PBCers Organization | HealthUnlocked

PBCers Organization

1,500 members•296 posts

transplant neuropsychology

Hi everyone! I’m an undergraduate senior psychology student, and I'm conducting a research study to explore the neuropsychological experiences of solid organ...

Hi everyone! I’m an undergraduate senior psychology student, and I'm conducting ...

transplantpsych

•8 days ago

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Brittle nails after starting ursodiol?

I've been on ursodiol about 8 months now and for the past month or so have had brittle nails that have been breaking far enough in that it's not safe to cut...

I've been on ursodiol about 8 months now and for the past month or so have had b...

HikeMoHike

•19 days ago

1 Reply

Weight gain after urso?

Have been on Urso about 5 years. My specialty pharmacy will no longer have so they didn't refill and didn't notify me. As a result no meds for 2 months....

Have been on Urso about 5 years. My specialty pharmacy will no longer have so t...

Willdi

•1 month ago

1 Reply

Do I need to be concerned?

I am a 75 year old female in very good health. About 2 years ago, I started having itching on my right hip for no reason. Sometimes also on the bottom of my...

I am a 75 year old female in very good health. About 2 years ago, I started hav...

MycatJinx

•2 months ago

1 Reply

Males with PBC? Itch?

Hello I understand that there are few males that have developed this terrible disease. Probably less than 8 % and growing due to improved diagnostic...

Hello I understand that there are few males that have developed this terrible di...

CBCB

•3 months ago

5 Replies

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Updated Community Guidelines

Official Launch of PBC Patient Registry

Community Guidelines

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About us

PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) informati...

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The PBCers Organization is a Support System for Primary Biliary Cholangitis patients, family & friends. We offer PBC education, help, support, raising funds for research & advocate public awareness.

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