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So Far, So Good.
Hi everyone, I hope you all had a great Xmas. I only joined this group recently after finding it in the net last week. Although it was sad to read how badly people were suffering, it was also a relief to read that I'm not crazy! My story is similar to most. I'm 34, and my RLS started when I was in my
Hi everyone, I hope you all had a great Xmas. I only joined this group recently after finding it in the net last week. Although it was sad to read how badly people were suffering, it was also a relief to read that I'm not crazy! My story is similar to most. I'm 34, and my RLS started when I was in my
Benjii7
in
Restless Legs Syndrome
9 years ago
A little bit of magic fairy dust
Hello my friends I expect like myself you have had a good Christmas being surrounded by your loved ones and entertaining them but are now suffering like hell for it. My partner was fantastic he bought all the food ready to just put in the oven and desserts ready to go go but still I'm in agony. Last
Hello my friends I expect like myself you have had a good Christmas being surrounded by your loved ones and entertaining them but are now suffering like hell for it. My partner was fantastic he bought all the food ready to just put in the oven and desserts ready to go go but still I'm in agony. Last
Sallyannemay
in
Fibromyalgia Action UK
9 years ago
Fed up of pain!
Hi all I have be diagnosed with endometriosis for about 2/3 years now, when I was first diagnosed I had a laparoscopy and then put on a course of injection every 4 weeks. Everything was going well I had no periods I had virtually no pain. I then came to the end of that treatment and had the marina coil
Hi all I have be diagnosed with endometriosis for about 2/3 years now, when I was first diagnosed I had a laparoscopy and then put on a course of injection every 4 weeks. Everything was going well I had no periods I had virtually no pain. I then came to the end of that treatment and had the marina coil
SamanthaJane
in
Endometriosis UK
9 years ago
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Fibromyalgia and thyroid B12 deficiency
Good morning , I've been diagnosed with fibromyalgia, hyper mobility and sacroiliac joint disorder. I primarily suffer with severe joint pain ( I use a walking stick or crutches) exhaustion headaches lIBS and more. I take a combination of tramadol paracetamol codeine and duloxitaine to function . My
Good morning , I've been diagnosed with fibromyalgia, hyper mobility and sacroiliac joint disorder. I primarily suffer with severe joint pain ( I use a walking stick or crutches) exhaustion headaches lIBS and more. I take a combination of tramadol paracetamol codeine and duloxitaine to function . My
Mrsbear0512
in
Thyroid UK
9 years ago
Rules taking Ibuprofen or other stronger pain killer
Some kind person has just given me a bottle of ginger wine! but the Sciatica like pains have accelerated and developed into something more severe, Dr has put me on Co-dydramol 2x4 daily, extreme pains from the Buttocks ,down the legs, crippling and use of stick now and the physio called in the Senior
Some kind person has just given me a bottle of ginger wine! but the Sciatica like pains have accelerated and developed into something more severe, Dr has put me on Co-dydramol 2x4 daily, extreme pains from the Buttocks ,down the legs, crippling and use of stick now and the physio called in the Senior
Hidden
in
PMRGCAuk
9 years ago
Low White blood cell level
Hi Everyone, I am 14 weeks post transplant and everything has gone really well so far. Then I get a call from the transplant nurses after my fortnightly visit to the hospital this week, my wbc had gone down to 1, I had to go back to hospital the next day they have stopped my valgancyclovir and co trimoxazole
Hi Everyone, I am 14 weeks post transplant and everything has gone really well so far. Then I get a call from the transplant nurses after my fortnightly visit to the hospital this week, my wbc had gone down to 1, I had to go back to hospital the next day they have stopped my valgancyclovir and co trimoxazole
Stonebroke
in
Kidney Transplant Patient Support
9 years ago
Are supplements causing a reaction?
