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Survey about the use of steroids and their side effects. A call from the Leeds Research team for our input.
Glucocorticoids (“
steroids
”), such as prednisolone or prednisone, are prescribed by doctors for a variety of medical conditions, but
steroids
can have many side-effects.
Glucocorticoids (“
steroids
”), such as prednisolone or prednisone, are prescribed by doctors for a variety of medical conditions, but
steroids
can have many side-effects.
PMRpro
Ambassador
in
PMRGCAuk
2 years ago
Energy levels
I am tapering my
steroids
at the Consultant’s instruction and I am now at 3.5 mg. I am also on methotrexate for suspected RA. I am struggling badly with lack of energy. Everything is an effort. Is this normal ? What could I do to alleviate this?
I am tapering my
steroids
at the Consultant’s instruction and I am now at 3.5 mg. I am also on methotrexate for suspected RA. I am struggling badly with lack of energy. Everything is an effort. Is this normal ? What could I do to alleviate this?
Offsideinzaghi
in
PMRGCAuk
2 years ago
pneumonia recovery
Now i’m back in bed with more antibiotics and
steroids
. I feel ghastly. Will i ever get well
Now i’m back in bed with more antibiotics and
steroids
. I feel ghastly. Will i ever get well
Toby14
in
Lung Conditions Community Forum
2 years ago
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Severe Rash associated with RA?
Has anyone ever had a severe rash which has been attributed to RA? I’m on day 7 of what the doctor initially thought was a drug allergy rash (due to an antibiotic antifungal mouth treatment) but it has continued to get worse. It’s flaming red, hot and itchy and is starting to peel. Currently covers 70%
Has anyone ever had a severe rash which has been attributed to RA? I’m on day 7 of what the doctor initially thought was a drug allergy rash (due to an antibiotic antifungal mouth treatment) but it has continued to get worse. It’s flaming red, hot and itchy and is starting to peel. Currently covers 70%
sazkabaz
in
NRAS
1 year ago
Bronchial Pneumonia, while tapering on prednisone and Actemra.
has anyone else had bronchial pneumonia while on
steroids
and Actemra? I really worry about these secondary infections while on Actemra. Once again I’m just frustrated with this whole GCA trip and wondering if it will ever end.
has anyone else had bronchial pneumonia while on
steroids
and Actemra? I really worry about these secondary infections while on Actemra. Once again I’m just frustrated with this whole GCA trip and wondering if it will ever end.
pmac22
in
PMRGCAuk
2 years ago
Not sure what to expect?
Hi all I’ve managed to get an appointment with the Rheumy nurse today f2f. I started on Sulfasalazine just over 2 years ago, I was slow to improve and had steroid injections to help along the way. I changed trusts after one year due to lack of appointments and just general mayhem prompted by my GP.
Hi all I’ve managed to get an appointment with the Rheumy nurse today f2f. I started on Sulfasalazine just over 2 years ago, I was slow to improve and had steroid injections to help along the way. I changed trusts after one year due to lack of appointments and just general mayhem prompted by my GP.
Akaka
in
NRAS
1 year ago
symptoms of pmr returning have managed on 2mg for 2 months have asked for gp phone consultation tomorrow just wanted to talk to you folks fi
The last gp i spoke with many months ago was very understanding and agreed that i was managing my dose of
steroids
well and i just ask for repeats but feel I need some guidance now that the symptoms are returning .
The last gp i spoke with many months ago was very understanding and agreed that i was managing my dose of
steroids
well and i just ask for repeats but feel I need some guidance now that the symptoms are returning .
Mofred
in
PMRGCAuk
2 years ago
constant pain following hypoxia BI after cardiac arrest
hello all , looking for advice - my husband has a brain injury following cardiac arrest last spring. He has moderate impairment. He is home and slowly improving. But - He is suffering from constant pain in shoulders, arms and his armpits. We have tried everything- pain killers don’t touch it, heat/
hello all , looking for advice - my husband has a brain injury following cardiac arrest last spring. He has moderate impairment. He is home and slowly improving. But - He is suffering from constant pain in shoulders, arms and his armpits. We have tried everything- pain killers don’t touch it, heat/
Weloveajigsaw
in
Headway
1 year ago
Finally managed it
After a bad chest infection (2 weeks of antibiotics and
steroids
) I have been feeling very weak, shaky and short of breath, it doesn't seem a lot taking my rubbish out but the thought of going down a flight of stairs and along the walkway to the chute filled me with dread.
After a bad chest infection (2 weeks of antibiotics and
steroids
) I have been feeling very weak, shaky and short of breath, it doesn't seem a lot taking my rubbish out but the thought of going down a flight of stairs and along the walkway to the chute filled me with dread.
Doggie123-UK
in
Lung Conditions Community Forum
1 year ago
Finally did it
After a bad chest infection (2 weeks of antibiotics and
steroids
) I have been feeling very weak, shaky and short of breath, it doesn't seem a lot taking my rubbish out but the thought of going down a flight of stairs and along the walkway to the chute filled me with dread.
After a bad chest infection (2 weeks of antibiotics and
steroids
) I have been feeling very weak, shaky and short of breath, it doesn't seem a lot taking my rubbish out but the thought of going down a flight of stairs and along the walkway to the chute filled me with dread.
