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misdiagnosed
I could have done without the effects of these
steroids
on top of everything else. My question is will I suffer the same effects as you guys as I reduce.
I could have done without the effects of these
steroids
on top of everything else. My question is will I suffer the same effects as you guys as I reduce.
Vito5566
in
PMRGCAuk
1 year ago
Feel like giving up.
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
3LittleBirds2
in
NRAS
3 months ago
help with steroids
I’ve been on
steroids
for about a year and a half. I’ve also had an infusion last September due to have another one in April. Rheumatology nurse said I need to get down off the
steroids
. I was on 15 than 10. I’m now on five but I feel so ill. Nothing is working. Can’t do anything I’m out of breath.
I’ve been on
steroids
for about a year and a half. I’ve also had an infusion last September due to have another one in April. Rheumatology nurse said I need to get down off the
steroids
. I was on 15 than 10. I’m now on five but I feel so ill. Nothing is working. Can’t do anything I’m out of breath.
Laceygreen
in
NRAS
1 year ago
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Vulva skin lesions
I have been having what a general practitioner called "vulvar dermatitis" since 2016. I'm not convinced of the treatment or the diagnosis. Let me explain. I have a history of autoimmune disease (Hashimoto, Rheumatoid Arthritis). I didn't find out until recently that Bechet's disease also runs in my
I have been having what a general practitioner called "vulvar dermatitis" since 2016. I'm not convinced of the treatment or the diagnosis. Let me explain. I have a history of autoimmune disease (Hashimoto, Rheumatoid Arthritis). I didn't find out until recently that Bechet's disease also runs in my
Lumenia
in
Pelvic Pain Support Network
6 months ago
Glaucoma eye drops and migraines
The optician said that the
steroids
could be contributing to the increase in pressure. I am highly sensitive to most medications but manage to take a very low preventative dose of propranolol as a migraine reducer which helps a little.
The optician said that the
steroids
could be contributing to the increase in pressure. I am highly sensitive to most medications but manage to take a very low preventative dose of propranolol as a migraine reducer which helps a little.
Hidden
in
Glaucoma UK
1 year ago
Bursitis of toes & Steroid Injection
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Bursitis of the toes & Steroid Injection.
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
LUPUS UK
3 months ago
Two Questions
I have always been slim and have never put on any extra weight since being on
steroids
. I love my chocoate too but try to eat this in moderation! I have read a lot on this website about not eating sugar when you have PMR.
I have always been slim and have never put on any extra weight since being on
steroids
. I love my chocoate too but try to eat this in moderation! I have read a lot on this website about not eating sugar when you have PMR.
caftan
in
PMRGCAuk
1 year ago
Ibrutinib failure
Hi folks,I’m lying here in hospital UK where I’ve been for the last 8 days,just looking for a few pointers.A couple of months ago my glands were out of control,the size of half a pear,as opposed to the little hazelnuts I’m used to seeing occasionally.They completely filled my neck,jawline..small ones
Hi folks,I’m lying here in hospital UK where I’ve been for the last 8 days,just looking for a few pointers.A couple of months ago my glands were out of control,the size of half a pear,as opposed to the little hazelnuts I’m used to seeing occasionally.They completely filled my neck,jawline..small ones
Nickos66
in
CLL Support
10 months ago
Battle with GP’s
Would feel very alone and scared if it was not for this charity/forum so thank you all for your help and support, Feeling bit angry at the moment and not sure I can entirely blame the
steroids
!
Would feel very alone and scared if it was not for this charity/forum so thank you all for your help and support, Feeling bit angry at the moment and not sure I can entirely blame the
steroids
!
Body_bonkers
in
PMRGCAuk
1 year ago
Life with bronchiectasis
Steroids
fixed that but it does seem to like coming back. At the moment I am feeling good on a low steroid dose waiting to see what happens. So what have a learned? The NHS, particularly the hospitals, are marvellous but not infallible so read up about your problems and ask questions.
Steroids
fixed that but it does seem to like coming back. At the moment I am feeling good on a low steroid dose waiting to see what happens. So what have a learned? The NHS, particularly the hospitals, are marvellous but not infallible so read up about your problems and ask questions.
Elfy88
in
Lung Conditions Community Forum
1 year ago
Update #5: Back to front
The chaotic mental state I find myself in (is it the
steroids
? Is it increased uptake? Is it the dropping of NDT? Should I drop my NDT more? Should I add some T3? Should I decrease the
steroids
? Will I get stuck on
steroids
now forever? Should I follow STTM? Should I stop
steroids
before 1pm?)
