Introduction

[Sagitarius3]

Hello all; READ ON OR NOT? I was drawn in by so many from this site because of similar problems. Always Looking for natural ways to help with pain. I was diagnosed in 2004 with Fibro, CFS and migraines. Many other issues too much to mention. I’d say my health declined once the migraines started in 1993 and I was 35, after having 3 children. I’ve had several ct scans mri’s And blood tests galore. I’ve had to be my own advocate. I’m on 400mg Gabapentin nightly cause I can’t take it during the day makes me brain fog and too tired! Doctors had me on so many medications one side effect led to another medication and side effects so severe and yet my doctors wouldn’t listen! I’m a huge advocate for natural and Healthy resources and learning more about why people get Fibro? I wish I could be a study case cause I would like to find a cure. I use medical marijuana and it really has made a difference. It took me 3 years to find what works best for me without getting high! It took 2 years for me to adjust to a slower pace lifestyle. I was so active from raising 3 kids, PTA mom, working full time then going to part time and even running a small business to letting it all go so I could manage my health! I’ve learned to take one day at a time. I pray, meditate have a therapeutic spa I use daily sometimes 2x a day with weekly massages and healthy eating! I still cannot manage my pain completely. I have good days, days I’m happy I manage to get up and days I wish it would all end. This is a more debilitating illness than Doctors are willing to admit and yet they swear it is not fatal nor life threatening! How can constant pain not make a person crazy? My first 2-3 years I thought I was dying and doctors placed all symptoms on Fibro? I have been and still going to doctors and they find stuff and add another pill that I refuse to take! On a good note, I have a very good supporting husband and children. I came from Foster homes and believe my Fibro is linked to child abuse and stress. Some say it’s emotional and mental. I believe keeping a good positive attitude is necessary! On the other hand if I wake from a not so good sleep I cannot always stay happy if you feel hungover from lack of sleep to flu achy cause you walked or stood over 30 minutes the day before and worst did too much now have a headache that will last at least 3 days cause Alieve or any meds don’t help! Not to mention the muscle spasms and cramps and restless legs that keep me up all night! I then stay home and turn to medical marijuana for relief! I have so much to share but don’t want to kill this site with my whining. Last note... I read someone asking about kidney problems! Yes, I’ve passed kidney stones about every 2-3 years one lasted 3 months and when I passed it it was the size of a small pea. I know what pain is and I don’t believe Fibro is mental! It is real! Some have it from painful surgeries gone wrong, menopause, car accidents or any trauma! Even our soldiers are coming home with it! I’ve educated myself! I recommend we all do that! Praying for a cure! So sorry anyone should live with so much pain! Be good to our children because I believe child abuse is a huge factor in my situation! Hope I didn’t burn your ears I feel my story might impact someone. Thank you for listening and much support to all! 🙏😍🙏

FYI... I have, FIBRO PLUS

Diabetes, rls, tremors, ibs and gastric problems such as diverticulosis, gerd, hiatal hernia, ulcerative colitis, migraines and now being treated for bone spurs herniated discs in the lumbar and cervical areas! Recently diagnosed bursitis in the hips! HEY BUT I DONT HAVE CANCER AND IM NOT DYING! So such as life! I get to wake up and be thankful cause it could be worst! Keeping it positive!

[rosie-2015]

Hi sagittarius3

I'm so sorry to hear about all the pain and stress that you have gone through, it's like the others on the forum including myself, it takes a long time to get our medication sorted out, I'm still trying but like you I am blessed with a loving understanding husband and son's, well most of the time lol they really try but it's like most things unless you're going through it yourself it must be really hard for them. I hope you have the same problem with my spine and disc's could you please tell me what you use for the spurs, I would really appreciate it as I haven't been offered anything extra. I hope you have as pain free a night as possible Gentle hugs Rosie xx ❤️

[Sagitarius3 in reply to rosie-2015]

