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Phantosmia?
Has anyone experienced an olfactory hallucination? Can MS cause this? I’ve never heard of this being associated with MS, but I do wonder, since MS has some bizarre symptoms.
Has anyone experienced an olfactory hallucination? Can MS cause this? I’ve never heard of this being associated with MS, but I do wonder, since MS has some bizarre symptoms.
greaterexp
in
My MSAA Community
7 years ago
I do not have MS
I have IBSC..... maybe I shouldn't be on this blog.....?? interested in talking about Linzess and Amitiza, etc....
I have IBSC..... maybe I shouldn't be on this blog.....?? interested in talking about Linzess and Amitiza, etc....
Mallory3757
in
My MSAA Community
7 years ago
Gabapentin
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Hi all, I'm new to this forum but have had restless legs for over 30 years. I've never seen my doctor about it because I try to keep off drugs. For the past 5 years or so I have been using spatone iron and that has generally kept it at bay. That is until i went on omeprazole. At first I was ok but
Mum007
in
Restless Legs Syndrome
7 years ago
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In my belief this is what caused my RLS!
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
For many years I was taking codeine for pain. After I got hooked on it the codeine took over my body. I finally got off them about 2 years ago and ever since I have gained RLS. I sleep maybe an hour a night if I'm lucky. I don't really have triggers they ache every night. I started smoking pot before
Mrsdonnie
in
Restless Legs Syndrome
7 years ago
RA, Fybro, Diverticulitis and Sicca
I do the exercises set by my physio, swim as much as I can 2x weekly, eat a gluten free and dairy free diet, practice mindfulness and visualisation techniques daily & participate in good
sleep
hygiene
.
I do the exercises set by my physio, swim as much as I can 2x weekly, eat a gluten free and dairy free diet, practice mindfulness and visualisation techniques daily & participate in good
sleep
hygiene
.
Hidden
in
NRAS
7 years ago
Danazol Treatment Long-term
Hello everyone, I've been taking Danazol for 1 Year and 8 months. I've recently just had pain come back in the last 2 months everyday like it was before starting the Danazol. I was curious if anyone has taken Danazol long-term and also had their pain return. The doctors are saying the endometriosis
Hello everyone, I've been taking Danazol for 1 Year and 8 months. I've recently just had pain come back in the last 2 months everyday like it was before starting the Danazol. I was curious if anyone has taken Danazol long-term and also had their pain return. The doctors are saying the endometriosis
EJPassmore
in
Endometriosis UK
7 years ago
Fatigue getting progressively worse
Hi All, I had a lap last year for endo however i felt it come back a couple of months back. I am now on the evra contraceptive patch to try to control this. Apart from pain here or there, i am more than anything suffering from fatigue which seems to be getting worse and I'm really struggling. I ensure
Hi All, I had a lap last year for endo however i felt it come back a couple of months back. I am now on the evra contraceptive patch to try to control this. Apart from pain here or there, i am more than anything suffering from fatigue which seems to be getting worse and I'm really struggling. I ensure
Jaas1
in
Endometriosis UK
7 years ago
Paralysis
Hello! I am posting this to hope any doctors or anyone sees this, I have been dealing with depression and anxiety for the past few years. but thats not what i want to ask Today I had like a sleep paralysis but i was awake. I have a cold and i was coughing when my brain from the side starting to hurt
Hello! I am posting this to hope any doctors or anyone sees this, I have been dealing with depression and anxiety for the past few years. but thats not what i want to ask Today I had like a sleep paralysis but i was awake. I have a cold and i was coughing when my brain from the side starting to hurt
Khalidwahedy
in
Mental Health Support
7 years ago
Considering obstructive sleep apnoea and enlarged tonsils as a cause of fatigue
So, today I saw a respiratory doctor at the request of my CLL team. Due to my terrible snoring (sorry wifey!) and what he states are very enlarged tonsils the doctor thinks I may have OSA (says they almost meet). He’s referred me also for a possible tonsillectomy. So this could fall into the “don’t
So, today I saw a respiratory doctor at the request of my CLL team. Due to my terrible snoring (sorry wifey!) and what he states are very enlarged tonsils the doctor thinks I may have OSA (says they almost meet). He’s referred me also for a possible tonsillectomy. So this could fall into the “don’t
AdrianUK
in
CLL Support
7 years ago
anyone taking Nevirapine/Viramune at the same time as doing taxotere chemotherapy.
my doctor said that doing this combination (although I'm only 60 and athletic and have great bone density) would require me to do the Neulasta with each treatment to help my white cells from dropping. The Neulasta is a killer ....horrible bone pain... and I'm just wondering if anyone else was on the
my doctor said that doing this combination (although I'm only 60 and athletic and have great bone density) would require me to do the Neulasta with each treatment to help my white cells from dropping. The Neulasta is a killer ....horrible bone pain... and I'm just wondering if anyone else was on the
greatjohn
in
Advanced Prostate Cancer
7 years ago
CPAP machine
So I have just started a trial of a CPAP machine. I am really struggling with it. My sleep has gone back to being disturbed whereas I was going to bed and sleeping till 6 and sleeping all night - the machine wakes up puffing air into me or coming out if the sides . The longest I've managed to keep it
So I have just started a trial of a CPAP machine. I am really struggling with it. My sleep has gone back to being disturbed whereas I was going to bed and sleeping till 6 and sleeping all night - the machine wakes up puffing air into me or coming out if the sides . The longest I've managed to keep it
siannie
in
Thyroid UK
7 years ago
Why are women so cruel?