Hi I am taking the following Jarrows supplements: B-Right, Methyl Folate & Methyl B12 together with calcium, magnesium, zinc, biotin, COD liver oil with A & D vits. I also take propranolol for migraines. The Jarrows items have only been added in the last month. Has anyone experienced an all over rash
Hi I am taking the following Jarrows supplements: B-Right, Methyl Folate & Methyl B12 together with calcium, magnesium, zinc, biotin, COD liver oil with A & D vits. I also take propranolol for migraines. The Jarrows items have only been added in the last month. Has anyone experienced an all over rash
Nainey
in
Pernicious Anaemia Society
9 years ago
Pelvic girdle pain
This is my first post , have been following this site for a couple of months and find it excellent, very informative and supportive. I have had pain in hips, lower back, knees and thighs for about 9months, have had steroid injections to knee twice but only lasted about 2 weeks and pain returned. In
This is my first post , have been following this site for a couple of months and find it excellent, very informative and supportive. I have had pain in hips, lower back, knees and thighs for about 9months, have had steroid injections to knee twice but only lasted about 2 weeks and pain returned. In
Hidden
in
PMRGCAuk
9 years ago
I don't know what to do anymore :( Migraine for 18 days straight..
Hi All, I'm at the end of my tether and I really need some help/advice. I have had migraines for 10 years now, usually stress and hormone related. Tried about 4 different preventative treatments, none worked so I 'manage' on triptans. ... On the 23rd Nov 15 I had an attack - I put this down to
Hi All, I'm at the end of my tether and I really need some help/advice. I have had migraines for 10 years now, usually stress and hormone related. Tried about 4 different preventative treatments, none worked so I 'manage' on triptans. ... On the 23rd Nov 15 I had an attack - I put this down to
shuk
in
National Migraine Centre
9 years ago
Only half of blood test results
After being diagnosed borderline hypo , getting horrendous symptoms, and after a lot of faffing about back and forward from the GP and insisting on referral to an Endo, I started taking 25mg levo in July, then upped to 50mg from Sept on advice of Endo and he said to have a further blood test 3 months
After being diagnosed borderline hypo , getting horrendous symptoms, and after a lot of faffing about back and forward from the GP and insisting on referral to an Endo, I started taking 25mg levo in July, then upped to 50mg from Sept on advice of Endo and he said to have a further blood test 3 months
Joell
in
Thyroid UK
9 years ago
refused a lab!!
hello ladies, hope your all coping ok. I had a emerg apt with my gyno consultant last week as I was admitted into hospital because of the pain from my endo. my gp is brilliant has she has suffered from this disease also she sent me back to the consultant. I am recently diagnosed with endo just with a
hello ladies, hope your all coping ok. I had a emerg apt with my gyno consultant last week as I was admitted into hospital because of the pain from my endo. my gp is brilliant has she has suffered from this disease also she sent me back to the consultant. I am recently diagnosed with endo just with a
rebecca86
in
Endometriosis UK
9 years ago
Update on my alternative therapies
I wrote a long post yesterday but it appears not to have posted successfully, so forgive me if this turns out to be a duplication. PMR: I have had my fourth low level light treatment. The physiotherapist says the muscles in my back are more relaxed than they were when I started, and certainly my back
I wrote a long post yesterday but it appears not to have posted successfully, so forgive me if this turns out to be a duplication. PMR: I have had my fourth low level light treatment. The physiotherapist says the muscles in my back are more relaxed than they were when I started, and certainly my back
HeronNS
in
PMRGCAuk
9 years ago
Pain relief
Good morning everyone hope your all pain free this damp cold morning I'm just wondering what pain relief everyone's on I been given co codamol but can't take em as thay make me sleep
Good morning everyone hope your all pain free this damp cold morning I'm just wondering what pain relief everyone's on I been given co codamol but can't take em as thay make me sleep
Kimfrombelvedere
in
NRAS
9 years ago
Cod liver oil
so someone today told me that cod liver oil can help to burn fat and therefore lose weight? Really?!
so someone today told me that cod liver oil can help to burn fat and therefore lose weight? Really?!
