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brand new diagnosis
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve been researching is how do know what stage I’m in? The doc didn’t mention that last night when he told me the news. Another question, I’ve read
ematthews81
in
C3 Glomerulopathy
8 months ago
Next instalment. I thought I`d better do this now before I start working.
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
LissacFrance
in
Lung Conditions Community Forum
5 months ago
How is your skin?
I recall folks posting about skin issues and AMN a few years back, or did they? Never mind try this for size. Been going on for months and months now, When I'd get my head down on the pillow at night, within minutes it was like my head was crawling, the itching would soon start, heating up. Couldn't
I recall folks posting about skin issues and AMN a few years back, or did they? Never mind try this for size. Been going on for months and months now, When I'd get my head down on the pillow at night, within minutes it was like my head was crawling, the itching would soon start, heating up. Couldn't
monkeybus
in
AMN EASIER
4 months ago
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Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
5 months ago
Leukoplakia, is it autoimmune?
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
I was diagnosed with PMR 3 weeks ago. During the acute period pre-diagnosis I also developed a small white patch on lower lip which consultant has now diagnosed as leukoplakia, brought on by sun exposure. Reading up about this suggests that it may be another autoimmune condition, in which case might
Wheelygood99
in
PMRGCAuk
8 months ago
Streptococcal Bacterial Meningitis
Hi, everyone! I was admitted to the hospital on March 11 and diagnosed with Streptococcal Bacterial Meningitis and hospitalized for 17 days. Just released last Thursday. This was all brought on by an ear infection that I guess turned into meningitis. I had all the tests and scans and was told I was lucky
Hi, everyone! I was admitted to the hospital on March 11 and diagnosed with Streptococcal Bacterial Meningitis and hospitalized for 17 days. Just released last Thursday. This was all brought on by an ear infection that I guess turned into meningitis. I had all the tests and scans and was told I was lucky
Fjreed23
in
Meningitis Now
5 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
5 months ago
Finger nails and raynauds
Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed ..I have tried lots of treatments but nothing seems to work and am now worried that I may lose some nails altogether!
Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed ..I have tried lots of treatments but nothing seems to work and am now worried that I may lose some nails altogether!
Tmontana
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
5 months ago
benign paroxysmal positional vertigo
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
Pognose123
in
NRAS
5 months ago
Ibs/ acid reflux what to take with steroids
hi I suffer from episodes of IBS , in my worst times it wakes me up in the night , dry acid feeling in mouth n stomach cramps I’m taking lanzoprolene 15mg daily and currently in 3mg of steroids , taken steroids now for 3 1/2 years is there anything you any other fellow sufferers of IBS would recommend
hi I suffer from episodes of IBS , in my worst times it wakes me up in the night , dry acid feeling in mouth n stomach cramps I’m taking lanzoprolene 15mg daily and currently in 3mg of steroids , taken steroids now for 3 1/2 years is there anything you any other fellow sufferers of IBS would recommend
maxistar
in
PMRGCAuk
8 months ago
steroids after a fall…
hi, I had a fall a few days ago, nothing broken but as the days go on I’m extremely stiff and sore on my upper body. I’m especially bad at night when laying down and the pain is at it’s worse. I’m taking painkillers (co-codamol) that work for a while till they wear off….Would anyone know if increasing
hi, I had a fall a few days ago, nothing broken but as the days go on I’m extremely stiff and sore on my upper body. I’m especially bad at night when laying down and the pain is at it’s worse. I’m taking painkillers (co-codamol) that work for a while till they wear off….Would anyone know if increasing
PamJCam
in
PMRGCAuk
8 months ago
Can steroids treat FND?
Hello, I’m Louise and I was diagnosed with FND in May 2021 by a neuropsychiatrist after developing tonic, clonic and myoclonic jerks in my right arm and leg which happens every 30 seconds or so, as well as limb posturing and tremors intermittently but several times an hour. I have joint and muscle
Hello, I’m Louise and I was diagnosed with FND in May 2021 by a neuropsychiatrist after developing tonic, clonic and myoclonic jerks in my right arm and leg which happens every 30 seconds or so, as well as limb posturing and tremors intermittently but several times an hour. I have joint and muscle
Louiselovesyellow
in
Functional Neurological Disorder - FND Hope
8 months ago
Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
8 months ago
Leukocytes, protein and blood.
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Vqueen
in
Vasculitis UK
3 months ago
Meningitis and Glandular Fever
Has anyone had any experience with having both of these at the same time? I had viral meningitis in Oct 23 and have had horrible symptoms since; mostly headaches, body aches and extreme fatigue. I went back to work Feb 2024 and have been really struggling with long term effects of it, plus getting
Has anyone had any experience with having both of these at the same time? I had viral meningitis in Oct 23 and have had horrible symptoms since; mostly headaches, body aches and extreme fatigue. I went back to work Feb 2024 and have been really struggling with long term effects of it, plus getting
SLC2023
in
Meningitis Now
5 months ago
Steroid-based inhaler warning
**Moderator note to anyone reading: if you have similar concerns please speak to a medical professional - don't stop your steroid inhaler or any other steroids if you're worried about adrenal insufficiency. It's dangerous for both adrenals and asthma.**
When I started on a steroid-based inhaler
**Moderator note to anyone reading: if you have similar concerns please speak to a medical professional - don't stop your steroid inhaler or any other steroids if you're worried about adrenal insufficiency. It's dangerous for both adrenals and asthma.**
When I started on a steroid-based inhaler
JumpJiving
in
Asthma Community Forum
8 months ago
How can I help my intubated father in ICU?
I am desperately frightened as my father is fighting for his life, he has septic shock due to a liver abscess which has resulted in complications to his kidneys, brain and liver. Yesterday I saw him and he was so sleepy he could barely open his eyes and speak, although he was able to tell me he was in
I am desperately frightened as my father is fighting for his life, he has septic shock due to a liver abscess which has resulted in complications to his kidneys, brain and liver. Yesterday I saw him and he was so sleepy he could barely open his eyes and speak, although he was able to tell me he was in
Pluto8
in
ICUsteps
5 months ago
urgent - re steroid course of prednisolone tablets and local steroid injection at the same time?
Hi has anyone had a local steroid injection at the same time as being on a course of prednisolone tablets ? I wondered if this was a common occurrence ? and why bother with the local steroid injection whilst on a course of prednisolone steroids anyway ? there must be some reasons for and against
Hi has anyone had a local steroid injection at the same time as being on a course of prednisolone tablets ? I wondered if this was a common occurrence ? and why bother with the local steroid injection whilst on a course of prednisolone steroids anyway ? there must be some reasons for and against
lindyloo2018
in
NRAS
1 year ago
CARPEL TUNNEL
Hi, wonder if anyone has any tips on severe carpel tunnel pain during the night early morning. I wear splint at night but when 3 fingers on right hand go numb ( can’t bend them) pain starts right to elbow. I have put frozen peas from freezer on wrist /hand which initially makes pain worse but eventually
Hi, wonder if anyone has any tips on severe carpel tunnel pain during the night early morning. I wear splint at night but when 3 fingers on right hand go numb ( can’t bend them) pain starts right to elbow. I have put frozen peas from freezer on wrist /hand which initially makes pain worse but eventually
Haired
in
LUPUS UK
8 months ago
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