Today I was dismissing my class and a parent of another year group came bounding into my classroom while other parents were around and children and she asked me very loudly after looking me up and down if I was pregnant. Completely taken aback I said no and I never will be. To which her face fell and
Today I was dismissing my class and a parent of another year group came bounding into my classroom while other parents were around and children and she asked me very loudly after looking me up and down if I was pregnant. Completely taken aback I said no and I never will be. To which her face fell and
_MrsC
in
Fertility Network UK
7 years ago
Reducing the Risk of CPAP-Related Infections
I have a problem, which I am going to address with my doctors. But I would love to get some input from anyone with personal experience or knowledge of the issue. I have CLL. I also have sleep apnea. I am suppose to be wearing a full face mask with my BIPAP machine. My problem is how to do I keep
I have a problem, which I am going to address with my doctors. But I would love to get some input from anyone with personal experience or knowledge of the issue. I have CLL. I also have sleep apnea. I am suppose to be wearing a full face mask with my BIPAP machine. My problem is how to do I keep
DaleFL
in
CLL Support
7 years ago
RLS
Help! New spt of restless leg syndrome! Is it Tecfidera?? Has it years ago but 1 Xanax took care of it. Neuro took my Xanax away and gave me Valium and it has no affect. I take potassium for it and that helped for 6 months. Using aromatherapy, no help. 3rd night of it I am climbing the walls! Tecfidera
Help! New spt of restless leg syndrome! Is it Tecfidera?? Has it years ago but 1 Xanax took care of it. Neuro took my Xanax away and gave me Valium and it has no affect. I take potassium for it and that helped for 6 months. Using aromatherapy, no help. 3rd night of it I am climbing the walls! Tecfidera
agapepilgrim
in
My MSAA Community
7 years ago
Am I Changed? Weaning off Ropinirole
I'm new here, and I'd like to take advantage of the knowledge I see here. I went in for a sleep study worried about sleep apnea, b/c I get apnea headaches sometimes. The doctor said I didn't have much sleep apnea, but I actually had RLS, and prescribed Ropinirole, although I wasn't perceiving the RLS
I'm new here, and I'd like to take advantage of the knowledge I see here. I went in for a sleep study worried about sleep apnea, b/c I get apnea headaches sometimes. The doctor said I didn't have much sleep apnea, but I actually had RLS, and prescribed Ropinirole, although I wasn't perceiving the RLS
Benedictoption123
in
Restless Legs Syndrome
7 years ago
Advice please on supplements
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
I am here on behalf of girlfriend who is worried about symptoms she can't make sense of. She is 29 years old and has thyroid peroxidase antibodies of 377 (<34 IU/mL). Symptoms list - Seeing flashing spots/floaters in her eyes Dizziness and breathlessness when standing from squatting Tiredness
Domikk
in
Thyroid UK
7 years ago
SLEEP, WELL MORE LIKE LACK OF
No matter what i have tried, perscribed, herbal over counter, sleep tea, LUSH sleep lotion which costs a bomb, candles, soft music, black out blinds, aromatherapy oils, fragrance plugins, u name it ive tried it.....but i am truly at my witts end with being the only one thats wide awake every night for
No matter what i have tried, perscribed, herbal over counter, sleep tea, LUSH sleep lotion which costs a bomb, candles, soft music, black out blinds, aromatherapy oils, fragrance plugins, u name it ive tried it.....but i am truly at my witts end with being the only one thats wide awake every night for
WestysWifey
in
Fibromyalgia Action UK
7 years ago
MS: Where is my toothbrush?
Lessons from moving... your body. Prepare ahead of time if you can.Cushions, compression wear good shoes icepack heating pad food water wow... lessons learned with each adventure.Found a care center around the corner to volunteer ..i always get more out of it than they do.its win win situation! They
Lessons from moving... your body. Prepare ahead of time if you can.Cushions, compression wear good shoes icepack heating pad food water wow... lessons learned with each adventure.Found a care center around the corner to volunteer ..i always get more out of it than they do.its win win situation! They
jackiesj
in
My MSAA Community
7 years ago
Conversion disorder "relapse." looking for someone who understands this disorder first hand
hi. my name is Kayla and i'm 16 years old. i had a few consecutive conversion disorder episodes (muscle tensing, seizures, palatalization, breathing trouble, etc). I haven't had anything in 4 months, but i've been battling this disorder since April of 2015. i just want to talk to someone who has gone
hi. my name is Kayla and i'm 16 years old. i had a few consecutive conversion disorder episodes (muscle tensing, seizures, palatalization, breathing trouble, etc). I haven't had anything in 4 months, but i've been battling this disorder since April of 2015. i just want to talk to someone who has gone
boazk
in
Functional Neurological Disorder - FND Hope
7 years ago
Exhaustion?
So I am not sure where to post this. Lately I've felt exhausted all day everyday. My limbs feel a "heaviness" in them all the time. Today and yesterday I feel too tired to even breath. Been wondering if I may have CFS. I've had fibromyalgia for a few years now. And I did have a fibro flare last week
So I am not sure where to post this. Lately I've felt exhausted all day everyday. My limbs feel a "heaviness" in them all the time. Today and yesterday I feel too tired to even breath. Been wondering if I may have CFS. I've had fibromyalgia for a few years now. And I did have a fibro flare last week
krazy-girl
in
Fibromyalgia Action UK
7 years ago
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