Wood05
in
Weight Loss Support
9 years ago
Ooh might actually be getting somewhere!
Hi all, Hope you are all fab! The last month has been its usual round of horrendous ness but with a new symptom/thing thrown in for good measure. I am on low dose anti biotics for recurrent uti and they had been doing brill. Then I started to get a dull thobbing ache in my lower left side/back. Didn't
Hi all, Hope you are all fab! The last month has been its usual round of horrendous ness but with a new symptom/thing thrown in for good measure. I am on low dose anti biotics for recurrent uti and they had been doing brill. Then I started to get a dull thobbing ache in my lower left side/back. Didn't
Hidden
in
LUPUS UK
9 years ago
Adenomyosis
I've recently been diagnosed with adenomyosis as well as Endo. I've got a few things wrong Endo which was removed from everywhere including bowel and bladder in March this year and I've got interstitial cystitis and my bowel has collapsed since my Endo surgery in March. I kinda know now what pain is
I've recently been diagnosed with adenomyosis as well as Endo. I've got a few things wrong Endo which was removed from everywhere including bowel and bladder in March this year and I've got interstitial cystitis and my bowel has collapsed since my Endo surgery in March. I kinda know now what pain is
emmaibiza
in
Endometriosis UK
9 years ago
Statins are the biggest money spinner in the world, no wonder that they want us all to be on them, money money and money!!
My Mum was on statins, she had dementia, a very clever woman indeed, if I had known what I know now, I would never have given her a statin, or the calcium tablets. Both of which contributed to her death. Good article from the Daily Telegraph, but there is so much info out there, as to why we should
My Mum was on statins, she had dementia, a very clever woman indeed, if I had known what I know now, I would never have given her a statin, or the calcium tablets. Both of which contributed to her death. Good article from the Daily Telegraph, but there is so much info out there, as to why we should
langdocienne
in
Thyroid UK
9 years ago
Endo and Fibroids?
Hi all, I am so relieved to find this site as I sit here with my hot water bottle dosed yet again on max ibuprofen and considering taking a co-codamol too as the pain is so bad in my back and hips. I have always had heavy periods and taken it that that is just the way it is for some women. However,
Hi all, I am so relieved to find this site as I sit here with my hot water bottle dosed yet again on max ibuprofen and considering taking a co-codamol too as the pain is so bad in my back and hips. I have always had heavy periods and taken it that that is just the way it is for some women. However,
Janey1212
in
Endometriosis UK
9 years ago
Nice article from HypothryroidMom, interesting about the hair loss.
Maybe I should start taking oil of evening primrose. Already on day 5 of my Rosita Extra virgin cod liver oil, which has the omegas in it, as she mentions. I have researched, and found that this one, is really the only good one, totally natural, not heated at all, and no supplements added back in,
Maybe I should start taking oil of evening primrose. Already on day 5 of my Rosita Extra virgin cod liver oil, which has the omegas in it, as she mentions. I have researched, and found that this one, is really the only good one, totally natural, not heated at all, and no supplements added back in,
langdocienne
in
Thyroid UK
9 years ago
Treatments for RA
Posting on behalf of my husband aged 67. Diagnosed with RA two & half years ago having never been ill in his life before. Symptoms of knee pain, swollen/dead/painful hands. Had bilateral carpel tunnel which worked for 6 months but symptoms now back. Tired, flu like symptoms. Shoulder pain. On 20mg
Posting on behalf of my husband aged 67. Diagnosed with RA two & half years ago having never been ill in his life before. Symptoms of knee pain, swollen/dead/painful hands. Had bilateral carpel tunnel which worked for 6 months but symptoms now back. Tired, flu like symptoms. Shoulder pain. On 20mg
BobbyHodge
in
NRAS
9 years ago
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