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Platelet transfusions
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Adenomyosis new diagnosis
Hi everyone. I’m a bit nervous due to not understanding my situation and would appreciate any support with explanations as I’ve been told that they would want me to have biopsy and I’ve been put on Norethisterone till a decision is made which treatment as all others have not worked for me. I’m 43
Hi everyone. I’m a bit nervous due to not understanding my situation and would appreciate any support with explanations as I’ve been told that they would want me to have biopsy and I’ve been put on Norethisterone till a decision is made which treatment as all others have not worked for me. I’m 43
Pacesetter
in
Endometriosis UK
4 years ago
Niraparib problems.
I started Niraparib February 27th after finishing 6 months of carbo/Caelyx for a recurrence. I still had 3 tumours but they’d had reduced by more than a 1/3 so I qualified for Niraparib. I only took Nirapabib for 2 weeks when my platelets dropped to 9 so had a blood transfusion immediately and it rose
I started Niraparib February 27th after finishing 6 months of carbo/Caelyx for a recurrence. I still had 3 tumours but they’d had reduced by more than a 1/3 so I qualified for Niraparib. I only took Nirapabib for 2 weeks when my platelets dropped to 9 so had a blood transfusion immediately and it rose
Hidden
in
My Ovacome
4 years ago
Tips to living with Sickle cell
Hey people, I’m currently 26 years old and although I’ve always known I had sickle cell I never knew how serious having sickle cell was due to the fact I never had a sickle cell crisis until the age of 19/20 and since then I’ve been having crisis more frequently each year to the point I’m now having
Hey people, I’m currently 26 years old and although I’ve always known I had sickle cell I never knew how serious having sickle cell was due to the fact I never had a sickle cell crisis until the age of 19/20 and since then I’ve been having crisis more frequently each year to the point I’m now having
Shanspatrece_xo
in
Living with Sickle Cell Disease
4 years ago
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No more treatment due to Coronavirus
I’ve had stage 3 OC since early 2018. treatment started late May. Hysterectomy Sept 2018 plus carboplatin for 6 months I had a recurrence 6/7 months later then carbo/Caelyx for 6 months. 3 very large tumours after my 3 month CT scan. After 3 more months the CT scan revealed a shrinkage of more than half
I’ve had stage 3 OC since early 2018. treatment started late May. Hysterectomy Sept 2018 plus carboplatin for 6 months I had a recurrence 6/7 months later then carbo/Caelyx for 6 months. 3 very large tumours after my 3 month CT scan. After 3 more months the CT scan revealed a shrinkage of more than half
Hidden
in
My Ovacome
4 years ago
Hep c and Corona
I had hep c after a blood transfusion after treatment I am now clear. My question is am I in the at risk group relating to the Corona virus
I had hep c after a blood transfusion after treatment I am now clear. My question is am I in the at risk group relating to the Corona virus
monkfishx
in
Pernicious Anaemia Society
4 years ago
Anemia
Hi I was diagnosed with endo last August and out in a mini pill but was constantly spotting. My dr changed my pill about 6 weeks ago and after 4 weeks had a week of really heavy bleeding and ended up being sent to hospital for 2 blood transfusions. I have also had 1 iron infusion with another one booked
Hi I was diagnosed with endo last August and out in a mini pill but was constantly spotting. My dr changed my pill about 6 weeks ago and after 4 weeks had a week of really heavy bleeding and ended up being sent to hospital for 2 blood transfusions. I have also had 1 iron infusion with another one booked
Misty197
in
Endometriosis UK
4 years ago
Meet Ebun Ekunwe, MBBS, MD, MPH
At 71, has never received blood transfusion Feels stronger in old age than when she was younger Hopes to live to 120 years http://bit.ly/38QfZIq
At 71, has never received blood transfusion Feels stronger in old age than when she was younger Hopes to live to 120 years http://bit.ly/38QfZIq
sicklecellnews
in
Sickle Cell Society
4 years ago
Coronavirus
Coronavirus I I live in north Devon am post ET-MF awaiting blood transfusion HB 94 and dropping my daughter works in local health centre rang me to say am best to self isolate soon my Transfusion is booked in next Wednesday not heard from hospital to cancel am very mixed as what to do ! My younger daughter
Coronavirus I I live in north Devon am post ET-MF awaiting blood transfusion HB 94 and dropping my daughter works in local health centre rang me to say am best to self isolate soon my Transfusion is booked in next Wednesday not heard from hospital to cancel am very mixed as what to do ! My younger daughter
westlieght
in
MPN Voice
4 years ago
Anyone taking Darolutamide develope asthenia, a known side effect? I've read similar SEs with Xtandi, so is this with all lutamide drugs?
My husband, who is mCRPC started Darolutamide 1 month ago. Shortly after, he started to become more weak in his legs, esp his knees. Last week, after taking Darolutamide for 3-1/2 weeks he suddenly developed asthenia (abnormal physical weakness or lack of energy). I had to run out and buy him a walker
My husband, who is mCRPC started Darolutamide 1 month ago. Shortly after, he started to become more weak in his legs, esp his knees. Last week, after taking Darolutamide for 3-1/2 weeks he suddenly developed asthenia (abnormal physical weakness or lack of energy). I had to run out and buy him a walker
JLS1
in
Advanced Prostate Cancer
4 years ago
Anyone needing blood transfusions
I do not want to be causing chaos but I have questions about how anyone who is transfusion dependent will be supported if this epidemic becomes really bad.Simply because donors will be in short supply and we may have to accept being low on the priority list. I have 3 proposals. Firstly encourage anyone
I do not want to be causing chaos but I have questions about how anyone who is transfusion dependent will be supported if this epidemic becomes really bad.Simply because donors will be in short supply and we may have to accept being low on the priority list. I have 3 proposals. Firstly encourage anyone
skodaguy
in
MPN Voice
4 years ago
Radium 223 Side Effects?
