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Experiences with
Primary biliary cholangitis (PBC)
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Why so grim....
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
My question is to the British liver trust. Do you know why the hospital consultants say to you maybe have 3 years to live after a stomach acities drain and decompressed cirrosis. yet many people here are saying they are living a good life. İt's cruel to give that information and then share it with your
Tp807
in
British Liver Trust
6 months ago
platelet
I have liver cirrhosis and currently have no symptoms I wondered if anyone had any advise on how to improve platelet count I’ve just had blood results and they have dropped from 98 to now 88 doctor wants me to have another blood test in 6 weeks has anyone experienced this and managed to increase them
I have liver cirrhosis and currently have no symptoms I wondered if anyone had any advise on how to improve platelet count I’ve just had blood results and they have dropped from 98 to now 88 doctor wants me to have another blood test in 6 weeks has anyone experienced this and managed to increase them
Janden12
in
British Liver Trust
6 months ago
major operation
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
hi my husband has cirrhosis, as 2 years his liver reading has been good, he had a back operation 5 years ago but he got the news yesterday that he needs another one! our concern ls r that his blood doesn’t clot that good and this is a major risk mayb we r over thinking this but has anyone else went
Cfmol
in
British Liver Trust
6 months ago
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INR/FIBRINOGEN
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Can someone please tell me if anything else can affect INR or FIBRINOGEN levels, last year my INR was 1 on the ratio and is now 1.1 does this mean the liver is getting worse or can that figure change, it is literally just on the last part of normal now, also my FIBRINOGEN is almost double what it should
Sophia1968
in
British Liver Trust
6 months ago
Upate
My naturopath tested me for some autoimmune markers for bile duct disease, specifically for
primary
biliary
cirrhosis
(
PBC
) and
primary
sclerosing cholangitis (PSC) since it seems to fit my liver disease profile: Slowly progressive liver disease with normal liver enzymes except high bilirubin.
My naturopath tested me for some autoimmune markers for bile duct disease, specifically for
primary
biliary
cirrhosis
(
PBC
) and
primary
sclerosing cholangitis (PSC) since it seems to fit my liver disease profile: Slowly progressive liver disease with normal liver enzymes except high bilirubin.
ROCKO2231
in
British Liver Trust
11 months ago
blood test results
hi everyone, I recently had Covid , first time ever and I was worried incase it had caused my liver any more problems, so I asked the doctor to check with blood tests, I have had the results back but I’m not quite sure about a few things, so would like to pick your clever brains, firstly I know it’s
hi everyone, I recently had Covid , first time ever and I was worried incase it had caused my liver any more problems, so I asked the doctor to check with blood tests, I have had the results back but I’m not quite sure about a few things, so would like to pick your clever brains, firstly I know it’s
Sophia1968
in
British Liver Trust
7 months ago
Limbo
About 6 years ago I had some a full set of blood tests done and 3 years later I had more of which I was told that my LFTs were deranged and that they could t understand why the previous Doctor didn’t raise any concerns as my ALT levels were over 1200 and my AST in high hundreds. This time the enzymes
About 6 years ago I had some a full set of blood tests done and 3 years later I had more of which I was told that my LFTs were deranged and that they could t understand why the previous Doctor didn’t raise any concerns as my ALT levels were over 1200 and my AST in high hundreds. This time the enzymes
MrMidnight2021
in
British Liver Trust
7 months ago
worried about the future
at what stage of liver cirrhosis, might you need a transplant? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around . I’m usually quite positive
at what stage of liver cirrhosis, might you need a transplant? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around . I’m usually quite positive
Hopeful85
in
British Liver Trust
8 months ago
Cirrhosis
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
Williamsbluefamily
in
British Liver Trust
8 months ago
renapro shots
Hi. I have been diagnosed with.kiver cirrosis and have been keeping to havea strict no salt, limited sugar, high proein diet as well as all the other good stuff, veg, fruit etc. No alcolhol obviiusly. I have been takibg high protein renapro shots for a few weeks but ive recently discovered that each
Hi. I have been diagnosed with.kiver cirrosis and have been keeping to havea strict no salt, limited sugar, high proein diet as well as all the other good stuff, veg, fruit etc. No alcolhol obviiusly. I have been takibg high protein renapro shots for a few weeks but ive recently discovered that each
Mills1976
in
British Liver Trust
8 months ago
cirrhosis and high kidney levels!
