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Disappointing
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
Dogdoo
in
Restless Legs Syndrome
5 years ago
Can’t sleep
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
Mommalicious
in
Restless Legs Syndrome
5 years ago
Has anyone tried medical marijuana?
If so have you found it helpful? Which symptoms has it helped? Has it replaced any of your medications? What CBD/THC mix do you use? I'm curious because it seems to have less side-effects than some medication.
If so have you found it helpful? Which symptoms has it helped? Has it replaced any of your medications? What CBD/THC mix do you use? I'm curious because it seems to have less side-effects than some medication.
Hidden
in
Ataxia UK
5 years ago
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CLL and Medical Marijuana
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern with a compromised immune system but the same can be said for Chemo. ?
Madprofessor22
in
CLL Support
5 years ago
Update: AR-V7 & peeing problems
A couple of months ago my husband tested positive for AR-V7, today's result came back 'no detection found'...we're excited about that news! I had posted earlier about the peeing problems, not feeling like he could empty and not being able to go at all for a day or so just a couple of weeks ago. When
A couple of months ago my husband tested positive for AR-V7, today's result came back 'no detection found'...we're excited about that news! I had posted earlier about the peeing problems, not feeling like he could empty and not being able to go at all for a day or so just a couple of weeks ago. When
Advo__cate
in
Advanced Prostate Cancer
5 years ago
Doctors not prescribing medicinal cannabis due to lack of clinical trials
Doctors not prescribing medicinal cannabis due to lack of clinical trials https://www.theguardian.com/society/2019/jul/03/doctors-not-prescribing-medicinal-cannabis-due-to-lack-of-clinical-trials? Britain still way behind when it comes to the old medical Marijuana.
Doctors not prescribing medicinal cannabis due to lack of clinical trials https://www.theguardian.com/society/2019/jul/03/doctors-not-prescribing-medicinal-cannabis-due-to-lack-of-clinical-trials? Britain still way behind when it comes to the old medical Marijuana.
monkeybus
in
AMN EASIER
5 years ago
First post
Just a little about me, diagnosed June 2016, started with sinemet 100mg three times a day, now three years later meds look like this. Sinemet 250mg four times a day, requip 2mg once daily extended release. Having problems with dyskinesia, bad leg and foot cramps, will be seeing a new neurologist in October
Just a little about me, diagnosed June 2016, started with sinemet 100mg three times a day, now three years later meds look like this. Sinemet 250mg four times a day, requip 2mg once daily extended release. Having problems with dyskinesia, bad leg and foot cramps, will be seeing a new neurologist in October
TheLordsWeapon
in
Cure Parkinson's
5 years ago
My OCD, Anxiety, and Panic.
Hello everyone. I’m new to the community, but have been having a really tough time since October of 2018. I guess I can give some background. I was diagnosed with OCD/Anxiety/Depression when I was 14. Back then, I did a lot of hand washing, checking, organizing, and had intrusive thoughts about bad
Hello everyone. I’m new to the community, but have been having a really tough time since October of 2018. I guess I can give some background. I was diagnosed with OCD/Anxiety/Depression when I was 14. Back then, I did a lot of hand washing, checking, organizing, and had intrusive thoughts about bad
OCDBass
in
My OCD Community
5 years ago
opioid induced hyperalgesia
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
Hey guys, So we've been in a weird lull, no new news yet, but scans upcoming which are causing us a lot of anxiety. Most recently my mom has been in constant pain and discomfort and I thought it might be the meds she has been on for so long. Turns out I was right. They have been making her feel worse
H_Daughter
in
Melanoma Caregivers
5 years ago
May have RLS - Just got ferritin reading
Went to a Pulmonary doctor for another topic, and during discussion, he said I may have RLS. I checked symptoms, and it sounds just like me. Diagnosis is not 'finalized' yet. I just got results back from getting a ferritin reading, and it came back at 15.5. Says it is low, but does not tell me normal
Went to a Pulmonary doctor for another topic, and during discussion, he said I may have RLS. I checked symptoms, and it sounds just like me. Diagnosis is not 'finalized' yet. I just got results back from getting a ferritin reading, and it came back at 15.5. Says it is low, but does not tell me normal
56_kruiser
in
Restless Legs Syndrome
5 years ago
Marijuana!!
I signed one of those online petitions for some mother to get Cannabis oil prescribed for her son. Only medicine that works. I forgot all about it. Received this email earlier. Hi all. Just to give you an update. The law changed allowing doctors to prescribe medical cannabis, however not one single
I signed one of those online petitions for some mother to get Cannabis oil prescribed for her son. Only medicine that works. I forgot all about it. Received this email earlier. Hi all. Just to give you an update. The law changed allowing doctors to prescribe medical cannabis, however not one single
monkeybus
in
AMN EASIER
5 years ago
CBD/ medical marijuana??
