sent my heart into a really erratic state for 1/2 hrs afterwards . Should I take my thyroid s as normal or wait 24 hrs for the stuff to clear out of my system? Any help please.
Catlover3
in
Thyroid UK
3 months ago
Consultation for gamma knife
I have a consultation this friday at queens square for gamma knife. I beleive i will be under the care of neil kitchen. Feeling rather anxious, because i was hoping that that i could delay any treatment, but unfortunately i was told my tumour has increased in size since my last scan a year ago. My An
I have a consultation this friday at queens square for gamma knife. I beleive i will be under the care of neil kitchen. Feeling rather anxious, because i was hoping that that i could delay any treatment, but unfortunately i was told my tumour has increased in size since my last scan a year ago. My An
Cwk123
in
Acoustic Neuroma Support
9 months ago
Tests
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Can anyone tell me what tests you have to prove its IBS as I haven't as yet but assuming I have this condition? ......constant gut ache and nausea but no diarrhoea or constipation as such.
Poshy
in
IBS Network
3 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
3 months ago
colitis
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then
Bluegirl1948
in
Crohn's and Colitis Support
3 months ago
Costochondritis
I had a bad cough with a chest infection (in my opinion). The third time this year. On previous 2 occasions, I was given 30mg pred per day for 5 days and an antibiotic, and chest cleared each time. I have been in contact with covid, but have not had +ve test. This time I was not given, I was refused
I had a bad cough with a chest infection (in my opinion). The third time this year. On previous 2 occasions, I was given 30mg pred per day for 5 days and an antibiotic, and chest cleared each time. I have been in contact with covid, but have not had +ve test. This time I was not given, I was refused
Q-owl
in
PMRGCAuk
8 months ago
Results Advice
Hi Due to a vast array of hypothyroid symptoms I recently had a thyroid test which showed: 6th July: TSH 2.7 (0.3-4.9) FT3 3.9 (2.43-6) FT4 13 (9-19) TPO 156.2 (<5.6) TGA 43.1 (<4.1) Cholesterol 6.4 (total) Then rested including more tests: 25.7.23 RBC all normal except MCV 104.1 (81
Hi Due to a vast array of hypothyroid symptoms I recently had a thyroid test which showed: 6th July: TSH 2.7 (0.3-4.9) FT3 3.9 (2.43-6) FT4 13 (9-19) TPO 156.2 (<5.6) TGA 43.1 (<4.1) Cholesterol 6.4 (total) Then rested including more tests: 25.7.23 RBC all normal except MCV 104.1 (81
RosieTheRoo2023
in
Thyroid UK
9 months ago
Took the wrong meds Help
I have been taking cetrotide for 6 days now at 7am and I accidentally, for some unbeknown reason, took it again at 7pm this evening instead of my Bemfola… I rang the clinic out of hours and they said to take Bemfola tonight and cetrotide again in the morning and not to panic, however I will now be an
I have been taking cetrotide for 6 days now at 7am and I accidentally, for some unbeknown reason, took it again at 7pm this evening instead of my Bemfola… I rang the clinic out of hours and they said to take Bemfola tonight and cetrotide again in the morning and not to panic, however I will now be an
Ralphlola
in
Fertility Network UK
3 months ago
Enemas
Wow 😯. That’s a title eh?! Straight to your imagination I reckon. DON’T read this post whilst having your dinner. I went to the gym this afternoon. I had very little energy and had a strong sense that my meds hadn’t really hit the spot? I reflected on this and observed that I hadn’t had a bowel movement
Wow 😯. That’s a title eh?! Straight to your imagination I reckon. DON’T read this post whilst having your dinner. I went to the gym this afternoon. I had very little energy and had a strong sense that my meds hadn’t really hit the spot? I reflected on this and observed that I hadn’t had a bowel movement
jeeves19
in
Cure Parkinson's
3 months ago
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