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
Cfmol
in
British Liver Trust
8 months ago
Cirrhosis Help
Evening All - long story so sit comfortably:) I have recently (Feb 23) been diagnosed with Cirrhosis. Was a shock as I am also a Type 1 Diabetic , so just something else to add to the list :) Had no and still don’t have any symptoms - alarms bells were raised from low platelets with my bloods from
Evening All - long story so sit comfortably:) I have recently (Feb 23) been diagnosed with Cirrhosis. Was a shock as I am also a Type 1 Diabetic , so just something else to add to the list :) Had no and still don’t have any symptoms - alarms bells were raised from low platelets with my bloods from
SuperSaint
in
British Liver Trust
8 months ago
Diagnosis cirrhosis
After 3 years of suffering and a diabetes diagnosis which I turned around in 10 weeks o am now told I have fatty liver / cirrhosis. I am reaching out for help and advice as atm I feel abandoned by the NHS.
After 3 years of suffering and a diabetes diagnosis which I turned around in 10 weeks o am now told I have fatty liver / cirrhosis. I am reaching out for help and advice as atm I feel abandoned by the NHS.
Tonbolt275
in
British Liver Trust
8 months ago
Cirrhosis fully reversed.
It's been quite a while since I last posted. It's been 3 years since I was diagnosed with liver cirrhosis and and it's 6 months now since the very doctors who diagnosed me with cirrhosis confirmed that it is fully recovered and ran fibroscan twice to confirm that indeed it is gone. Only one thing now
It's been quite a while since I last posted. It's been 3 years since I was diagnosed with liver cirrhosis and and it's 6 months now since the very doctors who diagnosed me with cirrhosis confirmed that it is fully recovered and ran fibroscan twice to confirm that indeed it is gone. Only one thing now
Debo1
in
British Liver Trust
8 months ago
blood tests vs ultra sounds
I am so confused! I have been diagnosed with cirrhosis after a stay in hospital with ascites. What do they pay more attention to the scans or the blood work? It’s so confusing. They say at scans they are for only surveillance of cancerous lesions but can they tell if the cirrhosis has gotten worse even
I am so confused! I have been diagnosed with cirrhosis after a stay in hospital with ascites. What do they pay more attention to the scans or the blood work? It’s so confusing. They say at scans they are for only surveillance of cancerous lesions but can they tell if the cirrhosis has gotten worse even
Hidden
in
British Liver Trust
8 months ago
Low platelets
hi guys, Hope everyone is well! So when I have my bloods done all are within normal range but my platelets have always been lower since diagnosis 4yrs ago! My platelets have always been around the 85 mark. They then went to 68 then back up to 78 and last bloods done today they have dropped again to
hi guys, Hope everyone is well! So when I have my bloods done all are within normal range but my platelets have always been lower since diagnosis 4yrs ago! My platelets have always been around the 85 mark. They then went to 68 then back up to 78 and last bloods done today they have dropped again to
Chaz3125
in
British Liver Trust
8 months ago
Does anyone know
Most know my Story about my wife, how she went from a Fatty liver diagnosis in Oct of 2020 to dead from Renal Failure in Jan of 2023. One thing, that is still being argued. And drives me nuts since the Biopsies showed NASH F1. She did have a compression of her IVC and Portal. Which cleared on its
Most know my Story about my wife, how she went from a Fatty liver diagnosis in Oct of 2020 to dead from Renal Failure in Jan of 2023. One thing, that is still being argued. And drives me nuts since the Biopsies showed NASH F1. She did have a compression of her IVC and Portal. Which cleared on its
Wolivere
in
British Liver Trust
9 months ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
9 months ago
From the depths of despair, there is hope
Hi I have written a couple of posts on here but just want to update you re my progress to demonstrate how, with determination, you can turn things around. To summarise, last May/June I was hospitalised for over5 weeks. My drinking had slowly increased, (though I had always liked a drink) following
Hi I have written a couple of posts on here but just want to update you re my progress to demonstrate how, with determination, you can turn things around. To summarise, last May/June I was hospitalised for over5 weeks. My drinking had slowly increased, (though I had always liked a drink) following
J4ck1369
in
British Liver Trust
9 months ago
We don't know what to expect
Hello 👋 our 60yr old father has ARLD, cirrhosis is present. 12 months since we knew for certain, diagnosed. He was clean 5 months. Then it started again. He's now same as last Yr. Ascites present. Malnourished and not eating. Not moving out his chair. Sat in his own feaces. Only input is whiskey. I
Hello 👋 our 60yr old father has ARLD, cirrhosis is present. 12 months since we knew for certain, diagnosed. He was clean 5 months. Then it started again. He's now same as last Yr. Ascites present. Malnourished and not eating. Not moving out his chair. Sat in his own feaces. Only input is whiskey. I
Sammi0685
in
British Liver Trust
9 months ago
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