Doggie123-UK
in
Anxiety and Depression Support
1 year ago
reaction to reducing prednisolone
Is this a reaction to the boost that
steroids
give us or is it a sign that my body won’t accept the lower dose and that the polymyalgia is returning? Any opinions welcome, I would love to reduce more but am concerned that it will trigger a flare up. Thanks!
Is this a reaction to the boost that
steroids
give us or is it a sign that my body won’t accept the lower dose and that the polymyalgia is returning? Any opinions welcome, I would love to reduce more but am concerned that it will trigger a flare up. Thanks!
Jackie_boy
in
PMRGCAuk
2 years ago
SURVEY
utm_source=notification&utm_medium=email&utm_campaign=email_individual_new_blog#post_title Leeds Hospital are doing a survey on side effects of
steroids
. Most of us have a story to share! What I find interesting is that they give the opportunity to carers/family have their own say.
utm_source=notification&utm_medium=email&utm_campaign=email_individual_new_blog#post_title Leeds Hospital are doing a survey on side effects of
steroids
. Most of us have a story to share! What I find interesting is that they give the opportunity to carers/family have their own say.
jinasc
in
PMRGCAuk
2 years ago
Prednisone withdrawl
I will say to anyone who has a prolonged use of a higher dose of
steroids
to ask for a tapering regime , i blame myself really i should have been more assertive with this new doctor but we live and learn Im only putting this out here for information purposes, i hope it will help others avoid what
I will say to anyone who has a prolonged use of a higher dose of
steroids
to ask for a tapering regime , i blame myself really i should have been more assertive with this new doctor but we live and learn Im only putting this out here for information purposes, i hope it will help others avoid what
soulboy118
in
Lung Conditions Community Forum
2 years ago
Leflunomide next drug doctor wants me to try
New consultant now started the relentless you need to get your
steroids
down by 2.5 per 2 weeks. I told her that's not happening anytime soon as I have just had to up them to cope with the flare from getting to 10 from 15 in a week to have the scan. On 20mg this week as in unbearable pain.
New consultant now started the relentless you need to get your
steroids
down by 2.5 per 2 weeks. I told her that's not happening anytime soon as I have just had to up them to cope with the flare from getting to 10 from 15 in a week to have the scan. On 20mg this week as in unbearable pain.
Pawscat11
in
PMRGCAuk
2 years ago
OsteoArthritis v RA
Having had RA diagnosed some 4 years now the majority of my pain is focused on my left knee which I injured in 2017. Recent flaring and RA activity has been largely rooted in that knee and have had three steroid injections since Christmas. The most latest one was in response to searing pain in the knee
Having had RA diagnosed some 4 years now the majority of my pain is focused on my left knee which I injured in 2017. Recent flaring and RA activity has been largely rooted in that knee and have had three steroid injections since Christmas. The most latest one was in response to searing pain in the knee
TheBoys
in
NRAS
1 year ago
Aspergillosis and Hyperinflated lungs.
I spoke to the practice nurse a couple of days ago and told her I need
steroids
. I had a bit of a fight to get them but eventually after reading my last admission into hospital she agreed. The thing is I just wasn’t getting better and felt weak doing anything.
I spoke to the practice nurse a couple of days ago and told her I need
steroids
. I had a bit of a fight to get them but eventually after reading my last admission into hospital she agreed. The thing is I just wasn’t getting better and felt weak doing anything.
Mavary
in
Lung Conditions Community Forum
2 years ago
Prolia use
I also had to take
steroids
at one point which wouldn’t have helped. Pam x There are many people who have been ok with Prolia.
I also had to take
steroids
at one point which wouldn’t have helped. Pam x There are many people who have been ok with Prolia.
jozef123
in
Bone Health and Osteoporosis UK
2 years ago
Survey
Leeds Hospital are doing a survey on side effects of
steroids
. Most of us have a story to share! What I find interesting is that they give the opportunity to carers/family have their own say. If you could complete the survey and share the link for carers/family, it would be appreciated.
Leeds Hospital are doing a survey on side effects of
steroids
. Most of us have a story to share! What I find interesting is that they give the opportunity to carers/family have their own say. If you could complete the survey and share the link for carers/family, it would be appreciated.
zoe69
Vasculitis UK
in
Vasculitis UK
2 years ago
Insatiable appetite because of pred
Never realised just how powerful these
steroids
were, how do people cope with this, currently on 55mg Pred daily (GCA) I’m just eating anything and everything, never satisfied, bloody frightened to get on scales. Before treatment started a month ago, I’d lost a stone down to 13.5 st….
Never realised just how powerful these
steroids
were, how do people cope with this, currently on 55mg Pred daily (GCA) I’m just eating anything and everything, never satisfied, bloody frightened to get on scales. Before treatment started a month ago, I’d lost a stone down to 13.5 st….
WHL67
in
PMRGCAuk
2 years ago
Recurring Pneumonia from Breast Cancer radiation treatment
In fall of 2022 I was diagnosed with recurring pneumonia and treated with antibiotics (bactrim) and
steroids
-prednisone. At the same time I was taken off of tomoxifen.
In fall of 2022 I was diagnosed with recurring pneumonia and treated with antibiotics (bactrim) and
steroids
-prednisone. At the same time I was taken off of tomoxifen.
TiaDave
in
Lung Conditions Community Forum
1 year ago
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