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PBCers Organization

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Liver Antibody panel suggests PBC - I am feeling very scared

Hi everyone, My GP ordered a liver antibody panel due to consistently slightly ...

Very newly diagnosed PBC still undergoing testing

Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had...

Cost of Ocaliva

Anyone knows what's the cost of Ocaliva in the US? I heard that it is extremely ...

Greenfern

Hi Everyone, Has anyone figured out a way to alleviate the itching from PBC? M...

Urso blocks COVID - research today from Addenbrooke's Hospital, Cambridge

15h Dec 2022 at 14:15 UK time : On the BBC World Service programme Healthcheck, ...

Anyone with PBC tried the carnivore diet?

I have been taking Ursodiol since about 2015 and my liver enzymes have been well...

Could Members With Experience of PBC Without A Gallbladder Feels Like , Is Treatment and Diagnosis done the same way? Thanks

I've got a number of Chronic Health Conditions . I had a gallbladder removal in ...

Post op liver biopsy pain

I am a 66 year old female diagnosed with PBC in 2014. I had a liver biopsy 3 day...

Swelling, muscle aches and joint pain

I was diagnosed earlier this month. Sine I've been on the medication it seems li...

oral thrush

Always get oral thrush after antibiotics.

PBC and AIH - other autoimmune issues.

Does anyone here have issues with tremors and sudden body jerks from head to toe...

Alcohol and PBC and Urso

I have an event and want to know if I can have one drink. I stopped drinking sin...

Dosage of Ursodiol

Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I h...

High Alkaline Phosphatase

I’m worried.. I’ve been on Urso for 3 months, my ALT and AST came back normal bu...

Lfts back up

I posted this in Pbc UK. I though I'd do the same here. Well just a few mont...

High cholesterol particularly LDL

I have been diagnosed with high LDL in 2006 and put on Crestor 10mg OD since tha...

My intermittent fasting journey has started

I am only a couple days in to intermittent fasting. Im doing 16/8. I feel ok so ...

Symptoms of PBC

This might be a strange question…but apart from feeling liver pain, fatigue and ...

new to pbc

hi , I have been doing intermittent fasting for about 2 months, seems to have a...

PBCer’s anyone had a Total Knee Arthroplasty?

I have PBC and I have to have a total knee arthoplasty in October of this year a...

PBC at 23..

I’m only 23 and I’ve just been diagnosed with PBC last week, truth be told I’m t...

Just Diagnosed

Hello. I have just been diagnosed with PBC and am scared. Thank you for any supp...

Natural remedies to lower cholesterol

Has anybody with PBC & high cholesterol tried 1MD Nutrition CholestMD - They cla...

2022 PBC Patient Education Conference

Conference registration is open - use link for details and to register.

gallbladder

having gall bladder attacks, avoiding surgery

Could we have caught it super early?

Hi. I was diagnosed with NAFLD and PBC late January of this year by my GI. My bl...

IV Alpha Lipoic Acid Treatment for PBC and autoimmune hepatitis

Has anyone looked into or done the IV alpha lipoic acid infusion treatment for ...

Ayurvedic medicine as a supplement to Ursodoil to cure PCB.

I’ve been looking for 10 years for a western trained pbc doctor specialist who i...

Urso without a definitive diagnosis

Has anyone been treated with URSO without a definitive diagnosis? If one doesn't...

Clinical Trials in Rare Disease a Discussion of the importance and the Process with Dr Alan Bonder.

Register for this event by February 24, 2022 4 PM EST to learn about the importa...
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PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) informati...

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The PBCers Organization is a Support System for Primary Biliary Cholangitis patients, family & friends. We offer PBC education, help, support, raising funds for research & advocate public awareness.