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ICU breakdown
I recently went to urgent care because I was having difficulty breathing. I have a history of pulmonary embolism‘s eight to be exact and yes I’m still alive. Urgent care ordered a stat CT scan. I went to the hospital and they did a D dimer and because it was normal they did not do the scan and they
I recently went to urgent care because I was having difficulty breathing. I have a history of pulmonary embolism‘s eight to be exact and yes I’m still alive. Urgent care ordered a stat CT scan. I went to the hospital and they did a D dimer and because it was normal they did not do the scan and they
Pilar0617
in
ICUsteps
5 years ago
Hepatic Encephalopathy
Hi all, I'm Carol and I care for my husband, Michael who now has decompensated cirrhosis. He recently had a bleed, we don't know where from, but had to have six pints of blood transfused, we were on a cruise ship when it happened so we're landed in Estonia. It went well except he picked up a UTI, which
Hi all, I'm Carol and I care for my husband, Michael who now has decompensated cirrhosis. He recently had a bleed, we don't know where from, but had to have six pints of blood transfused, we were on a cruise ship when it happened so we're landed in Estonia. It went well except he picked up a UTI, which
Caroll0605
in
British Liver Trust
5 years ago
Post ET MF
Hi I am new here. My partner who is 64 had ET for several years, treated with hydroxea. However earlier this year following illness and a BMB he was diagnosed with MF. He has all the constitutional symptoms and the fatigue is awful. He has now been on Rux (plus hydroxea off and on) for four weeks
Hi I am new here. My partner who is 64 had ET for several years, treated with hydroxea. However earlier this year following illness and a BMB he was diagnosed with MF. He has all the constitutional symptoms and the fatigue is awful. He has now been on Rux (plus hydroxea off and on) for four weeks
Goldfish212
in
MPN Voice
5 years ago
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As of yesterday..I’m on the national registry!
I’ve been absent from the forum for a while due to illness. A month after I lost my husband, I ended up in the ICU. My H and H was 6 and 19 I think. I was bleeding from my esophageal varicies. They identified the bleed and tied them off. My liver was close to not functioning at all, and because of the
I’ve been absent from the forum for a while due to illness. A month after I lost my husband, I ended up in the ICU. My H and H was 6 and 19 I think. I was bleeding from my esophageal varicies. They identified the bleed and tied them off. My liver was close to not functioning at all, and because of the
Joycemluc
in
Living with Fatty Liver and NASH
5 years ago
Haemoglobin levels and blood transfusion while on Docetaxel
Did anyone need a blood transfusion while on Docetaxel? I'm 3 rounds in and my haemoglobin level are down to 80. I'm being advised a transfusion would be the most likely next course of action.
Did anyone need a blood transfusion while on Docetaxel? I'm 3 rounds in and my haemoglobin level are down to 80. I'm being advised a transfusion would be the most likely next course of action.
easeytiger
in
Advanced Prostate Cancer
5 years ago
Still here living w/Cirrhosis
I had blood transfusions around 30 yrs was a social drinker never heavy, cured the hep c few years ago 3 w/Epculsa now living with cirrhosis, scary stuff. I recently had my ultra scan scared me I looked over saw my liver now I have night mares seeing it! I had lost weight about 27 pounds but have gained
I had blood transfusions around 30 yrs was a social drinker never heavy, cured the hep c few years ago 3 w/Epculsa now living with cirrhosis, scary stuff. I recently had my ultra scan scared me I looked over saw my liver now I have night mares seeing it! I had lost weight about 27 pounds but have gained
Liver3
in
British Liver Trust
5 years ago
2nd ablasion a disaster too
Hi everyone. Had 2nd Ablation done on the 18th of June! The 1st one left me with a huge bruised swollen cut lip and severe back spasms. This one was even worse. They accidently knicked a vein and I lost 2 pints of blood into my rt thigh and leg. My thigh from the groin to past my knee is purple and my
Hi everyone. Had 2nd Ablation done on the 18th of June! The 1st one left me with a huge bruised swollen cut lip and severe back spasms. This one was even worse. They accidently knicked a vein and I lost 2 pints of blood into my rt thigh and leg. My thigh from the groin to past my knee is purple and my
Jlaine
in
AF Association
5 years ago
Looking for help with radiation cystitis management
Has anyone had hyperbolic oxygen therapy for radiation cystitis? My husband started bleeding 6 weeks ago and has been through a living hell since the bleeding started. Two hospital stays, 7 emergency room visits and 5 Foley catheters. He lost so much blood he has to have two transfusions. The radiation
Has anyone had hyperbolic oxygen therapy for radiation cystitis? My husband started bleeding 6 weeks ago and has been through a living hell since the bleeding started. Two hospital stays, 7 emergency room visits and 5 Foley catheters. He lost so much blood he has to have two transfusions. The radiation
Carmen2
in
Advanced Prostate Cancer
5 years ago
HbA1c-SOME USEFUL FACTS
Came across this article and found it useful.(FROM HEALTHLINE NEWSLETTER) What’s Making My A1C Fluctuate? Questions to Ask Your Doctor The A1C test is a type of blood test. It provides information about your average blood sugar levels over the past two to three months. If you have type 2 diabetes, the
