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5 Racquetball Size Endometriomas
hey friends! I know majority of you are in the UK, however, I am in the US and am struggling to find a community like this one. I was diagnosed with PCOS about 6 years ago, and have had complex cysts pop up 3 seperate times - 1 of which grew to the size of a cantaloupe. I had the cantaloupe mucinous
hey friends! I know majority of you are in the UK, however, I am in the US and am struggling to find a community like this one. I was diagnosed with PCOS about 6 years ago, and have had complex cysts pop up 3 seperate times - 1 of which grew to the size of a cantaloupe. I had the cantaloupe mucinous
Brookerock
in
Endometriosis UK
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
Starting (again)on 23rd August
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Helllo MPN friends, I thought I would just give you an update after my SCT was postponed in June. My new admission date is 23rd August and of course I am nervous in case anything else goes wrong! I have felt well for the last few weeks and my blood counts have held up quite well although dropping
Otterfield
in
MPN Voice
2 years ago
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Three years down the road. Question re gut health
Evening all …after a little help please… it’s been 3 years since I was diagnosed with PA, I self inject regularly. That seems to be sorted. I’ve Since been diagnosed celiac so strictly no tiger bread for me, booo. Iron transfusion in December as iron levels on the floor. So far I’ve managed to keep
Evening all …after a little help please… it’s been 3 years since I was diagnosed with PA, I self inject regularly. That seems to be sorted. I’ve Since been diagnosed celiac so strictly no tiger bread for me, booo. Iron transfusion in December as iron levels on the floor. So far I’ve managed to keep
Mandymoos8
in
Pernicious Anaemia Society
2 years ago
Severe Breathlessness 4 weeks after Triple By Pass
A week after discharge I started to get very severe loss of breath after even very short walks. This has got worse and I can hardly go from Bedroom to bathroom without fighting for breath. Sitting down improves matters quickly. I've been back to hospital and had many tests. They could only suggest a
A week after discharge I started to get very severe loss of breath after even very short walks. This has got worse and I can hardly go from Bedroom to bathroom without fighting for breath. Sitting down improves matters quickly. I've been back to hospital and had many tests. They could only suggest a
Signpost100
in
British Heart Foundation
2 years ago
Keytruda effects on anemia
Hello :) First time posting in the forum. My special someone is a fighter. Several rounds of chemo, spot radiation, Zytiga, Xtandi, and three treatments of Lu177 have all since failed. He’s currently only on the Orgovyx. Innumerable mets on scans, all in the bones. No soft tissue involvement. He has
Hello :) First time posting in the forum. My special someone is a fighter. Several rounds of chemo, spot radiation, Zytiga, Xtandi, and three treatments of Lu177 have all since failed. He’s currently only on the Orgovyx. Innumerable mets on scans, all in the bones. No soft tissue involvement. He has
Zengal79
in
Advanced Prostate Cancer
2 years ago
knee replacement
I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis arthritis Sjogens disease anemia high blood pressureThyroid I had a hip replacement done in October and I had to have blood transfusion so I’m quite worried about the knee surgery can anybody give me advice or some encouragement
I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis arthritis Sjogens disease anemia high blood pressureThyroid I had a hip replacement done in October and I had to have blood transfusion so I’m quite worried about the knee surgery can anybody give me advice or some encouragement
Mystik
in
LUPUS UK
2 years ago
Still testing positive after 10 weeks
Hello everyone. I need some help. My mum has CLL and had been on venetoclax + rituximab since November 2021 (rituximab suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive. She
Hello everyone. I need some help. My mum has CLL and had been on venetoclax + rituximab since November 2021 (rituximab suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive. She
Marymary19
in
CLL Support
2 years ago
Low Platelet count from new member
CLL is there a platelet transfusion to boost platelet count.? It's the only troubling number in my bloodwork having been diagnosed in 2011.
CLL is there a platelet transfusion to boost platelet count.? It's the only troubling number in my bloodwork having been diagnosed in 2011.
