Fibroscan

[deanw41]

My Fibroscan result has just come in at 7kpa!!!

3 1/2 years after a diagnosis of cirrhosis with ascites..

Keep believing……..

[LilacPoppy]

Brilliant 👏🏻

[Greengal314]

Congratulations! Awesome news !

I hope to be right behind you. 🥳🥳🥳❤️

[deanw41 in reply to Greengal314]

Fingers Crossed 🤗

[Confused2024 in reply to deanw41]

That is fantastic - I am at 9.0 and hoping to joing the 7.0 or less club in April!!!!!!

[D6C2L30E-48]

That's great but I'm just wondering does that mean you still have cirrhosis or it's gone

[deanw41 in reply to D6C2L30E-48]

It was inflammation rather than scarring. So no I don’t have cirrhosis

[D6C2L30E-48 in reply to deanw41]

So the doctors were wrong I'm beginning to wonder my fibroscan was 63 bow 14 two years later bloods all normal no symptoms

[deanw41 in reply to D6C2L30E-48]

They couldn’t tell early on because of the inflammation, so the working diagnosis was cirrhosis. But I I got well quite quickly and I tracked all my bloods and US reports, pushed for Fibroscans etc because I knew I didn’t have cirrhosis. You have to advocate for your own health, I would have been left on the cirrhosis pile if I hadn’t of pursued what I thought was right. Good luck 👍

[Confused2024 in reply to deanw41]

I am so inspired by this...my bloods all went normal in 6 weeks and I had an elastology of 11.8 then in Nov 9kpa - they are saying cirrhosis but I feel great. My ultrasounds say fairly homogenous with minimal contour irregularity and normal echogenicity and trace ascites...did you have any of that? I am praying that I can get out of the cirrhosis umbrella...I am doing everything I can to try. Still waiting for a hepatologist (since July)..I took things into my own hands and drove 14 hours to pay for a fibroscan which was a bad idea...it was at a clinic (I am in Canada) that focuses on weight lost and stuff..I guess in hind sight more of a salon really for women...they do have a fibroscan there though and so I drove and paid...they gave me a result of 32.1 kpa and 162 CAP...I took it to my GP who said it was not worth the paper it was written on..lmy 14 hour drive home was hell thinking that I had progressed that quickly and here I thought I was stopped and showing signs of reversing...note to anyone out there - DO NOT DO THAT lol.

How were your ultrasounds reading deanw41? Just love to have a comparison...when you presented what things looked like for you...such a positive post!

[deanw41 in reply to Confused2024]

Hey, well my ultrasounds alway say different things, they are not that accurate and are very subjective. The last one said slightly fatty and they have varied over the last nearly 4 years. My latest bloods show my platelets are nearly in the normal range which again is promising. 146k. I’ve been doing intermittent fasting for the last year, it’s working for me. It’s the process of Autophagy- have a look it’s very interesting! Keep believing you are better , never underestimate the power of the MIND. Do all the obvious right things in terms of self - care.

That Fibroscan you had seems a bit random?! If your Dr discounts it then, put it down to experience.

Do NOT be deterred, keep going!!! To healing……and beyond!!!! 💥💥

[Greengal314 in reply to deanw41]

Hey Dean! Do you have the same type of ultrasounds done each time? Are they done at the same place? Do you know if they compare them to the previous ones?

Mine show that they are compared to the previous ones, since they are done in the same hospital system.

Mine have been pretty logical overall. 😌

How’s the fasting going ? I’m hungry just thinking about it. 😂

[deanw41 in reply to Greengal314]

Hey Mary, well mine get done at different places in different machines by different people! That equals different opinions! Subjective reality!! Do you get the actual reports written by the US tech? I do and that’s how I know they say different things, the Dr letter just says no significant change!

Haha, still fasting!! Autophagy all the way baby 🤣

[Greengal314 in reply to deanw41]

I don’t get reports by the techs- they take the scans. The radiologists (doctors) reads them. I can see the report by the doctor - the actual measurements and interpretations. It is different doctors but they compare it to the previous report.

I keep track of the measurements and descriptions and can make an overall comparison of changing parameters.

The last one did say “mild morphological changes of cirrhosis.”

Some trends I have noted: spleen size decreasing (even though I didn’t have “splenomalgy”). Measurements improved. Descriptive words seem much more favorable. Went from nodular to smooth, and increased echogenicty to normal, but I am hoping that is not a mistake ! 🤣😁

I still need to check out that autophagy I’ve read there are some good results from it for various health issues.

[deanw41 in reply to Greengal314]

Autophagy means Self - Eating in Latin. You body eats all the dead cells and heals but you need to stop stuffing your face first and get those insulin levels down!!

Put down that F’in avocado 🤣

[Greengal314 in reply to deanw41]

Hey!! Don’t be messing with my avocados. 😂

[deanw41 in reply to D6C2L30E-48]

Sounds like you might have had a lot of inflammation at the start and that’s why your score is comping down. Keep well and have yearly Fibroscans!

[sophiaS1980 in reply to D6C2L30E-48]

No, docs wasn't wrong, this can happen with alcoholic hept.

[deanw41 in reply to sophiaS1980]

What can happen?