Hi everyone. I am in the UK and I have lupus, fibromyalgia, Raynaud, myositis IBS and the list goes on. I don't know very much about CBD or medical marijuana and wanted to know if you can be prescribed it on NHS or what's the best thing for lupus. I went to a stall the other day and the guy was showing
Hi everyone. I am in the UK and I have lupus, fibromyalgia, Raynaud, myositis IBS and the list goes on. I don't know very much about CBD or medical marijuana and wanted to know if you can be prescribed it on NHS or what's the best thing for lupus. I went to a stall the other day and the guy was showing
Karm
in
LUPUS UK
5 years ago
PBC and azathioprine vs medical marijuana
My doctor recently prescribed me 50 mg daily azathioprine six weeks ago and now I have symptoms of IBS, no solid stool for a week, stomach discomfort. I’m thinking of lowering my dose to 25 MG daily, and possibly weaning myself off. Needless to say, it’s affecting my quality-of-life. I’ve read studies
My doctor recently prescribed me 50 mg daily azathioprine six weeks ago and now I have symptoms of IBS, no solid stool for a week, stomach discomfort. I’m thinking of lowering my dose to 25 MG daily, and possibly weaning myself off. Needless to say, it’s affecting my quality-of-life. I’ve read studies
W015449
in
PBCers Organization
5 years ago
Introduction
Hello all; READ ON OR NOT? I was drawn in by so many from this site because of similar problems. Always Looking for natural ways to help with pain. I was diagnosed in 2004 with Fibro, CFS and migraines. Many other issues too much to mention. I’d say my health declined once the migraines started in 1993
Hello all; READ ON OR NOT? I was drawn in by so many from this site because of similar problems. Always Looking for natural ways to help with pain. I was diagnosed in 2004 with Fibro, CFS and migraines. Many other issues too much to mention. I’d say my health declined once the migraines started in 1993
Sagitarius3
in
Fibromyalgia Action UK
5 years ago
Panic Day
I've always been afraid to be like an abusive ex I had. And of course, in trying to be the opposite I've found myself feeling so similar. My current partner who I've been with for a few years recently had a talk with me about how she can't be my caretaker, about how I need to grow up, about how I need
I've always been afraid to be like an abusive ex I had. And of course, in trying to be the opposite I've found myself feeling so similar. My current partner who I've been with for a few years recently had a talk with me about how she can't be my caretaker, about how I need to grow up, about how I need
Bird_in_Hand
in
Anxiety and Depression Support
5 years ago
Medical marijuana and CBD products for AI
I was not sure if I am able to post this question in this community forum so if it's against the rules or offensive to anyone please let me know and I will remove it right away Thank you. Hello everyone, I have lupus, Sjogren's, fibromyalgia and vasculitis. I am in chronic pain all the time from one
I was not sure if I am able to post this question in this community forum so if it's against the rules or offensive to anyone please let me know and I will remove it right away Thank you. Hello everyone, I have lupus, Sjogren's, fibromyalgia and vasculitis. I am in chronic pain all the time from one
Kismetsoul
in
LUPUS UK
5 years ago
Medical cannabis, safe, effective for elderly
https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&uac=97343EZ&impID=1971977&faf=1 Interesting read, particularly reduction of opioids. Might give reassurance for some to try? (Might not help PMR directly, but a good night’s sleep will help, plus any additional aches and pains
https://www.medscape.com/viewarticle/912624?src=WNL_infoc_190523_MSCPEDIT_AGS&uac=97343EZ&impID=1971977&faf=1 Interesting read, particularly reduction of opioids. Might give reassurance for some to try? (Might not help PMR directly, but a good night’s sleep will help, plus any additional aches and pains
Soraya_PMR
in
PMRGCAuk
5 years ago
rls info
What works for me is quinine (found in indian tonic water by Schweppes)....usually 1, 300 ml bottle....combined with standing leg stretches. I strongly recommend to study medical cannabis sites as this medicine is seldom mentioned -covered up by pharmacy co's. Possibly CBD component of cannabis would
What works for me is quinine (found in indian tonic water by Schweppes)....usually 1, 300 ml bottle....combined with standing leg stretches. I strongly recommend to study medical cannabis sites as this medicine is seldom mentioned -covered up by pharmacy co's. Possibly CBD component of cannabis would
finder1234
in
Restless Legs Syndrome
5 years ago
PBC and edible medical marijuana
I have read conflicting reports stating marijuana improves liver conditions and other reports that say it is bad for your liver. I know this is a new frontier (at least in the U.S.) but I have terrible insomnia and the cocktail of medications I am taking has never worked. I am obviously an extremely
I have read conflicting reports stating marijuana improves liver conditions and other reports that say it is bad for your liver. I know this is a new frontier (at least in the U.S.) but I have terrible insomnia and the cocktail of medications I am taking has never worked. I am obviously an extremely
niknob
in
PBC Foundation
5 years ago
Weed The People
Now streaming on Netflix. "Buoyed by hopeful experiences with medical marijuana, physicians and parents of children with cancer call for more research of its healing potential." https://www.netflix.com/title/81016247 https://www.youtube.com/watch?v=K_GyzNoLeqg
Now streaming on Netflix. "Buoyed by hopeful experiences with medical marijuana, physicians and parents of children with cancer call for more research of its healing potential." https://www.netflix.com/title/81016247 https://www.youtube.com/watch?v=K_GyzNoLeqg
SsamO
in
Advanced Prostate Cancer
5 years ago
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