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Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
2 months ago
+100 Days post transplant
Well I've made it to the first mile post, I can't believe it's 100 days since my SCT, I cannot thank my brother too much for being my donor. I still have low blood counts and had a BMB 3 1/2 weeks ago for the Dr's to check what's going on, three of the 4 counts showed either 100% or very nearly of donor
Well I've made it to the first mile post, I can't believe it's 100 days since my SCT, I cannot thank my brother too much for being my donor. I still have low blood counts and had a BMB 3 1/2 weeks ago for the Dr's to check what's going on, three of the 4 counts showed either 100% or very nearly of donor
Flyingsteamer
in
MPN Voice
2 months ago
Low Red Cell Count
Morning folks, I wanted to provide an update on my journey. Dropped from clinical trial at Sarah Cannon Research in early May due to disease progression after three treatments of Phase 1 trial drug and one dose of Keytruda. Started dual chemo cabazitaxel and carboplatin in mid May. Went for third
Morning folks, I wanted to provide an update on my journey. Dropped from clinical trial at Sarah Cannon Research in early May due to disease progression after three treatments of Phase 1 trial drug and one dose of Keytruda. Started dual chemo cabazitaxel and carboplatin in mid May. Went for third
Pmann
in
Advanced Prostate Cancer
2 months ago
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Records on 300m patient interactions with NHS stolen in Russian hack
This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]
Records on 300m patient interactions with NHS stolen in Russian hack
[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight
This is much more than just a simple update, it is a major development in the Synnovis hack case. [i]
Records on 300m patient interactions with NHS stolen in Russian hack
[/i] [i]Exclusive: health service scrambling to set up helpline after Qilin gang put stolen data into public domain overnight
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Bleeding
For those people who worry about stopping their anticoagulant for medical procedures in case they have a stroke maybe my experience might reassure them. All drugs have a half life so the amount of time you have to stop before a procedure is calculated taking this into account. For the "bans" it is
For those people who worry about stopping their anticoagulant for medical procedures in case they have a stroke maybe my experience might reassure them. All drugs have a half life so the amount of time you have to stop before a procedure is calculated taking this into account. For the "bans" it is
Auriculaire
in
Atrial Fibrillation Support
2 months ago
Bone Marrow
Hi everyone. I am seeking your helpful advice once again. My daughter was diagnosed with High Serous Grade 3 Ovarian Cancer in June 2023 with full debaulking surgery in July 2023. She is currently on 100mg Paraparib which has had an effect on her haemoglobin levels but appear to have now settled.
Hi everyone. I am seeking your helpful advice once again. My daughter was diagnosed with High Serous Grade 3 Ovarian Cancer in June 2023 with full debaulking surgery in July 2023. She is currently on 100mg Paraparib which has had an effect on her haemoglobin levels but appear to have now settled.
BrandyHorse
in
My Ovacome
2 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
2 months ago
MY REMEDIES FOR MY RLS
I haven't been on this site very often in the past few months... work, life and other things going on but mostly because I finally settled in and started 100 mg of Gabapentin at night and this has helped tremendously. I know 300 mg is the start dosage but 100 mg takes care of 90% of my night symptoms
I haven't been on this site very often in the past few months... work, life and other things going on but mostly because I finally settled in and started 100 mg of Gabapentin at night and this has helped tremendously. I know 300 mg is the start dosage but 100 mg takes care of 90% of my night symptoms
Reb0013
in
Restless Legs Syndrome
2 months ago
Getting admitted to hospital in Wales update
Well after getting a call to get to A and E ten days ago because her platelets were at 4 and Hgb of 79 she had two bags of RBCs and one bag of platelets within three days. And got a bed in a ward by the Sunday. As she had a bag of platelets her platelets count went to 56 within two days Hgb was 90 then
Well after getting a call to get to A and E ten days ago because her platelets were at 4 and Hgb of 79 she had two bags of RBCs and one bag of platelets within three days. And got a bed in a ward by the Sunday. As she had a bag of platelets her platelets count went to 56 within two days Hgb was 90 then
jointpain
in
MPN Voice
2 months ago
Jevtana
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again.
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again.
