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Clonidine
Yay! Something my body can tolerate that seems to be beginning to work! :D I am getting a bit of yawning and little bit of a fuzzy head - and getting some light headedness etc - but so far it seems to be reducing the tics massively! I am still getting a fairly regular number of tics on and off, but
Yay! Something my body can tolerate that seems to be beginning to work! :D I am getting a bit of yawning and little bit of a fuzzy head - and getting some light headedness etc - but so far it seems to be reducing the tics massively! I am still getting a fairly regular number of tics on and off, but
alexfrombath
in
Tourettes Action
12 years ago
Come As You Are
I had my 6 monthly appointment with my genius consultant on Thursday, as friendly, cheerful and easy-going as usual, this man’s accent should be preserved in aspic so it doesn’t become to anglicized, like mine unfortunately has. I have however realized that it is easier for a Welsh woman to impersonate
I had my 6 monthly appointment with my genius consultant on Thursday, as friendly, cheerful and easy-going as usual, this man’s accent should be preserved in aspic so it doesn’t become to anglicized, like mine unfortunately has. I have however realized that it is easier for a Welsh woman to impersonate
catherinem
in
Tourettes Action
12 years ago
Main stream school or Special needs school?
My 12 year old son has been in mainstream secondary school for almost a year now, his tics have got worse, and he is having anxiety/panic attacks, he is also complaining of really bad stomach cramps. His social/emotional development and understanding of the world is of a 7 year old. He is finding it
My 12 year old son has been in mainstream secondary school for almost a year now, his tics have got worse, and he is having anxiety/panic attacks, he is also complaining of really bad stomach cramps. His social/emotional development and understanding of the world is of a 7 year old. He is finding it
dontstress
in
Tourettes Action
12 years ago
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It’s Nice for Mice to get out of the House
I’ve had an interesting few days, I also appologise for breaking my promise, as we are still in Tourette’s Syndrome Awareness month and I haven’t been blogging everyday as I said I would. It’s been an interesting few days from both a ticcy perspective and other events. I did have a cold a few days
I’ve had an interesting few days, I also appologise for breaking my promise, as we are still in Tourette’s Syndrome Awareness month and I haven’t been blogging everyday as I said I would. It’s been an interesting few days from both a ticcy perspective and other events. I did have a cold a few days
catherinem
in
Tourettes Action
12 years ago
No TV and no internet make Lucy go crazy...
Well it will eventually. From tomorrow I no longer have internet (no wi-fi connection in the house) and because I have no money, I can't afford a TV license so I will also not have TV... unless I watch it downstairs with the others. I will still be able to access the internet occasionally in the local
Well it will eventually. From tomorrow I no longer have internet (no wi-fi connection in the house) and because I have no money, I can't afford a TV license so I will also not have TV... unless I watch it downstairs with the others. I will still be able to access the internet occasionally in the local
LittleClapham
in
Tourettes Action
12 years ago
Have any of you been given nabilone?
For a while a few years ago I was given nabilone for my TS. As it was a while ago and during a particularly bad year for the tics I can't remember much about it! I had to stop because at the time I was on a university course that needed 100% concentration and I do remember that it made me very fuzzy
For a while a few years ago I was given nabilone for my TS. As it was a while ago and during a particularly bad year for the tics I can't remember much about it! I had to stop because at the time I was on a university course that needed 100% concentration and I do remember that it made me very fuzzy
alexfrombath
in
Tourettes Action
12 years ago
Hi
Dear friends of pain: every now and then I read your comments and events about you pains, sorrows and joys of everyday life. I want you to know that like you I am in a lot of pain and Etc.etc., and two weeks ago I went into Interstitial cystitis, which is Characterized by the Presence of a chronic Inflammation
Dear friends of pain: every now and then I read your comments and events about you pains, sorrows and joys of everyday life. I want you to know that like you I am in a lot of pain and Etc.etc., and two weeks ago I went into Interstitial cystitis, which is Characterized by the Presence of a chronic Inflammation
Julianne
in
Fibromyalgia Action UK
12 years ago
There is a Light That Never Goes Out
Really I should be going to bed, but I have no inclination to sleep whatsoever, my body is slightly tired but my mind is still in overdrive. It has been for a couple of days now after been very low and delicate. Actually my hearing has taken on new superpowers today. At this very moment I’m listening
Really I should be going to bed, but I have no inclination to sleep whatsoever, my body is slightly tired but my mind is still in overdrive. It has been for a couple of days now after been very low and delicate. Actually my hearing has taken on new superpowers today. At this very moment I’m listening
catherinem
in
Tourettes Action
12 years ago
Permenant cystitis - What do you recommend?
I went to GP at the beginning of the week because I have had permenant cystitis since xmas. It even wakes me up in the night as I have constant burning. I am up at least twice every night to the loo and I have to drink at least one glass of water during the night to prevent it being really bad in the
I went to GP at the beginning of the week because I have had permenant cystitis since xmas. It even wakes me up in the night as I have constant burning. I am up at least twice every night to the loo and I have to drink at least one glass of water during the night to prevent it being really bad in the
Katt
in
Endometriosis UK
12 years ago
Interstitial Cystitis
Hey, does anyone here have this condition and if so how do they help you control it? Cheers for your help in advance.
Hey, does anyone here have this condition and if so how do they help you control it? Cheers for your help in advance.
