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Michelle
I started off with PMR 9 years ago and then developed GCA, I'm sure I still have PMR, but Doctor begs to differ, I came off
steroids
2 years ago, because I was going up and down, and I had a bone scan, and osteoarthritis was everywhere, I had an MRI on lumbar spine, MRI on Cervical spine and MRI on Thigh
I started off with PMR 9 years ago and then developed GCA, I'm sure I still have PMR, but Doctor begs to differ, I came off
steroids
2 years ago, because I was going up and down, and I had a bone scan, and osteoarthritis was everywhere, I had an MRI on lumbar spine, MRI on Cervical spine and MRI on Thigh
Healthliving
in
NRAS
4 months ago
eosinophils, cough, alopecia
I was diagnose with eosinophils pneumonia and put on taking
steroids
- prednisone. I started this
steroids
from July until November but as soon as I don't take more than a week the cough is back and lots of mucus.
I was diagnose with eosinophils pneumonia and put on taking
steroids
- prednisone. I started this
steroids
from July until November but as soon as I don't take more than a week the cough is back and lots of mucus.
Ashlander
in
Living with Asthma
5 months ago
imurel
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off
steroids
. The pains in my head have mostly gone and I am starting to feel better now.
hi I was started on imurel in November alongside 10mgs prednisol. with a view to getting me off
steroids
. The pains in my head have mostly gone and I am starting to feel better now.
NormaB
in
PMRGCAuk
6 months ago
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Long term Steroids.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Chanelady
in
NRAS
9 months ago
How cortisone/pred works - a new study reports on a potential target to replace steroids
I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing other drugs to replace it. https://www.news-medical.net/news/20240410/Study-unlocks-how-cortisone-activates-the-bodye28099s-natural-e2809cbrakese2809d-on-inflammation.aspx
I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing other drugs to replace it. https://www.news-medical.net/news/20240410/Study-unlocks-how-cortisone-activates-the-bodye28099s-natural-e2809cbrakese2809d-on-inflammation.aspx
PMRpro
Ambassador
in
PMRGCAuk
3 months ago
Update re RA and associated Colitis
Treatment is
steroids
. It's been a long journey after being told for years it was IBS. TBH honest I'm glad of a true diagnosis. Unfortunately the RA also attacked my Pancreas. Funny thing is and I need to laugh is the RA is in remission thanks to Benipali. Silver clouds and all that
Treatment is
steroids
. It's been a long journey after being told for years it was IBS. TBH honest I'm glad of a true diagnosis. Unfortunately the RA also attacked my Pancreas. Funny thing is and I need to laugh is the RA is in remission thanks to Benipali. Silver clouds and all that
Jackie1947
in
NRAS
6 months ago
Severe mental reaction to prednisolone
Are there other options that don't involve
steroids
? Any help at all would be such a relief.
Are there other options that don't involve
steroids
? Any help at all would be such a relief.
tinlid
in
PMRGCAuk
2 months ago
Virtual Wards
I take a large amount of medication that needed assessment including
steroids
affecting my blood sugar and heart failure tablets causing low blood pressure and high pulse rate, causing dizziness, breathlessness nausea and headaches.
I take a large amount of medication that needed assessment including
steroids
affecting my blood sugar and heart failure tablets causing low blood pressure and high pulse rate, causing dizziness, breathlessness nausea and headaches.
Doublef
in
British Heart Foundation
6 months ago
Wound healing and Steroid Use
I'm wondering if I am going to take longer to heal because of the
steroids
and if there is anything I can do to speed things up! My body has always come through for me. I have always been strong and resilient with no physical issues. This is miserable!
I'm wondering if I am going to take longer to heal because of the
steroids
and if there is anything I can do to speed things up! My body has always come through for me. I have always been strong and resilient with no physical issues. This is miserable!
lovemylife23
in
PMRGCAuk
3 months ago
Leukoplakia, is it autoimmune?