[sophiaS1980 in reply to deanw41]

A person can be diagnosed with cirrhosis with alcoholic hept., you can even have ascites, bleeding varices, when they stop drinking the liver can regenerate, some ppl just get lucky when they completely stop drinking, sadly , many go back to drinking or say they will cut down ,which really makes people with autoimmune liver disease angry. You should be fine if you keep up the good work, congrats!

[deanw41 in reply to sophiaS1980]

Yes, I see your point! No going back for me that’s for sure!! Hope you are well…..

[sophiaS1980 in reply to deanw41]

You better not, and i am doing fine.

[Tp807 in reply to deanw41]

When I was in hospital with ascities and had a drain the diagnosis was decompensated cirrhosis. Interesting they said inflammation with the same issue. So glad you are doing well. It gives hope. Take care.

[deanw41 in reply to Tp807]

Thank you. How are you doing now?

[Tp807 in reply to deanw41]

I was very sick for about 6 months and lost a lot of weight and felt weak after my first drain but feel ok now. I still have problems but nothing to moan about given the worst times.

[harrytoliv in reply to deanw41]

Hi, I had the same My report came F3 12.8 kpa

6 months later I went for a scan

With a clean up.

The report came as 5.66 kpa .

[Confused2024 in reply to deanw41]

deanw41 oh my goodness....I sooooo hope you reply to me on this one...so you presented with ascites...I did as well but I am a 9.0 kPa now and my liver is still a little enlarged 15.8 cm...my belief is that the ascites was caused to being VERY inflamed (17.4 cm in July) - I have no other signs of it and feel completely fine.

You had ascites correct? The Dr said now that it was due to inflammation? Oh please tell me yes, that would make so much more sense for me. My liver is fairly homogenous with normal echogenicity and a mildly irregular contour at the subs capsular...nodular contour was showing but in the two ultrasounds late Oct the nodular contour was not listed.

Congrats to you - I LOVE these stories!!

[deanw41 in reply to Confused2024]

Hello! Yes, mine was inflammation! I only had one episode of ascites and it never came back. You have to keep pushing these consultants otherwise you end up on the cirrhosis pile, no significant change is what I’m STILL getting from my consultant. Outrageous!!!!

[deanw41 in reply to Confused2024]

Also, those Ultrasound are not reliable (there cheap) and it depends on the experience of the operator and is largely open to interpretation. My organs have been all sorts of wonderful technical names over the years. Question EVERYTHING, get all your notes, track everything and be EMPOWERED!!!!

[pushthrough]

Wow, congrats Dean! So happy for you (cough, jealous). 🤣You still have to be active on this forum though.

You give me hope as I approach my 6 month check up where I’m telling my specialist the only thing keeping me from moving to another state is the clinic.

[deanw41 in reply to pushthrough]

Thank you and I’ll stick around I’m sure! Best of luck for you upcoming check up.

How are things with you?

[Greengal314 in reply to pushthrough]

best of luck with your checkup !

[Aotea2012]

Hi…that’s amazing. Sounds like you’re doing really well. Don’t leave the forum though…it’s always great to hear from you.

[deanw41 in reply to Aotea2012]

Thank you and ill definitely stick around!

How’s things with you?

[Aotea2012 in reply to deanw41]

Yes great thanks. Feeling very well. Very busy with work at the moment…so looking forward to a few days rest over Xmas.

[larkat99]

There are only two ways you get ascites. Either from alcoholic hepatitis or Cirrhosis. That how it was explained to me from my hepatogolist. Ask your doctor about it.

[deanw41 in reply to larkat99]

Yes, so looks like it was Alcoholic Hepatitis. I was drinking a lot, all day and night ,and it came on very quickly - makes sense now.

[YummyBear]

Amazingly great news, well done.

[deanw41 in reply to YummyBear]

Thank you ☺️

[Kljo]

brilliant news!! Can I ask did ur platelets go back in range?

[deanw41 in reply to Kljo]

Still a bit low but not significant says my letter from the Dr

[Yorkigirl]

Excellent news

[MarkC66]

Brilliant - top job Dean 👏 👊

[deanw41 in reply to MarkC66]

Thanks mate ☺️

[Anthonysmate]

Well done young man, doing good things for charity aswell 👏

[deanw41 in reply to Anthonysmate]

Thank you ☺️

[Babygirl101]

Amazing news!! Keep doing what you’re doing. It’s clearly working 💜

[deanw41 in reply to Babygirl101]

Thanks and will do! ☺️👍

[D6C2L30E-48]

Hi dean did you ever have a ultrasound if so what did it say please was it normal

[deanw41 in reply to D6C2L30E-48]

When I was in hospital I had a CT thst said heterogenous liver with large volume ascites inkeeping with decompensated liver disease. All my other Ultrasounds have said smooth contour, slightly reflective, midly fatty

[Segy]

What's fibroscan mate? I'm sorting a date to go in for TIPs procedure if you no what that is? Still worrying about it but being drained every fortnight with about 25pint ov fluid on Ave being taken. Hope you doing well 👍

[deanw41 in reply to Segy]

Oh sorry to hear that, I hope the procedure works for you! It’s a scan that measures the amount of fibrosis is in the liver…

[Segy in reply to deanw41]

So what is fibrosis?

[Confused2024]

Was that your first fibroscan or had you had one before...awesome job!! Congrats!

[deanw41 in reply to Confused2024]

I had one September 2022 and it was 8.8kpa