Knocked sideways

[Snips71]

Ive been reading all your posts but not actually written anything for a while because in my stupid head I thought we were plodding along even if it was at a plateau level.

Kev was diagnosed with non alcoholic liver cirrhosis back in July. He also had sepsis twice and ended up in intensive care where I work.

Since then he has been getting stronger in himself. Struggling to eat normal food as he feels full all the time but with shakes, protein and lots of calogen we have been getting in the calories and proteins.

He was on spiro but it retained too much potassium so he had to come off that which means his ascities is drained roughly 3-4 weeks which he is coping with.

I thought that even though I knew his liver would not repair itself as it was far too damage by what we still don’t know he was doing okish.

His bloods had improved slightly. But then yesterday the doc said that things weren’t going the way they thought and that other people in his position would have only had 6-12 months to live.

I know that he has defied the odds as my colleagues didn’t even think that he would make it out of hospital.

So now depending on the results of the Ct scan they may or may not put him forward for a transplant.

I can’t think of my life without him but I need to know what to expect if the transplant isn’t a go.

he seems so good. There are so many questions that I know can’t necessarily be answered but how can someone look quite well but on the inside be dying.

Sorry for the long message but I can’t talk about this to anyone.

Much love and support to you all xx

[Sharonmcfarlane]

I’m so sorry to hear this , thinking of you all, yeah it’s so unfair and a terrible illness , please phone the help line that’s here online as they are so good . 🙏🏻❤️ xx

[Belleben]

Hi sorry to hear this news, can I asked what caused the cirrohis.

[Snips71 in reply to Belleben]

Hi there. They have no diagnosis at all for what caused it. A bit of a mystery really.

[AyrshireK]

Don't jump the gun catastrophizing. He'll have the CT scan and then if they deem it necessary he'll go forward to transplant assessment where again he'll have a full medical work up to see if transplant is the correct option at this time or whether there are alternatives they can try. They'll also assess whether he is ill enough to need transplant, fit enough to go through it and has no other issues that can debar him.

We are back in that boat now as you've seen on my own thread. Hubby has plummetted in the past few weeks and doctor has said it's time to revisit transplant as an option in hubbies case. He's had 8 years since he was last on the list and we are now awaiting dates and in the interim are working on his nutrition (building him up) and exercises from the transplant team physio.

Your hubby has survived this far - as you say much to some of your colleagues surprise. He sounds like he's been doing not too badly (as you say plateau'd) but isn't as improved as doctors hoped. Hopefully, all being well with the CT scan he'll get assessed and take it from there.

Rooting for you both as many already are for us.

Katie