MsHope
in
Advanced Prostate Cancer
2 months ago
niraparib
Hi everyone. I have sought your wonderful advices before so I hope you can help me again. My daughter is having trouble tolerating niraparib. Her haemoglobin is very low. She has had one blood transfusion (2 units) four weeks ago and halved her Niraparib from 200 to 100. Her bloods are still
Hi everyone. I have sought your wonderful advices before so I hope you can help me again. My daughter is having trouble tolerating niraparib. Her haemoglobin is very low. She has had one blood transfusion (2 units) four weeks ago and halved her Niraparib from 200 to 100. Her bloods are still
BrandyHorse
in
My Ovacome
2 months ago
Double bypass
Hi fellow hearties, I've recently had a 3 week stay at the Royal Brompton on the 22/05 i underwent a double bypass which went very well, i ended up with a blood transfusion, i was home within 5 days and all has gone very well, One of the biggest pain issues i've encountered that has affected my sleep
Hi fellow hearties, I've recently had a 3 week stay at the Royal Brompton on the 22/05 i underwent a double bypass which went very well, i ended up with a blood transfusion, i was home within 5 days and all has gone very well, One of the biggest pain issues i've encountered that has affected my sleep
Roastlambredwine
in
British Heart Foundation
2 months ago
Mom went nuts again.
I told everyone my mom got the blood transfusion but it only lasted 2 weeks. She is back with going crazy at nights walking, banging, crying and lossing it again. Told her to stop taking the duxet. We will see what happens. Im seriously thinking aboit going to turkey. Her next app with hemotologist isnt
I told everyone my mom got the blood transfusion but it only lasted 2 weeks. She is back with going crazy at nights walking, banging, crying and lossing it again. Told her to stop taking the duxet. We will see what happens. Im seriously thinking aboit going to turkey. Her next app with hemotologist isnt
SevereRLS-4mom
in
Restless Legs Syndrome
2 months ago
Flu A/scarred lungs/coughing
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
I was taken in an ambulance to hospital from the GP surgery on 14th February as my oxygen was so low. By 15th February at 2am I was put to sleep. I had flu A, a chest infection, sepsis and pneumonia. I had to have 3 blood transfusions and dialysis while I was asleep for 3 weeks. I was given
Dolphinsandwales
in
ICUsteps
3 months ago
Coarse Liver on Ultrasound scan
Good Morning, I had an ultrasound scan last Monday for suspected gallstones. No gallstones and was told all looked fine. On Wednesday last week the GP called me to say the report had come as a Goldstar report with a possible cancer diagnosis. My liver was described as coarse with multiple areas of increased
Good Morning, I had an ultrasound scan last Monday for suspected gallstones. No gallstones and was told all looked fine. On Wednesday last week the GP called me to say the report had come as a Goldstar report with a possible cancer diagnosis. My liver was described as coarse with multiple areas of increased
Sophy0506
in
Living with Fatty Liver and NASH
3 months ago
opinions
in 1988 I was 7 years old and a adenoid and tonsils removal was suggested as I was always ill . My op was At Birmingham children’s hospital . All seemed to go well with the op they said but my mom thought differently I looked see-through and as she and a nurse sat me up to drink a sip of water. I
in 1988 I was 7 years old and a adenoid and tonsils removal was suggested as I was always ill . My op was At Birmingham children’s hospital . All seemed to go well with the op they said but my mom thought differently I looked see-through and as she and a nurse sat me up to drink a sip of water. I
BexMorton1981
in
HepCBC Hepatitis C Education & Prevention Society
3 months ago
My CLL has Transformed
Finally had a pet scan on May 28 which showed extensive transformed disease above and below the diaphram with extensive head and neck disease, a pelvic mass and spleenomegaly. I am going for a biopsy next week to confirm diagnosis. If RT confirmed, then I will be admitted to Upenn for 5 days of intensive
Finally had a pet scan on May 28 which showed extensive transformed disease above and below the diaphram with extensive head and neck disease, a pelvic mass and spleenomegaly. I am going for a biopsy next week to confirm diagnosis. If RT confirmed, then I will be admitted to Upenn for 5 days of intensive
ReneeSusan
in
CLL Support
3 months ago
please help with figuring out what is wrong
I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but doctors can’t figure out the cause. The hematologist did bone marrow biopsy, PET scan and over 50 blood test, all normal except for Copper and Ferritin
I posted recently that my Mom’s Hemoglobin is dropping, same as RBC and Hemocrit, while MCV and MCH are high. She was diagnosed with Macrocytic Anemia but doctors can’t figure out the cause. The hematologist did bone marrow biopsy, PET scan and over 50 blood test, all normal except for Copper and Ferritin
Simonapo
in
Pernicious Anaemia Society
3 months ago
research summary?
Some asked about my own feelings about the most exciting fields in oncology which could bring results. I should take a long moment to sit and summarize all the papers and also to check the moves of bit pharma companies...but right now I cannot (but I might use some AI to do the job soon!). But for not
Some asked about my own feelings about the most exciting fields in oncology which could bring results. I should take a long moment to sit and summarize all the papers and also to check the moves of bit pharma companies...but right now I cannot (but I might use some AI to do the job soon!). But for not
Maxone73
in
Advanced Prostate Cancer
3 months ago
Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
3 months ago
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