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Experiences with
Primary biliary cholangitis (PBC)
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Should we worry?
mum is on large doses of lactulose and diuretics and has been feeling very unwell all day. She hasn’t been able to open her Bowles at all, and seems very confused. is this an A&E job?
mum is on large doses of lactulose and diuretics and has been feeling very unwell all day. She hasn’t been able to open her Bowles at all, and seems very confused. is this an A&E job?
PerpetuallySad
in
British Liver Trust
4 months ago
cirrhosis analogy
Happy New Year to all! I saw my primary care doc yesterday for my annual exam, after seeing my Hepatologist in August. Both said all of my bloodwork is normal, albeit slightly low platelets. 130’s-140’s. I asked my primary care about 1) possible worsening, 2) measurement of fibrosis (fibroscan)
Happy New Year to all! I saw my primary care doc yesterday for my annual exam, after seeing my Hepatologist in August. Both said all of my bloodwork is normal, albeit slightly low platelets. 130’s-140’s. I asked my primary care about 1) possible worsening, 2) measurement of fibrosis (fibroscan)
Greengal314
in
British Liver Trust
4 months ago
How quickly can cirrhosis worsen.
Hi allI was diagnosed 2 years ago with compensated cirrhosis, portal hypertension, no ascites and 3 small varices that didn't need treatment. Everything was jogging along without change, no worse, no better. But, here it comes, I've had a bad time just lately, my husbands dementia is worsening and I'm
Hi allI was diagnosed 2 years ago with compensated cirrhosis, portal hypertension, no ascites and 3 small varices that didn't need treatment. Everything was jogging along without change, no worse, no better. But, here it comes, I've had a bad time just lately, my husbands dementia is worsening and I'm
eileenet49
in
British Liver Trust
4 months ago
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Private fibroscan?
Hi. I posted last week, the surgeon performing my laprascopic gallbladder surgery has seen fibrotic changes in my liver about 4 weeks ago. My most recent LFT'S (in April) were largely normal, bilirubin raised slightly (consistently for years) alongside slightly low platelets and slightly raised mean
Hi. I posted last week, the surgeon performing my laprascopic gallbladder surgery has seen fibrotic changes in my liver about 4 weeks ago. My most recent LFT'S (in April) were largely normal, bilirubin raised slightly (consistently for years) alongside slightly low platelets and slightly raised mean
Givemecoffee
in
British Liver Trust
4 months ago
ammonia
hi guys I’ve got liver disease and portal hypertension I keep getting high readings of ammonia does anyone else have or had this problem before I’ve also got Crohn’s disease could do with some advice feel so alone
hi guys I’ve got liver disease and portal hypertension I keep getting high readings of ammonia does anyone else have or had this problem before I’ve also got Crohn’s disease could do with some advice feel so alone
GTGJ
in
British Liver Trust
4 months ago
Knocked sideways
Ive been reading all your posts but not actually written anything for a while because in my stupid head I thought we were plodding along even if it was at a plateau level. Kev was diagnosed with non alcoholic liver cirrhosis back in July. He also had sepsis twice and ended up in intensive care where
Ive been reading all your posts but not actually written anything for a while because in my stupid head I thought we were plodding along even if it was at a plateau level. Kev was diagnosed with non alcoholic liver cirrhosis back in July. He also had sepsis twice and ended up in intensive care where
Snips71
in
British Liver Trust
4 months ago
Problems with medication supplies
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Hi. Since I recently swapped to home deliveries for medication, every 4 weeks some meds are missing or out of stock.I didn't have this problem when I ordered directly from the GP, changed over because I was struggling to get into town to collect my prescriptions. The messages from Lloyds Pharmacy says
Wytchylady
in
LUPUS UK
5 months ago
Alcohol related cirrhosis and drinking
I was diagnosed with cirrhosis in September 2023 after a fibroscan. I am considered compensated due to my lab work and no ascites or symptoms. I am an alcoholic and made the stupid mistake of drinking a glass of red wine at a Christmas party last week. Of course now I am hating myself and absolutely
I was diagnosed with cirrhosis in September 2023 after a fibroscan. I am considered compensated due to my lab work and no ascites or symptoms. I am an alcoholic and made the stupid mistake of drinking a glass of red wine at a Christmas party last week. Of course now I am hating myself and absolutely
Wagster55
in
British Liver Trust
5 months ago
liver health
so …. I consider myself a fairly intelligent individual, but the thing I don’t get is why does our consultants want our bloods normal , how does that help us when I’ve read your still classed as cirrhotic and it’s just the the healthy bits of the liver are emitting these correct chemicals , does this
so …. I consider myself a fairly intelligent individual, but the thing I don’t get is why does our consultants want our bloods normal , how does that help us when I’ve read your still classed as cirrhotic and it’s just the the healthy bits of the liver are emitting these correct chemicals , does this
Hidden
in
British Liver Trust
5 months ago
Fibroscan
My Fibroscan result has just come in at 7kpa!!! 3 1/2 years after a diagnosis of cirrhosis with ascites.. Keep believing……..
