Hi everyone, so I’m new to this group so this is my first post. My key message is no matter how bleak things look keep fighting, life changing events can open new horizons.
I am very lucky having received first class care and surrounded by caring family and friends.
After 10 years of health service encounters, various admissions for stroke, cardiac surgery, ulcerative colitis, I started to become more unwell than normal in March 2018, with increasing medication and total immunosuppression therapy by September I was in trouble and started a 4 month vacation all inclusive in an NHS hospital. Things soon deteriorated further and the inevitable RSI, started over 70 days in ITU, on life support. After 3 operations, multiple blood transfusions, bilateral fungal pneumonia, a lacerated spleen, tension pneumothorax, toxic mega colon, E. coli, VRE infection, liver and kidney failure I started to improve and came off the ventilator and dialysis on Christmas Day (best present ever). Then started the long journey of rehabilitation, having lost a third of my body weight, the use of my right arm, removal of all my large intestine and not able to even lift my head up, let alone sit.
Months of intensive physio, hydrotherapy, 6 months of toxic medication as an outpatient I started to get stronger, more mobile and greater stamina.
The good news is by September I will have increased my work hours to full time, now walking up to six miles, done my first two caving trips, gentle mountain biking and just heading off for a week ocean sailing. I’m still having physio, decreased kidney function, close monitoring for return of infection, a numb left foot, but determined that all this is just inconvenient and won’t stop me making the most of every moment as I still need two more lots of surgery. I’m still a little mentally fragile and get frustrated that I still can’t do everything I want to, but still very very lucky.