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HbA1c-SOME USEFUL FACTS
Came across this article and found it useful.(FROM HEALTHLINE NEWSLETTER) What’s Making My A1C Fluctuate? Questions to Ask Your Doctor The A1C test is a type of blood test. It provides information about your average blood sugar levels over the past two to three months. If you have type 2 diabetes, the
Came across this article and found it useful.(FROM HEALTHLINE NEWSLETTER) What’s Making My A1C Fluctuate? Questions to Ask Your Doctor The A1C test is a type of blood test. It provides information about your average blood sugar levels over the past two to three months. If you have type 2 diabetes, the
ramana42
Volunteer
in
Diabetes India
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
iron defiency anemia
I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. a yr later now june 2019 i have it again but i cant get a transfusion cause my ferritin is to high (700) it use to be around 230 before i got the transfusion. then went up to over 1000. it started comming down and went
I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. a yr later now june 2019 i have it again but i cant get a transfusion cause my ferritin is to high (700) it use to be around 230 before i got the transfusion. then went up to over 1000. it started comming down and went
joe123456
in
Pernicious Anaemia Society
5 years ago
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I have an anemia question
I got a ferritin transfusion aug of 2018 for anemia. now a yr later my amemia is back and my ferritin which was suppose to back down to 400 or less (it use to be about 230). is 700 so i can't get another transfusion cause it's to high. did anyone else on here have this problem. I have no idea how
I got a ferritin transfusion aug of 2018 for anemia. now a yr later my amemia is back and my ferritin which was suppose to back down to 400 or less (it use to be about 230). is 700 so i can't get another transfusion cause it's to high. did anyone else on here have this problem. I have no idea how
joe123456
in
AF Association
5 years ago
Red blood cells count is down
My husband had just got done with his third shot of Xofigo. His red blood cell count is down, not enough for a blood transfusion. He is totally exhausted all the time. Is there anything he can take to give him some energy? This is very depressing for him. I have gotten him ensure and V8 juice because
My husband had just got done with his third shot of Xofigo. His red blood cell count is down, not enough for a blood transfusion. He is totally exhausted all the time. Is there anything he can take to give him some energy? This is very depressing for him. I have gotten him ensure and V8 juice because
Mamabakes994
in
Advanced Prostate Cancer
5 years ago
Elective hip replacement for osteoarthritis in severe CLL - any advice?
I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then treat the CLL or would it be better to delay the hip surgery and try to get the CLL into remission with treatment? (Platelets ok, haemoglobin
I'm new here. Does anyone have experience of hip replacement surgery for osteoarthritis in severe CLL. Is it safe to have the hip replacement surgery and then treat the CLL or would it be better to delay the hip surgery and try to get the CLL into remission with treatment? (Platelets ok, haemoglobin
JLHA
in
Leukaemia Support
5 years ago
Forever Grateful!!!
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
My husband had the flu in January 2018. He was so sick, went to the Dr.'s was given medicine and took a couple days off. He woke one morning with a feeling of a fever (although he didn't have one) he began vomiting profusely. The Dr. also did blood work on him and told him on January 30th 2018 to get
gbaby63
in
Kidney Transplant
5 years ago
Gastroenterologist low b12 positive antiparietal antibody screen
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Ferrett1
in
Pernicious Anaemia Society
5 years ago
Any other members put on a lower dose of Ibrutinib after some extreme side effects?
Apparently the Ibrutinib worked so well that my spleen had literally shrunk in days.The only problem was the WBC count going up to 1000s causing my skin to go into stress.Large bruises, petechiae all over body and rash.My platlets dropped from 70 into the 40s and the headache and blurred vision was getting
Apparently the Ibrutinib worked so well that my spleen had literally shrunk in days.The only problem was the WBC count going up to 1000s causing my skin to go into stress.Large bruises, petechiae all over body and rash.My platlets dropped from 70 into the 40s and the headache and blurred vision was getting
Miller1960
in
CLL Support
5 years ago
Grey Area hypothyroidism / Anemia not on levothyroxine at present by choice as my husbands on them and had problems ,
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Greyarea73
in
Thyroid UK
5 years ago
Benign liver mass op
Hi everyone, my daughter has a large undiagnosed mass on her liver , just before she turned one I felt it in her stomach and was told she was constipated naturally I felt the urge to get a second and third opinion to then be quickly taken to Glasgow childrens hospital and be told it was most likely
Hi everyone, my daughter has a large undiagnosed mass on her liver , just before she turned one I felt it in her stomach and was told she was constipated naturally I felt the urge to get a second and third opinion to then be quickly taken to Glasgow childrens hospital and be told it was most likely
Weeliver
in
Children's Liver Disease Foundation
5 years ago
Myelofibrosis - changing dose of rux and epo helps the fatigue
Hi I thought it was time I wrote an update post, as well as replying to others. The good news is that I’d discovered that changing my dose of ruxoltinib ( Jakafi) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that
Hi I thought it was time I wrote an update post, as well as replying to others. The good news is that I’d discovered that changing my dose of ruxoltinib ( Jakafi) back to 15 mg bd ( it had been increased to 20mg bd from the new year, and that increase made me gain another 5kg in weight ( gaind that
Rachelthepotter
in
MPN Voice
5 years ago
I was in Hospital for a week over Easter..I thought was told it was Varices but it was PHG (Portal Hypertensive Gastropathy)
I am out of hospital, had all Varices known to man double banded, and 3 blood transfusions. I saw my Gastro specialist this week and he informed me that NONE of the varices had bled, it was PHG! He also confirmed that was the same issue the last time I went into hospital a year ago! So not one varice
I am out of hospital, had all Varices known to man double banded, and 3 blood transfusions. I saw my Gastro specialist this week and he informed me that NONE of the varices had bled, it was PHG! He also confirmed that was the same issue the last time I went into hospital a year ago! So not one varice
Gerbera01
in
British Liver Trust
5 years ago
Blood donation after acute ITP?