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Hubby had his first radium treatment almost 2 weeks ago. For those of you that have had this treatment what side effects have you had? He had bloodwork done on Monday and he does not need a blood transfusion, but his liver functions are decreased, his alk phos went from 143 to 223. Onc ordered an urgent
Luv2fish
in
Prostate Cancer Network
4 years ago
My Father fight with prostate cancer(PSA 3045ng/ml)
My father(age 69) diagnose with Prostate Cancer on 16th Mar 2019, his PSA was 3045 ng/ml(ref range 0.00 - 2.80) Platelet count 56.00 (Ref range 150-400) Hemoglobin 8.70(Ref Range 13 - 80). Past history, he had Open Heart Surgery in 2012(MetXL 25 & Korandil 5, 2 times a day ) and thyroide problem (taking
My father(age 69) diagnose with Prostate Cancer on 16th Mar 2019, his PSA was 3045 ng/ml(ref range 0.00 - 2.80) Platelet count 56.00 (Ref range 150-400) Hemoglobin 8.70(Ref Range 13 - 80). Past history, he had Open Heart Surgery in 2012(MetXL 25 & Korandil 5, 2 times a day ) and thyroide problem (taking
Vasanta
in
Advanced Prostate Cancer
4 years ago
My nose bleeding blood transfusion and apixaban
Just an update about my continuous nose bleeding. (7months) for the past few weeks they went crazy, with blood streaming out, half filling a bucket. I had my blooded hands pinching my nose, used ice wadding sanitary towels (1of witch my husband accidentally stuck to my eyeball and lashes with white medical
Just an update about my continuous nose bleeding. (7months) for the past few weeks they went crazy, with blood streaming out, half filling a bucket. I had my blooded hands pinching my nose, used ice wadding sanitary towels (1of witch my husband accidentally stuck to my eyeball and lashes with white medical
mariamoo1
in
Hughes Syndrome APS Forum
4 years ago
Great news!
Had clinic today and was expecting my haemoglobin to have gone down again and to be told I needed another blood transfusion. But no its gone up all on its own, and I can continue on 200 Niraparib which I am doing really well on...........What a fantastic birthday present!!! am on cloud 9. 😃 🥂🎂 Hope
Had clinic today and was expecting my haemoglobin to have gone down again and to be told I needed another blood transfusion. But no its gone up all on its own, and I can continue on 200 Niraparib which I am doing really well on...........What a fantastic birthday present!!! am on cloud 9. 😃 🥂🎂 Hope
Hidden
in
My Ovacome
4 years ago
Worst few days of my life.
Recently my father had been unwell at first he was told it was a virus however as it progressed he backs increasingly weak eventually we were advised to take him to hospital where it was discovered he had low platelets. He had been anemic as well as diabetic for over 20 years he had a blood transfusion
Recently my father had been unwell at first he was told it was a virus however as it progressed he backs increasingly weak eventually we were advised to take him to hospital where it was discovered he had low platelets. He had been anemic as well as diabetic for over 20 years he had a blood transfusion
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
Niraparib
After my blood transfusion of 1 unit I felt really good, last week my Haemoglobin was up at 92. They dropped the dose of Niraparib down to 2 x 100mg, sadly a week later my Haemoglobin is down to 84, they want to see me next week and if it has dropped anymore, will arrange another transfusion and drop
After my blood transfusion of 1 unit I felt really good, last week my Haemoglobin was up at 92. They dropped the dose of Niraparib down to 2 x 100mg, sadly a week later my Haemoglobin is down to 84, they want to see me next week and if it has dropped anymore, will arrange another transfusion and drop
Hidden
in
My Ovacome
4 years ago
So very sorry haven't updated
My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of platelets and 1 of hemoglobin. This morning they checked my blood and I was rushed to ER with critically low blood counts.They transfused as fast
My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of platelets and 1 of hemoglobin. This morning they checked my blood and I was rushed to ER with critically low blood counts.They transfused as fast
dar58
in
Hughes Syndrome APS Forum
4 years ago
Worried about my daughter
My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago had some bloods and they came back very low infact at one point they were going to give her a transfusion in the end they decided her iron was low and put on tablets she has perked up but last night she came through and said
My 18 year-old daughter complained of fatigue and tiredness about 6 weeks ago had some bloods and they came back very low infact at one point they were going to give her a transfusion in the end they decided her iron was low and put on tablets she has perked up but last night she came through and said
cartwheels
in
CLL Support
4 years ago
A message from hospital bed!!
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Hi guys, thanks for you messages, and concerns. Sorry for lack of posts. Quick update. I'm getting on OK. My new liver is functioning wonderfully🤩, but my pain and issues with my haemoglobin have meant energy and strength are not the best. I've had two blood transfusions, and I'm currently getting
Wass71
in
British Liver Trust
4 years ago
I had 1.5 mil platelets and now they are 645K
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
I am new here. Great board, great posts, great people.13 Years ago (2003) my platelets progressed to 1.5 mil in about a year. Dr. suspected ET but couldn't confirm, bone marrow test was inconclusive, as he said. He suggested hydrea, I refused. I even don't take a baby aspirin as told because it gives
stai
in
MPN Voice
4 years ago
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