Living with Sickle Cell Disease | HealthUnlocked

Hi all, does anyone with sickle cell anaemia have complications with organ damage due to sickle cell? I was diagnosed with kidney failure due to sickle cell...

Good morning all, wondering if anyone is going through or had same/similar concerns after covid jab. I took vaccine on the 7/2, 5 days post vaccination my...

Kids What are the options for someone who has SS and someone with trait? Can they still have kids? If so, what are the options for the kids if they do have...

Did anyone attend the zoom meeting yesterday? Is anyone taking hydroxyurea and having any regrets or withdrawals? I live alone and feel as if I need some...

Hi all, I was trying to find NHS/NICE guidance on when someone is a candidate for an iron infusion. I would imagine there is a level of ferritin or haemoglobin...

https://youtu.be/841rj5Bu2Is

Hey people, I’m currently 26 years old and although I’ve always known I had sickle cell I never knew how serious having sickle cell was due to the fact I never...

Hi warriors! I'm in pain at the moment. I've not had crisis in years but it's happening now 3 days after getting a flu jab. I've always got a flu jab every...

My question is. why does my body like to manufacture blood clots so much, to the point I've been on Warfarin, for years and will remain on for the rest of my...

Hi, Living Life here wondering how many. of us are suffering with knee pain. that is not arthritis and find yourself limping and don't even realize it until...

Knowing all of us with SCD are experiencing pain of various degrees most of which the so called average person couldn't tolerate as it appears our tolerance...

Cayenne Wellness Center's Annual Sickle Cell Disease Educational Seminar located in San Diego, CA (September 5-7, 2019) provided a unique opportunity to...

Just need help with my Sca nobody can figure out what's wrong with me and I know I have it because I got diagnosed with it when I was born. I'm always having...

A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed...

I don't know how to be a human being: I know how to be a human crying, a human lying, a human trying, a human sighing, even a human dying. But a...

To all those who live in the Uk or to those who know someone who is a British citizen and /or lives in the UK could you please sign and share. It is a very...

Meditation has really helped me through a lot of turbulence in my life and I would recommend meditation to everyone. Meditation has so many benefits including...

Affirmations that I try to live by. ♥

Hi My people, preparing to undergo minor surgery for Gallbladder Sludge as I understand it, its all the cholesterol, and other enzymes and gunk that make up...

Hi, my name is Annette. I am 60 years old I live in a state that does not have an understanding or support group for SCD patients. I am currently looking for...

Hi my name is Jetame Edwards and I was trying to see where can I go to get weed prescribed to me and what do I have to have in order to get it

I am doing a research paper on sickle cell anemia and I have this urge to write about how the disease can be prevented. So can any of you tell me how this can...

Hello my name is Wytisha. I have two little ones with sickle cell and I wanted to know if there are any event for sickle cell as there is for breast cancer out...

I broke my knee and before that was told i needed a knee replacement has anyone gone through the procedure personally? Just curious of how long the healing...

Look for a new doctor

Hello everyone my name us Luz,i have a 9 year son who has sickell cells since he was born, he has the bad one, his been in the hospital so many time since he...

My chronic lower back and leg pain is running into second week in America which is second in my lifetime. This is perhaps, because I experience crisis in form...

I have suffered with chronic pain for as long as I can remember maybe 5 or 6, my little crisis always begin with mid/lower back and leg pain from my bones. My...

Do any other sickler face swell ? My face swells when im hurting for three to four days.

I can't seem to gain weight. I don't know if exercise will help me gain a few pounds or gain some muscles. What food can help me to gain weight?