Search
Search
About
Log in
Join
Experiences with
Primary biliary cholangitis (PBC)
Posts
Communities
1,753 public posts
Filter results
getting help with care
I posted before about hoping to take my partner on holiday - which is looking unlikely and also irresponsible. He has cirrhosis which is fairly stable, having paracentesis again soon - but he’s tried and weak and pretty much not able to do much. The trouble is that he insists he is fine, can look after
I posted before about hoping to take my partner on holiday - which is looking unlikely and also irresponsible. He has cirrhosis which is fairly stable, having paracentesis again soon - but he’s tried and weak and pretty much not able to do much. The trouble is that he insists he is fine, can look after
Ladypinkdoor
in
British Liver Trust
4 months ago
INVOLVEMENT OPPORTUNITY - for adults with a cirrhosis diagnosis (UK)
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
Opportunity for adults in the UK and diagnosed with cirrhosis to take part in the OPAL observational study sponsored by Resolution Therapeutics.
Advanced cirrhosis can progress in different ways for different people. We do not fully understand how the disease develops after someone has their
BritishLiverTrust1
Partner
in
British Liver Trust
4 months ago
Can I take him on holiday?
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
My partner has decompensated cirrhosis - and is currently in hospital with hyponatremia. He suffers from anxiety and finds it hard to eat - except for Ensure, which seems to be keeping him going. We hope his condition will stabilise soon though. He very much wants to go on holiday and I think that
Ladypinkdoor
in
British Liver Trust
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Offlander56
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
I've been diagnosed with fibrosis stage three ,and I am trying to get my head round the whole thing. I've been told I've got a fatty liver plus using alcohol, I didn't think I drunk that much and I've learnt there is a stigma if you get a liver disease you're an alcoholic. Questions I would
Offlander56
in
British Liver Trust
5 months ago
A lot of stuff going on. Qs.
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
ARM8
in
British Liver Trust
5 months ago
Fibroscan 14.2. No cirrhosis
Hi I hope this finds you all well and thanks for clicking on my post For context: -I'm 49 -Female -Afro-Carribean descent - I've mostly watched the amount of saturated fat I consume but can't say the same for simple carbs -I drank mostly in my 20s at the weekend and rarely drink now -I'm 5.5" and about
Hi I hope this finds you all well and thanks for clicking on my post For context: -I'm 49 -Female -Afro-Carribean descent - I've mostly watched the amount of saturated fat I consume but can't say the same for simple carbs -I drank mostly in my 20s at the weekend and rarely drink now -I'm 5.5" and about
UB40fan-yay
in
British Liver Trust
5 months ago
Recently diagnosed with Liver disease.
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
Hi guys This is my first post on here, and im just looking for advice really? I've recently been diagnosed with fatty liver disease and enlarged liver, my g.p was surprised to hear that I rairly drink, and my diet isn't bad ( I cook most meals from scratch in the air frier) and takeaway 2/3 times a
KellyNASH
in
British Liver Trust
5 months ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
5 months ago
fibroscan
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
I have been diagnosed with NASH cirrhosis. When I had the fibroscan I had to lie on my left side and the scan was done on my back. Everything I have seen since is people lying on their back with their right arm stretched up. I have been wondering whether the scan was done properly. Has anyone else
Darcy-22
in
British Liver Trust
5 months ago
Help with diet
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
My husband has been told to cut out salt and reduce fluids to 1.5lt a day due to ascites, but increase protein and carbs and calories intake to around 3000 a day to maintain his weight. He is struggling with this as he has never had a big appetite and would happily exist on bread and sausage. He is type
Breakfastbabe
in
British Liver Trust
5 months ago
stent
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Hello. My husband had a stent placed into his bile duct to widen it last April (2023) he had it removed in August (23) and a balloon used to widen further strictures (narrowings). All seemed ok. He struggles daily due to his PSC which has caused cirrhosis on the left side of his liver plus portal hypertension
Grannysmiff
in
British Liver Trust
5 months ago
Lumps, bumps & hernias
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
I'm posting to find out if anyone else has similar issues to myself. I have cirrhosis, was diagnosed around 9 years ago, have no ascites or varices, but I do have portal vein hypertension and a grossly enlarged spleen. About a year ago I started noticing small veins on my stomach, I think they are called
tonicwater
in
British Liver Trust
6 months ago
Fibroscan results - can someone help please?
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
I was diagnosed with 'probable cirrhosis' 6 years ago, based on a US and LFTs. I was drinking heavily at the time, so it was a shock rather than a surprise, and I took it at face value. I've been seeing a gastro team ever since, but have never been given a prognosis or any indication of whether the
SueDenim100
in
British Liver Trust
6 months ago
F3 Fibrosis Regression
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
Smif56
in
British Liver Trust
6 months ago
care options for H.E and decompensated cirrhosis
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Hey, hoping for some advice on care options for someone suffering with cirrhosis and H.E My dad was diagnosed this January, but clearly quite late on - he has since had 4 hospital admissions due to severe (stage 3) H.E and one time he went into coma (stage 4). This latest admission lasted 2 weeks
Concerneddaughter33
in
British Liver Trust
6 months ago
A medical professionals responsibility
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
PeterSmith1998
in
British Liver Trust
7 months ago
Child Pugh A5 UKELD 46
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
Bucket13
in
British Liver Trust
7 months ago
NMN supplement help cirrhosis?
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
DaveQ67
in
British Liver Trust
7 months ago
Diagnosed with Non Alcohol Cirrhosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Hi everyone, I was recently diagnosed with stage 2 non alcoholic cirrhosis and am having a lot trouble accepting my diagnosis. It could be because my dad died of alcohol cirrhosis 21 years ago and I know how bad it can get. I have very few symptoms right now and am just being monitored. I know my prognosis
Dogmom1968
in
British Liver Trust
7 months ago
Diet suitable for NAFLD cirrhosis and type 2 diabetics.
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Hi, I have been diagnosed with cirrhosis through NAFLD. I have no idea what diet or where to find a diet suitable to follow. Being type 2 doesn't help either. Need carbs for liver, carbs no good for diabetics. Fats such as butter bad for my liver, what should I spread on bread? etc. What should I eat
Gyproc
in
British Liver Trust
7 months ago
1
2
3
...
88
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
British Liver Trust
633 results
Atrial Fibrillation Support
337 results
Heart Rhythm Disorders Support
221 results
View top 10 communities
Sort by
Most Relevant
Newest