My Fibroscan result has just come in at 7kpa!!! 3 1/2 years after a diagnosis of cirrhosis with ascites.. Keep believing……..
deanw41
in
British Liver Trust
5 months ago
Finally got FibroScan
Some of you may remember I was diagnosed with NASH Cirrhosis on a CT scan a few months ago. I then had a FibroTest which showed F3 fibrosis. After months of waiting I finally had the FibroScan done last week and results are kpa 11.9 which is considered cirrhosis 😞 in NASH patients. I didn’t get a CAP
Some of you may remember I was diagnosed with NASH Cirrhosis on a CT scan a few months ago. I then had a FibroTest which showed F3 fibrosis. After months of waiting I finally had the FibroScan done last week and results are kpa 11.9 which is considered cirrhosis 😞 in NASH patients. I didn’t get a CAP
FlippinOut
in
British Liver Trust
5 months ago
Prothrombin time
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Sheliabee
in
British Liver Trust
5 months ago
Body Reform programme
Hi Good morning to you all, if you have followed my posts you will know something of my history. Diagnosed with cirrhosis/ borderline cirrhosis, kpa 10.8. Undiagnosed last march with kpa 8.8. Signed off to my gp for a 3 year re check with ELF test. BMI 36, tried everything, including NHS social prescribing
Hi Good morning to you all, if you have followed my posts you will know something of my history. Diagnosed with cirrhosis/ borderline cirrhosis, kpa 10.8. Undiagnosed last march with kpa 8.8. Signed off to my gp for a 3 year re check with ELF test. BMI 36, tried everything, including NHS social prescribing
Iro1
in
British Liver Trust
5 months ago
Ascites and varices
Hi this is my first time posting My dad is 76 been diagnosed with cirrhosis he has had 5 veins banded as they have bled He has just come out of hospital after 3 weeks with aki and sepsis They don't want to really tell me if he is going to be ok as he can be or if he's end stage as the doc says they
Hi this is my first time posting My dad is 76 been diagnosed with cirrhosis he has had 5 veins banded as they have bled He has just come out of hospital after 3 weeks with aki and sepsis They don't want to really tell me if he is going to be ok as he can be or if he's end stage as the doc says they
IQ1966
in
British Liver Trust
5 months ago
Why so grim....
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
Tp807
in
British Liver Trust
5 months ago
platelet
I have liver cirrhosis and currently have no symptoms I wondered if anyone had any advise on how to improve platelet count I’ve just had blood results and they have dropped from 98 to now 88 doctor wants me to have another blood test in 6 weeks has anyone experienced this and managed to increase them
I have liver cirrhosis and currently have no symptoms I wondered if anyone had any advise on how to improve platelet count I’ve just had blood results and they have dropped from 98 to now 88 doctor wants me to have another blood test in 6 weeks has anyone experienced this and managed to increase them
Janden12
in
British Liver Trust
6 months ago
Upate
My naturopath tested me for some autoimmune markers for bile duct disease, specifically for
primary
biliary
cirrhosis
(
PBC
) and
primary
sclerosing cholangitis (PSC) since it seems to fit my liver disease profile: Slowly progressive liver disease with normal liver enzymes except high bilirubin.
My naturopath tested me for some autoimmune markers for bile duct disease, specifically for
primary
biliary
cirrhosis
(
PBC
) and
primary
sclerosing cholangitis (PSC) since it seems to fit my liver disease profile: Slowly progressive liver disease with normal liver enzymes except high bilirubin.
ROCKO2231
in
British Liver Trust
11 months ago
major operation
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
Cfmol
in
British Liver Trust
6 months ago
INR/FIBRINOGEN
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Sophia1968
in
British Liver Trust
6 months ago
blood test results
hi everyone, I recently had Covid , first time ever and I was worried incase it had caused my liver any more problems, so I asked the doctor to check with blood tests, I have had the results back but I’m not quite sure about a few things, so would like to pick your clever brains, firstly I know it’s
hi everyone, I recently had Covid , first time ever and I was worried incase it had caused my liver any more problems, so I asked the doctor to check with blood tests, I have had the results back but I’m not quite sure about a few things, so would like to pick your clever brains, firstly I know it’s
Sophia1968
in
British Liver Trust
6 months ago
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