CLL America Support | HealthUnlocked

hi, my mom has had a persistent elevation of wbc, neutrophils and lymphocytes for the past 7 months, since diagnosed with diabetes. Asymptomatic and has...

I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions...

I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3 out of college) 1 in college, 3 in high school. I was diagnosed with CLL In...

Hello from the SF Bay area Father of 2 (6 and 3 years), Happily married - Recently diagnosed with CLL (Sept 2022) Mentally and emotionally a mess There a...

I recently had a CT scan and the results say I have an inherited disease called Chronic granulomatous Disease (CGD) where white blood cell (phagocyte) that...

I am currently in treatment for CLL with Gazyva and Venclexta. I just was looking at my explanation of benefits and it looks like my copay for the Venclexta...

I just got some results from a comprehensive HEME panel. One of the items listed SF3B1 GENE at at a VAF of 40%. The only references I can find on this refer...

I got a false positive Covid reading which prompted me to get the Paxlovid. I also went to get a PCR test just to be sure - it came back negative - as did...

Has anyone got a similar result.. what best treatment did you opt for? It’s a desperate situation for us.. pls guide We Were on acalaibrutinib + Venitoclax +...

Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have...

Aloha! My husband (age 74) was diagnosed with CLL back in 2003 and had eighteen years of zero symptoms. After having a transient loss of vision in one eye that...

Hello! My father was diagnosed with CLL after going to the ER for an unrelated issue. My question is, can you be diagnosed from only blood work?

Just got latest tests back and my IgE is nil. Is there anything that can be done to bring this up?

Well I saw my cancer doctor yesterday. I had blood work and my white count is down again. I'm still anemic, its lower again, about 8.6 I think I dont...

Scheduled to start treatment end of the month to have CLL under control. Felt fine otherwise and it’s pretty nerve racking going into a year long treatment....

My well care insurance for medicare part d does not cover Calquence unless I can't tolerate I brutinib. ANY SUGGESTIONS!

I had cll-caused encephalitis in june of 2021. The doctor said by White blood cells went past my blood brain barrier. I was at about 149k wbc at the time. I...

Hello- this month through a series of routine blood work that sent me to a Hematologist I learned that I have CLL. My doctor ran all the genetic markers and...

Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 he was asked to wait and watch 2018- reached Rai stage 3.. FCR was given starting with...

Hi! My husband is currently being diagnosed with CLL age 55 Had a routine blood test with WBC at 17,000 Then doctor said Probably CLL sent us to Oncologist...

Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until...

This came up in my drug recall emails I was wondering if anyone else has heard about it. This is what concerns me about starting a medicine like Zanubrutinib...

Ok so I've got a real dilemma. I'm on W&W. I have two top CLL specialists in two sister hospitals. The first doc I saw , since 2016, works at NY Presbyterian...

Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an...

I am facing a series of injections for my back. I have a slipped disc and they use steroid injections in the back. My body does not like steroids, I am very...

My husband left a sperm sample for IVF after using Imbruvica. Does anybody know if there are any risks for the baby?

My husband ( with CLL and on acalabrutinib) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept...

I was diagnosed about 2 and a half years ago and my Lab Results looking good, in fact today's lab results are better than they were when I first got diagnosed....

Is there anything new on the CD49d+ front (treatments, does it still matter, etc.)? It’s been said that “cd49d + makes it more difficult for ibrutinib to do...

I am 90 years old. Have been diagnosed with CCL for over 10 years. In last 5 years, experienced drenching night sweats. Now have 3 drenching sweats each...