Well I've made it to the first mile post, I can't believe it's 100 days since my SCT, I cannot thank my brother too much for being my donor. I still have low blood counts and had a BMB 3 1/2 weeks ago for the Dr's to check what's going on, three of the 4 counts showed either 100% or very nearly of donor cells but the T Cells are only 23%. I've not had any other issues so I'm now off the Mycophenolate and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out. Consultant wis arranging my Covid jabs with my GP, so all in all I think I'm on the slow upward slope of progress, It's just so frustrating that I feel so well but I know I must continue with self isolation and strict diet. Looking forward to the future.
Chris
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Flyingsteamer
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Thanks Hatchie. Since being diagnosed my blood counts had been very low and I needed fortnightly rbc transfusions 2 to 3 units. This was making my iron level elevated so consultants said having it was my best option, I went with their decision.
Great news. I'm just finishing my vaccinations. The final one, the mmr, can't be given till 2 years have passed. I got the list of what was needed from the Anthony Nolan site . I took heed of epguy and made sure I left 14 days between each one. Getting the covid ones outside of the main schedule for ordinary people was quite difficult.
How wonderful to hear you're feeling well and doing well. Hope your team is happy with your BMB next week. Keep it up! Thanks for sharing your progress. Hugs from NYC.
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Besremi - After Two Years