Hello Rosie2015; in short.... I read bone spurs can be grinned down by surgery but very risky and neurosurgeons avoid this procedure unless you are severely debilitating!! (Read they can grow back too) i hope I don’t get this bad and I avoid surgery at all cost! (I educated myself on this and had no clue, but now reek the benefits to marijuana use) I use medical marijuana personally I believe for me the side effects are greatly less in long use. I highly recommend a hybrid and using a medical dispensary. I use edibles and wax pens as I have never smoked and it burns for me to inhale. I worked with a dispensary for three years through trial and error along with the strength. It wasn’t easy but I now know how much and how often and takes my migraine away in 10 seconds with a wax hybrid pen! The strains tell you if they help pain, headaches, etc. if you or anyone needs help on this use I would happily share my detailed experience. No doctors will help or guide you but all my doctors know I use and never argue! If anything they ask me does it help! YES! In detail-I had ct and mri’s And last year I saw a neurosurgeon who claimed I had bone spurs not yet reaching into the central nervous spinal cord and at that time was only having lumbar pain. Physical therapist and pain management would not treat me saying I needed surgery. (Was going to inject my neck with prednisone, I refused) After contacting my insurance insisting I wanted a neurosurgeon opinion when I went to see the Neurosurgeon he said do nothing for now. ( Dec2018). I went to physical therapy for several months until the therapist said he couldn’t do any more for me and sometimes when I arrived in pain he only put hot and cold packs on me. Last month my neck locked up and my left arm went numb, painful and pins n needles. (Also passed kidney stone) My GP gave me prednisone for the inflammation to get some immediate relief and took X-ray said bulging disc and seeing Neurosurgeon on July 8! My chiropractor says he wants new mri to see if disc herniated and won’t touch me anymore! Hope my July appointment gives me some answers and pain relief?! Sorry for the lengthy reply! Have a great weekend and hope you get some relief! Always learning how to relieve pain naturally! Gentle hugs back!🤗

[rosie-2015 in reply to Sagitarius3]

Hi thanks for getting back to me so quickly, I know what you mean about surgery, I told my gp year's ago when we first discussed everything about surgery that it wouldn't be a road I would be going down. I'm not saying that it wouldn't be right for some people but I feel I'm too old now and along with my other health problems I don't think it would be feasible. I'll keep taking the gabapentin because they definitely help me along with solpodol. I hope you have as pain free a night as possible

Gentle hugs Rosie xx

[Winnie2411]

Hi Sagittarius3

Thank you so much for sharing your experience and I found this so helpful. I was diagnosed a few years ago but to be honest I was able to keep going relatively normally apart from the constant ache I could get on with my life in work and exercise.

Unfortunately over the last 9 months symptoms seemed to have escalated rapidly. I was experiencing a lot of stress at work and I think this boosted the Fibro. It started as though I was having a heart attack and the doctors told me it was purely anxiety, since then my health anxiety has become debilitating with constant worries about dying as I feel my body is just so weak, my chest is always painful with a burning sensation in my breasts, I have had tests and it’s not cardiac luckily. I have become obsessed with checking my Fitbit for my heart rate as I feel it racing! I constantly feel like I have flu and worry about cancer.

I am 37 and still have 3 young children and work in a high pressured job. I am hanging on by a thread but hearing you can come out the other side is so reassuring. I am normally such a positive person and that’s how I think i kept it at bay for some time but recently I have been finding it so difficult just to keep going to work and playing with my children, my anxiety due to the pain is taking the enjoyment out of life.

I have started mindfulness to get me to sleep which is helping and started anxiety medication citalopran (due to panic attacks) I am also starting cognitive behavioural therapy to see if this helps. I have never really taken any medication so find this difficult. Any suggestions would be really appreciated but thank you for the comfort in knowing I am not alone as you start to think your going crazy!!

[Sagitarius3 in reply to Winnie2411]

Hello, hope you are having a better weekend. Hopefully you get these two days off. I’m happy to share because I know the life change took so long as for the acceptance of such diagnosis. I thought I had everything. The chest pain and anxiety will subside in time as you start to accept it which this is for whomever goes through this deals differently. Some immediate accept it. I just had chronic fatigue after my years of walking 2 miles daily after several months I was forced to see a doctor feeling flush all over and couldn’t sit for five minutes without falling asleep! Stopped all excercise after GP decided immediately I needed a Rheumatologist to rule all autoimmune diseases out and concluded I have Fibro! Immediately my husband read with me the brochure and was sad I had this. I was your age with 3 children and had suffered with migraines and sinus infections not to mention my 17 year old had a severe case of meningitis that took me 3 months to carry him through health. I believe me mum instincts took over and when things settled I broke. Suffered since! Not to mention my past life experiences. I’m yet to write a book. I want to help people! Thank you for sharing! Always learning! Gentle hugs!🤗