Update re RA and associated Colitis

[Jackie1947]

Yep it's colitis following colonoscopy biopsy results. They are of the impression it is microscopic colitis (associated to auto immune diseases) but not 100% sure. So the handle is unspecified colitis which is a common saying. Treatment is steroids. It's been a long journey after being told for years it was IBS. TBH honest I'm glad of a true diagnosis. Unfortunately the RA also attacked my Pancreas. Funny thing is and I need to laugh is the RA is in remission thanks to Benipali. Silver clouds and all that

[Madmusiclover]

Sorry to read that but glad you stuck to your guns. The damage it does that no one can see eh?

[Jackie1947 in reply to Madmusiclover]

Oh I did. No one puts baby in the corner 😀

[Madmusiclover in reply to Jackie1947]

Attagirl!

[Blackberrywine]

That's interesting. I got a severe bout of colitis a couple of years back. Can't remember what was said about it at the time (infectious?) All I know is that it was horrendous. I still have gut issues if I'm not careful with food.

Hope you are feeling better

[Jackie1947 in reply to Blackberrywine]

I hope I do soon. Thank you

[sivas]

Hi, my mother has RA and I have Psoriasis, both autoimmune diseases. Both of us are on various drugs. But there has been a significant improvement since we started following Steven Gundry's The Plant Paradox dietary guidelines. We don't follow it strictly as it is a very restrictive diet, just enough to make a difference. I am more mindful of what I eat and the quantities. Hope this helps.

[Barrister]

I have lymphocytic colitis (part of the family of Microscopic Colitis) which was diagnosed whilst we were living in Saudi Arabia. I think, had we been in the U.K. it would have taken years to diagnose (if at all!). However, I find mine flares if I take anti inflammatory medication - a never ending cycle with PsA as well. It does flare at other times but these are, thankfully, few and far between.

Clemmie

[Jackie1947 in reply to Barrister]

I'm having an awful time with the steroid Budesonide. Took it for 3 days and yesterday I phoned 111. .I felt lightheaded,joint and muscle pain and felt so low. The advice given was to only have 2 yesterday and one today. I'm ringing the consultants secretary tomorrow. It's taken years of injections for Rheumatoid arthritis to control the joint pains and it's back within a few days.. I don't do steroids well.

[Barrister]

That’s such a shame, Budesonide was literally a life saver for me, worked so well. But I have Addison’s disease too so steroids really are a life saver for me as without them I would be dead. I hope that you can find another way to control it. Have you looked at a website called “The Potty People”? It’s an American site but for all types of colitis and has lots of information on controlling symptoms etc, many seem to be able to reduce flares by other ways such as with food. Well worth a look.

Clemmie

[Jackie1947 in reply to Barrister]

I will thanks. I can eat a certain food with no trouble then wham I can't. If I cut things out I'd be living on fresh air.

[AnnieJ123]

So glad you have , at last, the results of your biopsy . Sadly it takes far too long to get results. I also have bouts ofthy bowel problems from SIBO to episodes of months of d or c. Like you, I explore my diet and search for what works. I eat well, For me these issues are as bad as the RA. I wish you all the best in finding what works for you. I do find an occassional tiny pinch of bicarb in water, a rennies before a meal , or gaviscon double action settles things a bit. Good luck.

[Jackie1947 in reply to AnnieJ123]

Thank you. Just now new Steroids have sent me spiraling in joint and muscle pain,lightheaded and low mood.

[AnnieJ123 in reply to Jackie1947]

I trust they can give you an alternative. Some steroids cause mood changes and bad side effects which are worse than the condition they are trying to improve. You have given it time to work so I think an alternative may be needed. You know your body best. I find when given proton pump inhibitors they make me worse. Good luck.

[Jackie1947 in reply to AnnieJ123]

Waiting to hear from the consultant