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Hypomyelination and congenital cataract
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GP cancelled my free prescriptions as doesn't classify ET as a blood cancer, and even if it was, I'm not recieving ongoing treatment!?
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
Well Folks, I've got a personal battle to fight with my GP.... Having recently recieved a letter from the NHS Business Services Authority informing me that my NHS Medical exemption certificate is about to expire - the one I was allocated when originally diagnosed with ET - the letter requested that
anewpath
in
MPN Voice
8 months ago
natural modified fet
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
keepfaith1982
in
Fertility Network UK
6 months ago
Not about advanced PCa, but might be useful: curcumin and BPH
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
The nano-micellar curcumin improves International Prostate Symptoms Score (IPSS) in patients with benign prostatic hyperplasia: a randomized clinical trial https://pubmed.ncbi.nlm.nih.gov/37458774/
Maxone73
in
Advanced Prostate Cancer
8 months ago
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Is Ozone Therapy effective?
I have a close friend who I respect her opinion and she insists that Ozone Therapy would help fight cancer. What say the great minds here? Ozone Therapy for Tumor Oxygenation: a Pilot Study - PMC Systemic Review: Ozone: A Potential New Chemotherapy - PMC Frontiers | Ozone therapy for high-grade glioma
I have a close friend who I respect her opinion and she insists that Ozone Therapy would help fight cancer. What say the great minds here? Ozone Therapy for Tumor Oxygenation: a Pilot Study - PMC Systemic Review: Ozone: A Potential New Chemotherapy - PMC Frontiers | Ozone therapy for high-grade glioma
SViking
in
Advanced Prostate Cancer
8 months ago
Last vitamin results
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
Thywotsit
in
Thyroid UK
6 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
7 months ago
V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
3 months ago
Best friend has cancer
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
My best friend has stage 4 colon cancer, and we are on opposite sides of the country. I'm so worried for him and upset, and the oncologist says he can't have chemo until he heals from his recent surgeries. I'm almost completely gutted with concern for my friend. Any support or insight would be appreciated
Skydreamer42
in
Colon Cancer Connected
8 months ago
Oesophageal Sphincter
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
Hello. My wife had gastro-oesophageal cancer 12 years ago and had surgery to remove the cancer. Thankfully all was successful and she leads a very normal life. As one knows, post surgery one cannot lie down flat as the oesophageal sphincter has been removed thus causing acid to come up from the stomach
CarlF
in
Oesophageal & Gastric Cancer
8 months ago
Gastric endo - help!
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
applebird
in
Endometriosis UK
6 months ago
Panic disorder
suffering from panic disorder for long time. day's ago decided to face my fear . It's make me anxious all the time with less physical symptom . Any suggestions?
suffering from panic disorder for long time. day's ago decided to face my fear . It's make me anxious all the time with less physical symptom . Any suggestions?
Jahid9912
in
Anxiety and Depression Support
3 months ago
High Folate with PA terrible GP
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
EllaNore
in
Pernicious Anaemia Society
6 months ago
Not about PCa, but worth checking...CRISPR in oncology phase 1-2
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
"A clinical trial to assess the safety and efficacy of genetically-engineered, neoantigen-specific Tumor Infiltrating Lymphocytes (TIL) in which the intracellular immune checkpoint CISH has been inhibited using CRISPR gene editing for the treatment of Gastro-Intestinal (GI) Cancer." https://www.clinicaltrials.gov
Maxone73
in
Advanced Prostate Cancer
8 months ago
Any ladies had cytoreductive surgery for recurrence?
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in Chemotherapy this time with Carly? A year ago my cancer came back after over 4 years NED. I understood the CT scan had caught it early and went
Towergirl
in
My Ovacome
8 months ago
Good news
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Uniquem
in
My Ovacome
8 months ago
Colpermin
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
Almostthere12
in
IBS Network
3 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
8 months ago
everything feels weird
hi, I had a panic attack February last year and I’ve never been the same since. I’m now struggling with depression and anxiety , everyday feels a struggle to get through. Everything looks and feels totally different from what it was like before the panic attack and I am constantly thinking about it.
hi, I had a panic attack February last year and I’ve never been the same since. I’m now struggling with depression and anxiety , everyday feels a struggle to get through. Everything looks and feels totally different from what it was like before the panic attack and I am constantly thinking about it.
Lgns
in
Anxiety and Depression Support
3 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Feeling a bit nervous. What next?
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Skyeplus
in
My Ovacome
8 months ago
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