C3 Glomerulopathy | HealthUnlocked

hi I am currently on ramipril to control my C3g but my docs are considering changing to diapagliflozin. is anyone on that? I'm specifically interested in...

Hello! I’m brand new to all of this! Just diagnosed last night but doc still needs more labs to know more etc. a question that has come up for me while I’ve...

hi my partner has been told he has C3G. He’s now stage 4 Last GfR 18. What I would like to know is how this affects people My partner has not had many...

Hi, my son is 7 and in the middle of being diagnosed with c3 just waiting on final biopsy results but hospital is starting him on MMF next week. He has really...

Hi My partner has kidney disease and has been told it’s rare. C3G. He’s stage 4 Does anyone know anything about C3 thanks

I am curious if there are C3GN patients that don’t have a low C3. Since being dx’d with Sjogrens, back to maybe SLE (after a second opinion read on my biopsy...

I was diagnosed with Iga nephropathy 25 years ago through having a biopsy, first sign was my eyes woke up to a cloud of smoke iritis which they couldn’t stop...

I have got APL and due to have a biopsy to confirm C3g . I also have drusen and wondered if anyone else had the same

my husband was diagnosed with MPGN in 1999 at age 22. He has been treated with prednisone, BP meds, ace inhibitors since diagnosis they now think it is C3G. I...

hi my wife , 66 years old has C3G a was diagnosed 8 months ago. She was first put on predizone which she of course had horrible side effect from. Now she is...

Hello, my daughter (19 years old)has DDD and will need to start winter Prednisone and Cellcept. Currently she only takes Ramipril. Will she be able to...

I am trying to learn more about health issues that are priority for the patients and their expectations for possible treatments. I am conducting series of...

I'm 61 yrs Female, i was diagnosed with high blood pressure from about 15 years, and i was taking medicines and the pressure since that time became stable, in...

my wife was just diagnosed with C3G. The treatment is presently 60 mg of prednisone and an ace inhibitor. She has lupus since age 23 and lymphoma since 2013...

Hello, My name is Junior. My 18 year old brother was diagnosed a year ago with C3 Glomerulonephritis. Over the past year we have been moderating his BP with...

Hello! I work for InVibe Labs and we are conducting a research study with patients and caregivers who have experience with C3G, IgAN, or aHUS. The research...

What blood pressure medication do you take?? My son has 6 different ones..Ramipril-Amlodipine-Bisoprolol-Doxazosim-Moxonidine & Hydralazine..nothing seems to...

Has anyone been transplanted and then had reoccurring C3G/DDD?? If so how soon after transplant?? Thank you x

I am a C3G patient. FYI/For what Its worth: I had myself tested for antibodies to COVID-19 on Friday, April 23 six weeks after completing the 2 shot Moderna...

I'm 77 and 1 1/2 yrs into a biopsy/immunofluorescence confirmed diagnosis of C3G (my kidneys were spilling small but increasing amounts of protein for several...

My son, 17, was just diagnosed with collapsing Glomerulopathy after having had a kidney transplant in June of 2020. My doctor told me there is no known cases...

Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily...

We are looking for someone with C3G who would be willing to share their experience with disease progression, diagnosis etc. in a 1-1 interview. If you are...

Namaste I am post renal transplant (8 years) with C3G (2.5 years), protin uria 2.5 mg per day. Creatinine increased to 2.2 mg, doctors asked to stop...

Hi. I am 66 years of age. Recently diagnosed with chronic kidney disease. My eGfr is 43. I am female, and already have several other health issues. What is...

Hello i am 38 yo with no medical background( with G6PD deficiency) Since i was diagnosed with C3 GN (first due to infection on GI ,later the diagnosis changed...

Hello Everyone, NKF has assembled the latest interdisciplinary information on COVID-19 related to kidney patients. Please paste this link into your browser to...

The National Kidney Foundation is continuing to develop information on COVID-19 as it relates to kidney patients. Please paste these links into your browser...

Kevin Longino (NKF’s CEO) addresses some of the questions we’re receiving from patients and care partners regarding continuing in-center dialysis and...

My daughter is 8 and has C3 glomerulonephropathy she’s been on prednisone for two years and is set to come off them this April . She leaks 3+ blood and 3+...