I have been transfusion dependant for about 4 years, averaging 2 units about every 4 weeks. In the last six months I have been getting 2 units per week. Can't seem to get my HGB above low eighties and my platelets are around mid forties. Currently can't have iron chellation medication because of low platelets. I am on 5mg Jakavi twice a day, which is keeping my spleen size down. My appetite is often lacking and I have lost 7Kg in the last 6 months.
I am trying to find a positive to concentrate on but I don't know of any new treatment options.
Can anyone see a comeback from this position?