The chaotic mental state I find myself in (is it the
steroids
? Is it increased uptake? Is it the dropping of NDT? Should I drop my NDT more? Should I add some T3? Should I decrease the
steroids
? Will I get stuck on
steroids
now forever? Should I follow STTM? Should I stop
steroids
before 1pm?)
Hidden
in
Thyroid UK
1 year ago
Test Results
I’m currently on a weaning dose of
steroids
and had a COVID jab the day before my blood draw. Would those factors affect my results? I’m really not sure what to think and would be grateful for any input. Apart from that I feel very well if not a bit tired at times. best Mole land
I’m currently on a weaning dose of
steroids
and had a COVID jab the day before my blood draw. Would those factors affect my results? I’m really not sure what to think and would be grateful for any input. Apart from that I feel very well if not a bit tired at times. best Mole land
moleland
in
Thyroid UK
1 year ago
spring Covid vaccine
I see in the news that the spring covid vaccine is available for those on
steroids
. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get the vaccine or do I request it? Or, should I have it all?
I see in the news that the spring covid vaccine is available for those on
steroids
. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get the vaccine or do I request it? Or, should I have it all?
Lclmlbls
in
PMRGCAuk
1 year ago
Chondocalcitis incurable?
At least that's how I think it's spelt. It's a specialised form of RA and I have it in my left knee (along with normal RA in shoulders, elbows, wrists and fingers.It's also called Pseudogout but as the crystals in Chondocalcitis are calcium they can't be dispersed as the uric acid crystals in ordinary
At least that's how I think it's spelt. It's a specialised form of RA and I have it in my left knee (along with normal RA in shoulders, elbows, wrists and fingers.It's also called Pseudogout but as the crystals in Chondocalcitis are calcium they can't be dispersed as the uric acid crystals in ordinary
Jeff1943
in
NRAS
4 months ago
Getting Off of Painkillers
I started seeing a pain management doctor about 4 years ago for severe lower back pain. One of the first things she did was put me on 5 mg Hydrocodone four times a day and gave me a steroid injection. Over the years, I have had several radio frequency ablations and a handful of steroid injections. The
I started seeing a pain management doctor about 4 years ago for severe lower back pain. One of the first things she did was put me on 5 mg Hydrocodone four times a day and gave me a steroid injection. Over the years, I have had several radio frequency ablations and a handful of steroid injections. The
Hidden
in
Pain Concern
4 months ago
O & V TREATMENT UPDATE PRE 4TH INFUSUON CHECK UP.
Symptoms up till 4/4/23 After infusion I have a slightly unpleasent reaction to the
steroids
. Some facial flushing, slight nausea with no vomit, slight feverish feeling without temp, slight jittery, very slight dizzy all from
Steroids
....I HATE
STEROIDS
!
Symptoms up till 4/4/23 After infusion I have a slightly unpleasent reaction to the
steroids
. Some facial flushing, slight nausea with no vomit, slight feverish feeling without temp, slight jittery, very slight dizzy all from
Steroids
....I HATE
STEROIDS
!
Pacificview
in
CLL Support
1 year ago
steroid injection and echocardiogram booked for the same day
hi everyone have finally got my steroid injection after 9 weeks. Then this morning hospital called me and said they have an echocardiogram app. on the same day. The echocardiogram is at 8.00am and then my steroid injection is at 1.30pm. Will it be ok to have them both done on the same day. Thanks
hi everyone have finally got my steroid injection after 9 weeks. Then this morning hospital called me and said they have an echocardiogram app. on the same day. The echocardiogram is at 8.00am and then my steroid injection is at 1.30pm. Will it be ok to have them both done on the same day. Thanks
Gillybean123
in
Atrial Fibrillation Support
4 months ago
immuno stopped due to inflammation
12 a day ( prednisone) and antibiotics …I’m absolutely terrified of taking the
steroids
they get such bad press and I’ve heard horror stories … can anyone allay my fears about them please ?
12 a day ( prednisone) and antibiotics …I’m absolutely terrified of taking the
steroids
they get such bad press and I’ve heard horror stories … can anyone allay my fears about them please ?
mishamilo53
in
The Roy Castle Lung Cancer Foundation
1 year ago
Is a massage ok with PMR etc?
I have PMR (on 5mg currently) and also have pain on walking caused by spinal stenosis/ degeneration of lumbar spine and left hip etc. I also had a steroid injection a while back for bursitis in my right hip. My daughter would like to give me a massage as a Mothers’s Day gift and I’d love to have one
I have PMR (on 5mg currently) and also have pain on walking caused by spinal stenosis/ degeneration of lumbar spine and left hip etc. I also had a steroid injection a while back for bursitis in my right hip. My daughter would like to give me a massage as a Mothers’s Day gift and I’d love to have one
BadDancer
in
PMRGCAuk
4 months ago
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