I was diagnosed with ITP back in 2015. I went through the normal prednisone treatment, and by the end of it, my count was back within the normal rage, and I haven't had an episode since. I assume it was acute, brought on by a viral infection. I still have my spleen, and I wasn't given a blood transfusion
I was diagnosed with ITP back in 2015. I went through the normal prednisone treatment, and by the end of it, my count was back within the normal rage, and I haven't had an episode since. I assume it was acute, brought on by a viral infection. I still have my spleen, and I wasn't given a blood transfusion
Visua1ingo
in
ITP Support Association
5 years ago
Right decision? FCR vs. trial
Hi everyone I have been following and occasionally writing replies but have not introduced myself. This is a fantastic very supportive group and I am amazed but the helpful and very knowledgeable contributions my so many members. I was diagnosed in 2014 with a routine blood test at the age of 49
Hi everyone I have been following and occasionally writing replies but have not introduced myself. This is a fantastic very supportive group and I am amazed but the helpful and very knowledgeable contributions my so many members. I was diagnosed in 2014 with a routine blood test at the age of 49
schmitthj007
in
CLL Support
5 years ago
If you’ve had a hard time getting diagnosed please take a read and advise me.
First time posting on here. I’m desperately seeking answers. I feel like I’m fighting and fighting for answers which has become mentally and emotionally draining. At the age of 13 I started getting extremely heavy periods as well as bleeding a full 7days to the point I became very poorly and suffered
First time posting on here. I’m desperately seeking answers. I feel like I’m fighting and fighting for answers which has become mentally and emotionally draining. At the age of 13 I started getting extremely heavy periods as well as bleeding a full 7days to the point I became very poorly and suffered
_chars
in
Endometriosis UK
5 years ago
New here. After 10 years of CLL, Ibrutinib treatment needed for decreasing hemoglobin and platelets.
I have avoided any treatment so far but extreme fatigue fluctuations have drastically restricted daily activity such as walking, cooking, gardening etc. It's been a gradual progression and now I want some energy back so I can stay independent. Last summer I also acquired a severe allergic reaction to
I have avoided any treatment so far but extreme fatigue fluctuations have drastically restricted daily activity such as walking, cooking, gardening etc. It's been a gradual progression and now I want some energy back so I can stay independent. Last summer I also acquired a severe allergic reaction to
G_A_L
in
CLL America Support
5 years ago
Thrombocyte removal/transfusion!
Does anyone know if we could give our platelets to other people? I just found out that my mother-in-law has Myelodiplastic Syndrom, a type of blood cancer more dangerous than ours, where the body progressively produces less red blood cells, thrombocytes and leukocytes! She’s down to 85 thrombocytes.
Does anyone know if we could give our platelets to other people? I just found out that my mother-in-law has Myelodiplastic Syndrom, a type of blood cancer more dangerous than ours, where the body progressively produces less red blood cells, thrombocytes and leukocytes! She’s down to 85 thrombocytes.
Anag
in
MPN Voice
5 years ago
Liver Metastasis/Firmagon Bone Pain
We have had some really hard weeks. My husband was diagnosed end of March and spent 2 full weeks in the hospital following a Shockwave treatment for a kidney stone. We have still not sorted out all the issues. He's had three transfusions and is finally holding his own for hemaglobin. Potassium is also
We have had some really hard weeks. My husband was diagnosed end of March and spent 2 full weeks in the hospital following a Shockwave treatment for a kidney stone. We have still not sorted out all the issues. He's had three transfusions and is finally holding his own for hemaglobin. Potassium is also
CantChoose
in
Advanced Prostate Cancer
5 years ago
Mike’s update
It’s been almost six months since my husband was diagnosed with stage 4 prostate cancer with Mets to his bones. He just finished his round of chemo and ranged the bell that he was done. Even though his journey is far from over. He is doing remarkably well he’s a to get a few transfusions and calcium
It’s been almost six months since my husband was diagnosed with stage 4 prostate cancer with Mets to his bones. He just finished his round of chemo and ranged the bell that he was done. Even though his journey is far from over. He is doing remarkably well he’s a to get a few transfusions and calcium
Lagovista2018
in
Advanced Prostate Cancer
5 years ago
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