+100 Days post transplant

[Flyingsteamer]

Well I've made it to the first mile post, I can't believe it's 100 days since my SCT, I cannot thank my brother too much for being my donor. I still have low blood counts and had a BMB 3 1/2 weeks ago for the Dr's to check what's going on, three of the 4 counts showed either 100% or very nearly of donor cells but the T Cells are only 23%. I've not had any other issues so I'm now off the Mycophenolate and will get a T cell transfusion in a few weeks as an outpatient. I have another BMB next week as Dr's still want the 100 day one as comparative check. Also will stop taking Letermovir when I run out. Consultant wis arranging my Covid jabs with my GP, so all in all I think I'm on the slow upward slope of progress, It's just so frustrating that I feel so well but I know I must continue with self isolation and strict diet. Looking forward to the future.

Chris

[Hatchie]

Congratulations on making it to 100 days. It's great that you are feeling so well.

I'm really scared to get a SCT..... What make it decide it was time to do it?

[Flyingsteamer in reply to Hatchie]

Thanks Hatchie. Since being diagnosed my blood counts had been very low and I needed fortnightly rbc transfusions 2 to 3 units. This was making my iron level elevated so consultants said having it was my best option, I went with their decision.

[Scaredy_cat]

Great news. I'm just finishing my vaccinations. The final one, the mmr, can't be given till 2 years have passed. I got the list of what was needed from the Anthony Nolan site . I took heed of epguy and made sure I left 14 days between each one. Getting the covid ones outside of the main schedule for ordinary people was quite difficult.

[hunter5582]

Great news!. Glad to hear that you are doing so well. Whishing you continued success moving forward.

[Mishie14]

Very good news! You are doing so well. Congratulations and thank you for sharing your journey. You are boosting confidence and hope for others. 😀

[Spanelmad]

Congrats, fantastic news.Looking forward to hearing about the next 100

[Poppy6060]

Great news you feeling well and thanks for the positive post take care Poppy

[Simon96]

Congratulations! Onwards and upwards - carefully

[Ebot]

Brilliant news. All strength to you. Onwards and upwards!

[MFBMT2011]

well done. 100 down and many more to go.

Chris (Princess Leia version)

[kamiilos]

Great news, congratulations.

[KC63]

Great news! Good to hear you're doing so well.

[Gaithersburg]

Excellent news - thanks for keeping us updated. Great to hear how well you are doing.

[LFCLove]

Excellent news! Wishing you all the very best for continued progress.

🤓

[Wyebird]

thrilled for you. So glad you have a willing and loving sibling. Long may your recovery continue.

[ainslie]

congratulations Chris, great to hear👍

[light]

Wishing you well. Blessings

[KLCTJC]

Yeah!!!! Congrats!!! So happy you are doing well!!!

[Tintins]

So good to hear your wonderful news. Sending you and your brother best wishes 🙏.

[Cja1956]

So happy to hear that things are going so well for you. Keep it up. You will get your life back soon.

[CanadaG]

This is amazing news Chris! I'm glad to hear you're doing well, thanks for the update

[Bluetop]

Well done! So gald you are feeling so well. I hope the positive progress continues. Best wishes.

[DiveGoddess]

Chris,

So happy to hear this news! Thanks for sharing your journey.

Stay strong 💪🏻

Christy

[Mazcd Partner MPNVoice]

wonderful news, so pleased all is going well. Best wishes, Maz

[ETinNYC]

How wonderful to hear you're feeling well and doing well. Hope your team is happy with your BMB next week. Keep it up! Thanks for sharing your progress. Hugs from NYC.

[Dodders]

Well done! Keep on keeping on. Sending you the very best wishes for your continued recovery.