Came across this article and found it useful.(FROM HEALTHLINE NEWSLETTER) What’s Making My A1C Fluctuate? Questions to Ask Your Doctor The A1C test is a type of blood test. It provides information about your average blood sugar levels over the past two to three months. If you have type 2 diabetes, the
ramana42
Volunteer
in
Diabetes India
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
iron defiency anemia
I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. a yr later now june 2019 i have it again but i cant get a transfusion cause my ferritin is to high (700) it use to be around 230 before i got the transfusion. then went up to over 1000. it started comming down and went
I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. a yr later now june 2019 i have it again but i cant get a transfusion cause my ferritin is to high (700) it use to be around 230 before i got the transfusion. then went up to over 1000. it started comming down and went
joe123456
in
Pernicious Anaemia Society
5 years ago
I have an anemia question
I got a ferritin transfusion aug of 2018 for anemia. now a yr later my amemia is back and my ferritin which was suppose to back down to 400 or less (it use to be about 230). is 700 so i can't get another transfusion cause it's to high. did anyone else on here have this problem. I have no idea how
I got a ferritin transfusion aug of 2018 for anemia. now a yr later my amemia is back and my ferritin which was suppose to back down to 400 or less (it use to be about 230). is 700 so i can't get another transfusion cause it's to high. did anyone else on here have this problem. I have no idea how
joe123456
in
AF Association
5 years ago
Red blood cells count is down
My husband had just got done with his third shot of Xofigo. His red blood cell count is down, not enough for a blood transfusion. He is totally exhausted all the time. Is there anything he can take to give him some energy? This is very depressing for him. I have gotten him ensure and V8 juice because
My husband had just got done with his third shot of Xofigo. His red blood cell count is down, not enough for a blood transfusion. He is totally exhausted all the time. Is there anything he can take to give him some energy? This is very depressing for him. I have gotten him ensure and V8 juice because
Mamabakes994
in
Advanced Prostate Cancer
5 years ago
Elective hip replacement for osteoarthritis in severe CLL - any advice?
I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then treat the CLL or would it be better to delay the hip surgery and try to get the CLL into remission with treatment? (Platelets ok, haemoglobin
I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then treat the CLL or would it be better to delay the hip surgery and try to get the CLL into remission with treatment? (Platelets ok, haemoglobin
JLHA
in
Leukaemia CARE
5 years ago
Forever Grateful!!!
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
gbaby63
in
Kidney Transplant
5 years ago
Gastroenterologist low b12 positive antiparietal antibody screen
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Ferrett1
in
Pernicious Anaemia Society
5 years ago
Any other members put on a lower dose of Ibrutinib after some extreme side effects?
Apparently the Ibrutinib worked so well that my spleen had literally shrunk in days.The only problem was the WBC count going up to 1000s causing my skin to go into stress.Large bruises, petechiae all over body and rash.My platlets dropped from 70 into the 40s and the headache and blurred vision was getting
Apparently the Ibrutinib worked so well that my spleen had literally shrunk in days.The only problem was the WBC count going up to 1000s causing my skin to go into stress.Large bruises, petechiae all over body and rash.My platlets dropped from 70 into the 40s and the headache and blurred vision was getting
Miller1960
in
CLL Support
5 years ago
Grey Area hypothyroidism / Anemia not on levothyroxine at present by choice as my husbands on them and had problems ,
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Greyarea73
in
Thyroid UK
5 years ago
Benign liver mass op
Hi everyone, my daughter has a large undiagnosed mass on her liver , just before she turned one I felt it in her stomach and was told she was constipated naturally I felt the urge to get a second and third opinion to then be quickly taken to Glasgow childrens hospital and be told it was most likely
Hi everyone, my daughter has a large undiagnosed mass on her liver , just before she turned one I felt it in her stomach and was told she was constipated naturally I felt the urge to get a second and third opinion to then be quickly taken to Glasgow childrens hospital and be told it was most likely
Weeliver
in
Children's Liver Disease Foundation
5 years ago
Myelofibrosis - changing dose of rux and epo helps the fatigue
Hi I thought it was time I wrote an update post, as well as replying to others. The good news is that I’d discovered that changing my dose of ruxoltinib ( Jakafi) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that
Hi I thought it was time I wrote an update post, as well as replying to others. The good news is that I’d discovered that changing my dose of ruxoltinib ( Jakafi) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that
Rachelthepotter
in
MPN Voice
5 years ago
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