PajamaGame
in
CLL Support
2 years ago
losing blood and very anemia
I have had 4blood transfusion and 2iron transfusion and have been in and out of hospital for banding in my stomach I am feeling really dreadful I can’t see anything working the banding in my throat and stomach is not working
I have had 4blood transfusion and 2iron transfusion and have been in and out of hospital for banding in my stomach I am feeling really dreadful I can’t see anything working the banding in my throat and stomach is not working
Annecameronblack
in
PCOS UK (Verity)
2 years ago
OLAPARIB
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (Anaemia) I am about to complete
Hello all I started Olaparib at the very end of Dec 2021 I have had 2 blood transfusions after low HB one in march and then 1 in April with a dose reduction to 500mg.I have not had another transfusion since although I am expecting my bloods to be a bit low at the moment (Anaemia) I am about to complete
Hidden
in
My Ovacome
2 years ago
Terrified where to turn
I have a growth on my foot caused by hereditary gout not helped by the diuretics I take. It is painful and I struggle to walk on it. I was to be operated on in July 2020 but at the last minute the surgron said No because the hospital pre med team didn't order platelets. I was in theatre when this occurred
I have a growth on my foot caused by hereditary gout not helped by the diuretics I take. It is painful and I struggle to walk on it. I was to be operated on in July 2020 but at the last minute the surgron said No because the hospital pre med team didn't order platelets. I was in theatre when this occurred
Violet74
in
British Liver Trust
2 years ago
Internal Bleeding
Hallo :) On June 13th, I underwent a gastroscopy, which showed the presence of hiatus hernia and hypertensive portal gastropathy, as well as gastritis. Multiple duodenal biopsies were taken at that time, which were normal. Last week I underwent a colonoscopy, which more than explained the heading to
Hallo :) On June 13th, I underwent a gastroscopy, which showed the presence of hiatus hernia and hypertensive portal gastropathy, as well as gastritis. Multiple duodenal biopsies were taken at that time, which were normal. Last week I underwent a colonoscopy, which more than explained the heading to
JonBechstein
in
British Liver Trust
2 years ago
MULTIPLE CLL RELAPSES- NEE TREATMENT OPTIONS AND EXPERIENCES
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 he was asked to wait and watch 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 he was asked to wait and watch 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse
theoptimistduo
in
CLL America Support
2 years ago
CLL RELAPSE.. LATEST TREATMENTS AVAILABLE
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
theoptimistduo
in
CLL Support
2 years ago
Xofigo paused
good afternoon - desperately seeking advice My dad has had his 3 round of xofigo , was scheduled for his 4th but platelets are at a 37. he has gotten blood transfusion last week, they were at a 70 , now we are at a 37 We are doing the papaya leaves - trying to rebuild They will not transfuse till
good afternoon - desperately seeking advice My dad has had his 3 round of xofigo , was scheduled for his 4th but platelets are at a 37. he has gotten blood transfusion last week, they were at a 70 , now we are at a 37 We are doing the papaya leaves - trying to rebuild They will not transfuse till
danyelpolo
in
Advanced Prostate Cancer
2 years ago
Sheehan’s syndrome
I have my endo appointment tomorrow! With the info from here and from here and SeasideSusie I may have central hypothyroid I was reading a post by SlowDragon which mentioned a pituitary condition called Sheehan syndrome. I had a haemorrhage post delivery that resulted in blood transfusion but that was
I have my endo appointment tomorrow! With the info from here and from here and SeasideSusie I may have central hypothyroid I was reading a post by SlowDragon which mentioned a pituitary condition called Sheehan syndrome. I had a haemorrhage post delivery that resulted in blood transfusion but that was
Mellania
in
Thyroid UK
2 years ago
Blood transfusions causing dramatic reactions
I understand some MPN sufferers have blood transfusions/top-ups from time to time. Do any of you have adverse reactions to having this "new" blood in your body? My wife is back in hospital with another GI bleed and needing blood. In the past when she has blood, normally packed RBC bags. She gets a high
I understand some MPN sufferers have blood transfusions/top-ups from time to time. Do any of you have adverse reactions to having this "new" blood in your body? My wife is back in hospital with another GI bleed and needing blood. In the past when she has blood, normally packed RBC bags. She gets a high
jointpain
in
MPN Voice
2 years ago
Anemia and thyroid function
TUK posters know well the influence of anaemia on thyroid function. Here is a paper examining this. Acta Biomed 2017; Vol. 88, N. 1: 119-127 DOI: 10.23750/abm.v88i1.6048 Chronic anemia and thyroid function Ashraf T Soliman1 , Vincenzo De Sanctis2 , Mohamed Yassin3 , Magda Wagdy4 , Nada Soliman5
TUK posters know well the influence of anaemia on thyroid function. Here is a paper examining this. Acta Biomed 2017; Vol. 88, N. 1: 119-127 DOI: 10.23750/abm.v88i1.6048 Chronic anemia and thyroid function Ashraf T Soliman1 , Vincenzo De Sanctis2 , Mohamed Yassin3 , Magda Wagdy4 , Nada Soliman5
diogenes
in
Thyroid UK
2 years ago
Thank you
Thank you to everyone who’s replied to me about the hassle of getting hold of one’s own data in the UK, and also about the general difficulty of balancing cumulative iron load with its future problems, against having a reasonable quality of life right now from transfusions I did take EPO injections
Thank you to everyone who’s replied to me about the hassle of getting hold of one’s own data in the UK, and also about the general difficulty of balancing cumulative iron load with its future problems, against having a reasonable quality of life right now from transfusions I did take EPO injections
Rachelthepotter
in
MPN Voice
2 years ago
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