Reading up about this suggests that it may be another autoimmune condition, in which case might it go away of its own accord now I'm on
steroids
for PMR?
Reading up about this suggests that it may be another autoimmune condition, in which case might it go away of its own accord now I'm on
steroids
for PMR?
Wheelygood99
in
PMRGCAuk
7 months ago
Johnk
Started
steroids
15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
Started
steroids
15mg to 4 mg monthly twice, then 8mg to 4mg. After which I have been on 5mg for a further 2 months and advised to stay on this dosage.I'm also now taking 20mg Methotrexate once a week. Still experiencing stiffness and pain.
Porridgelove
in
PMRGCAuk
7 months ago
costochondritis
I’m on 2
steroids
a day (for poly myalgia). Thank you
I’m on 2
steroids
a day (for poly myalgia). Thank you
Pongo13
in
PMRGCAuk
7 months ago
Flare treatment
It’s like my
steroids
, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some extra stress.
It’s like my
steroids
, HRT snd Levothyroxine have all suddenly stopped working and my mood has plummeted. Suspect it might be adrenal glands but now have a PMR flare to deal with. I had a dose of cold couple of months ago and some extra stress.
Body_bonkers
in
PMRGCAuk
2 months ago
RSV virus
hello everyone had this virus since Xmas eve bed riden day 7 finally got amoxicillin and some
steroids
as have AF and copd.this is worse than covid which I have had and plays with your AF.even healthy ppl with no AF reporting symptoms of irregular H/R.Strong headaches,fever,high temps,aching all over.I
hello everyone had this virus since Xmas eve bed riden day 7 finally got amoxicillin and some
steroids
as have AF and copd.this is worse than covid which I have had and plays with your AF.even healthy ppl with no AF reporting symptoms of irregular H/R.Strong headaches,fever,high temps,aching all over.I
Danny44
in
Atrial Fibrillation Support
6 months ago
Help with results undetectable tsh
I had a course of
steroids
a month ago so surely this wouldn’t still affect my tsh now? All my other routine bloods were normal except an elevated bilirubin level but I can’t see any connection there. Any thoughts would be appreciated. Thanks
I had a course of
steroids
a month ago so surely this wouldn’t still affect my tsh now? All my other routine bloods were normal except an elevated bilirubin level but I can’t see any connection there. Any thoughts would be appreciated. Thanks
Victoria27
in
Thyroid UK
4 months ago
Progress at last
Had x3 courses of high dose
steroids
plus inhalers and nebulisers.
Had x3 courses of high dose
steroids
plus inhalers and nebulisers.
Phdgranny
Graduate
in
Couch to 5K
3 months ago
hypothyroidism - problems with GP
I was then put on high dose
steroids
for a month - the rash came back when I finished the
steroids
. The GP assured me the rash wasn’t connected to my hypothyroidism or diabetes. I asked to be referred to a dermatologist.
I was then put on high dose
steroids
for a month - the rash came back when I finished the
steroids
. The GP assured me the rash wasn’t connected to my hypothyroidism or diabetes. I asked to be referred to a dermatologist.
Oatlove
in
Thyroid UK
24 hours ago
Thyroid issues
Since November after a bout on
steroids
due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes, anxiety horrendous, irritable,moody, jittery.
Since November after a bout on
steroids
due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes, anxiety horrendous, irritable,moody, jittery.
Geordieclaire12573
in
Thyroid UK
5 months ago
Pred again
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the
steroids
I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!!
Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the
steroids
I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!!
24paula
in
PMRGCAuk
3 months ago
Out of hospital Pt2
I'm on more
steroids
. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman in the new year. 🙌
I'm on more
steroids
. Slowly reducing and Anakinra... daily biologic. It's an actual syringe job so it's as well I'm a vet and used to giving injections. It's worse injecting yourself but I'll get on with it. Fingers crossed I'll be a new woman in the new year. 🙌
wilbertjellyfish
in
NRAS
7 months ago
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