Elsbeth
in
Pelvic Pain Support Network
12 years ago
YAWN!!!
I'm not tired, just REALLY BORED. I can't do anything without being BORED. I wasn't BORED of playing PS2 all day, watching DVDs, Playing Sims 3 and listening to/playing music before but now I feel dead almost. I am hoping this is just going to be a temporary side-effect or something because I don't think
I'm not tired, just REALLY BORED. I can't do anything without being BORED. I wasn't BORED of playing PS2 all day, watching DVDs, Playing Sims 3 and listening to/playing music before but now I feel dead almost. I am hoping this is just going to be a temporary side-effect or something because I don't think
LittleClapham
in
Tourettes Action
12 years ago
ive got intersitial cystitis to the degree that my bladder walls bleed! is this connected to the fibro?
nadine1974
in
Fibromyalgia Action UK
12 years ago
My discoveries- Right or Wrong?
So my campaign to raise awareness is moving slowly, but surely. I have been in touch with Tim Howard (Everton FC Goalkeeper) who has Tourettes Syndrome and he is keen to help. I have also met with my local MP, because while on this journey I discovered like many I am sure, that you have to battle to
So my campaign to raise awareness is moving slowly, but surely. I have been in touch with Tim Howard (Everton FC Goalkeeper) who has Tourettes Syndrome and he is keen to help. I have also met with my local MP, because while on this journey I discovered like many I am sure, that you have to battle to
staceyrudd
in
Tourettes Action
12 years ago
Anyone get psychiatric dxs requiring Seroquel, Depakote only w/ onset of PD dx?
I never had these, understand getting depression, anxiety, but do not understand why these?
I never had these, understand getting depression, anxiety, but do not understand why these?
sabadad
in
Cure Parkinson's
12 years ago
18 months down the line of a diagnosis
OK here goes. My name is Stacey Rudd and I am the proud parent of 2 girls- Charlie and Lily. Charlie is nine and is beautiful but 18 months ago we were shocked by a diagnosis that changed our lives. Our story begins when Charlie was about 3 years old and she seemed to
OK here goes. My name is Stacey Rudd and I am the proud parent of 2 girls- Charlie and Lily. Charlie is nine and is beautiful but 18 months ago we were shocked by a diagnosis that changed our lives. Our story begins when Charlie was about 3 years old and she seemed to
staceyrudd
in
Tourettes Action
12 years ago
So much pain I am annoyed!
I have had a [sarcasm] brilliant [/sarcasm] few weeks. Since my last blog, my eye tics have got worse and have, as Tourettes does expertly, added several new and old ones back into my long list of tics. My eyes have been rolling around so much that they have gone very red and I look like I have not slept
I have had a [sarcasm] brilliant [/sarcasm] few weeks. Since my last blog, my eye tics have got worse and have, as Tourettes does expertly, added several new and old ones back into my long list of tics. My eyes have been rolling around so much that they have gone very red and I look like I have not slept
LittleClapham
in
Tourettes Action
12 years ago
what about me??
im 37 but i feel 90!! im a single mum and have been single for nearly 5 years, partly due to fm partly due to the last relationship being with a violent man. my son has adhd and aspergers my daughter has hypermobility syndrome. im not feeling sorry for myself, im just realising how quick life is flashing
im 37 but i feel 90!! im a single mum and have been single for nearly 5 years, partly due to fm partly due to the last relationship being with a violent man. my son has adhd and aspergers my daughter has hypermobility syndrome. im not feeling sorry for myself, im just realising how quick life is flashing
nadine1974
in
Fibromyalgia Action UK
12 years ago
Vocal Tics or Motor Tics?
All of us with Tourette's Syndrome know how loud vocal tics can effect your everyday life. They surprise us at moments when we need to be silent; they shout out the most awful things in the most embarrassing situations. For the last couple of weeks I have really tried to suppress my vocal tics, this
All of us with Tourette's Syndrome know how loud vocal tics can effect your everyday life. They surprise us at moments when we need to be silent; they shout out the most awful things in the most embarrassing situations. For the last couple of weeks I have really tried to suppress my vocal tics, this
Laurakaren
in
Tourettes Action
12 years ago
Will the Worm Turn?
Until a couple of days ago I wasn’t too sure about Red Ed and his suitability to lead the Labour Party, but my estimations of him are rising. I did feel somewhat dejected and as though my political leanings and beliefs were too left of centre to be considered and felt quite naive that my colleagues at
Until a couple of days ago I wasn’t too sure about Red Ed and his suitability to lead the Labour Party, but my estimations of him are rising. I did feel somewhat dejected and as though my political leanings and beliefs were too left of centre to be considered and felt quite naive that my colleagues at
catherinem
in
Tourettes Action
12 years ago
Hearing about others' experiences is just the tonic (weird, I know; sory!)
Gosh, I so hope this isn't a piece of major tactlesness - I do mean it in the best posible way as a thank you to everyone for sharing their experiences! When I went through all the things I did (see my blog about TIAs and misdiagnosis with postantal psychosis below) I was furious about what happend
Gosh, I so hope this isn't a piece of major tactlesness - I do mean it in the best posible way as a thank you to everyone for sharing their experiences! When I went through all the things I did (see my blog about TIAs and misdiagnosis with postantal psychosis below) I was furious about what happend
Eliza_E
in
Hughes Syndrome APS Forum
13 years ago
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