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PMR flare, muscle pain or side effects of medication?
I thought it was a muscle problem initially and have been taking paracetamol but the pain is still there so I am now wondering whether it is a flare and whether I should try increasing the
steroids
. Tapering had been going well. My starting dose was 20mg in June 2022.
I thought it was a muscle problem initially and have been taking paracetamol but the pain is still there so I am now wondering whether it is a flare and whether I should try increasing the
steroids
. Tapering had been going well. My starting dose was 20mg in June 2022.
sewinggranny
in
PMRGCAuk
1 year ago
Lost hearing, vertigo and now rash is this?
I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Thomas then discharged when the drugs started to work. I’ve been in and out of hospital for chronic IC and unexplained gallbladder inflammation which was extremely painful on numerous occasions. Every time I go in I end up
I hope someone can help me. I was diagnosed with MCAS in 2015 at Guys and St Thomas then discharged when the drugs started to work. I’ve been in and out of hospital for chronic IC and unexplained gallbladder inflammation which was extremely painful on numerous occasions. Every time I go in I end up
Redfleur
in
The UK Mastocytosis Support Group
6 months ago
Just Beginning...
Hi everyone! I'm an Aussie and been diagnosed GCA since last Friday. After four months of headaches, and some weird variable symptoms of joint pain, fluctuating virus like symptoms and some just plain episodes of feeling weak and wobbly, I visited the GP. Blood tests showed ESR 82 and i was asked to
Hi everyone! I'm an Aussie and been diagnosed GCA since last Friday. After four months of headaches, and some weird variable symptoms of joint pain, fluctuating virus like symptoms and some just plain episodes of feeling weak and wobbly, I visited the GP. Blood tests showed ESR 82 and i was asked to
Leafsong66
in
PMRGCAuk
9 months ago
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Copious amounts of sputum
Ive had multiple courses of antibiotics &
steroids
. I’ve only just had a sputum sample returned, “bug free!” All these infections have created a new issue. Excessive sputum production. I wake between 3am and 5am every night with lungs full.
Ive had multiple courses of antibiotics &
steroids
. I’ve only just had a sputum sample returned, “bug free!” All these infections have created a new issue. Excessive sputum production. I wake between 3am and 5am every night with lungs full.
Lynnetp
in
Lung Conditions Community Forum
1 year ago
Stopped Methotrexate being screened for Adalimumab
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
Amandaazz
in
NRAS
3 months ago
PET/CT Scan Normal, Bloods Normal, but Responds to Steroids!
I said “but one that responds to
steroids
; I can do so much more when I’m on them”, to which he replied, “give
steroids
to any man in the street and he’ll feel better.” He says he can’t prescribe any more
steroids
.
I said “but one that responds to
steroids
; I can do so much more when I’m on them”, to which he replied, “give
steroids
to any man in the street and he’ll feel better.” He says he can’t prescribe any more
steroids
.
AtopicGuy
in
PMRGCAuk
1 year ago
just to say thanks
thanks everyone who replied to me , about my Painful Knee, it’s lovely to know there’s help when u need it, still struggling, all over flare now , just come home from hospital after having all over steroid injection, hope it works, should be starting new drug soon, thank u all once again Kate x
thanks everyone who replied to me , about my Painful Knee, it’s lovely to know there’s help when u need it, still struggling, all over flare now , just come home from hospital after having all over steroid injection, hope it works, should be starting new drug soon, thank u all once again Kate x
Kate2628
in
NRAS
3 months ago
Leg Pain pt 3
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Alloagirl
in
Pain Concern
3 months ago
steroid reduction
to be safe, I really didn’t want to as I saw how they affected my mum in so many ways, I’m am trying to be as healthy as I can, but now realise that weaning off of the
steroids
is the biggest part, I already have glaucoma and osteopenia, this site has really made me understand the whole process, thank
to be safe, I really didn’t want to as I saw how they affected my mum in so many ways, I’m am trying to be as healthy as I can, but now realise that weaning off of the
steroids
is the biggest part, I already have glaucoma and osteopenia, this site has really made me understand the whole process, thank
Mumdadlove
in
PMRGCAuk
1 year ago
Down, but not out!
With the help of various
steroids
and hydrocortisone I'm on the way up....and just so happy to be out there again. I run through woods and over heathlands and it makes me into a much nicer person! I think I'm allergic to Winter tho I hate being cold as soon as I heat up I start itching.
With the help of various
steroids
and hydrocortisone I'm on the way up....and just so happy to be out there again. I run through woods and over heathlands and it makes me into a much nicer person! I think I'm allergic to Winter tho I hate being cold as soon as I heat up I start itching.
Mormor1
Graduate10
in
Bridge to 10K
1 year ago
chronic knee pain, can anyone help!
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
lve had knee pain before, lve had my knee drained , steroid injection s , but the last 2weeks have been chronic pain never had it this bad before, l dread going to bed trying to walk when l get out of bed is almost impossible, l need a chair with wheels on to get to bathroom, it’s okay when I’m sitting
Kate2628
in
NRAS
3 months ago
Is it Fibromyalgia?
His diagnosis was that my PMR was under control and to continue to reduce my
steroids
, my GP had sent him my last blood test results. He said I had Myofascial Trigger Points and told me I had Fibromyalgia.
His diagnosis was that my PMR was under control and to continue to reduce my
steroids
, my GP had sent him my last blood test results. He said I had Myofascial Trigger Points and told me I had Fibromyalgia.
Jomaur
in
Fibromyalgia Action UK
1 year ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
3 months ago
Adventures in decreasing prednisone
I feel desperate to get off the
steroids
as I have many side effects. Osteoporosis with fractures, newly found diabetes, high cholesterol (new), , cataract (new) Blood vessels that break very easily, and new kidney issues. All in all this disease and treatment has done a number on me.
I feel desperate to get off the
steroids
as I have many side effects. Osteoporosis with fractures, newly found diabetes, high cholesterol (new), , cataract (new) Blood vessels that break very easily, and new kidney issues. All in all this disease and treatment has done a number on me.
Linny3
in
PMRGCAuk
1 year ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
3 months ago
Heart issues and pred
I found this https://evidence.nihr.ac.uk/alert/low-doses-
steroids
-increase-cardiovascular-risks-in-inflammatory-diseases/ I am not suggesting for a moment that pred is in any way a culprit. We all know how vital it is to us. Just something to be aware of - I did not know until I started looking.
I found this https://evidence.nihr.ac.uk/alert/low-doses-
steroids
-increase-cardiovascular-risks-in-inflammatory-diseases/ I am not suggesting for a moment that pred is in any way a culprit. We all know how vital it is to us. Just something to be aware of - I did not know until I started looking.
SudsSuds
in
PMRGCAuk
21 days ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
3 months ago
Dexa scan
I was told by my GP that I “might as well” take it when started on
Steroids
. I hated the ritual of having to get up earlier on the day I had to take it and then when I read various things on here I really felt I didn’t need it. I’ve had to wait 4 months since I asked to be referred.
I was told by my GP that I “might as well” take it when started on
Steroids
. I hated the ritual of having to get up earlier on the day I had to take it and then when I read various things on here I really felt I didn’t need it. I’ve had to wait 4 months since I asked to be referred.
MrsPractical
in
PMRGCAuk
1 year ago
steroid injections
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
Linny3
in
PMRGCAuk
4 months ago
Heavy breathing .
Is it disease or
steroids
? Am on 20 mgs medrol. Thx.
Is it disease or
steroids
? Am on 20 mgs medrol. Thx.
Merryfield
in
PMRGCAuk
1 year ago
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