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Hypomyelination and congenital cataract
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Started bleeding with BMs again.
Good afternoon, I was diagnosed with Ulcerative colitis at the start of May 2024 via colonoscopy. Start of June , I had a bad flare up where I had lots of blood and diarrhea ( up to 12 times day) worse cramps ever. Finding mesalasine tablets in poo. Got admitted 3 days in hospital for dehydration and
Good afternoon, I was diagnosed with Ulcerative colitis at the start of May 2024 via colonoscopy. Start of June , I had a bad flare up where I had lots of blood and diarrhea ( up to 12 times day) worse cramps ever. Finding mesalasine tablets in poo. Got admitted 3 days in hospital for dehydration and
Raerae2781
in
Crohn's and Colitis Support
27 days ago
Fibro my wifes diagnosis
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Ang4john
in
Fibromyalgia Action UK
6 months ago
FDA Clearance of FK-PC101, a Novel Personalized Prostate Cancer Immunotherapy
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
Maxone73
in
Advanced Prostate Cancer
6 months ago
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bile reflux
I thought I would bring you all up to speed on my endoscopy yesterday ( Friday 15 March ). I have to say I was surprised by the results, I have Bile reflux, something I didn’t even know existed. It was a bit of a shock if I am honet. So me being me , I read up about it when I got home, as most things
I thought I would bring you all up to speed on my endoscopy yesterday ( Friday 15 March ). I have to say I was surprised by the results, I have Bile reflux, something I didn’t even know existed. It was a bit of a shock if I am honet. So me being me , I read up about it when I got home, as most things
Popsic
in
Oesophageal & Gastric Cancer
4 months ago
Parkinson’s Active Immunotherapy Medicine Phase 1 Study Positive Results Published
The Phase 1 successfully met its primary outcome measures, demonstrating that UB-312 was generally well-tolerated and induced anti-aggregated α-synuclein (αSyn) antibody responses in healthy volunteers and PD patients. Specifically, 12 of 13 PD patients who completed dosing developed anti-αSyn antibodies
The Phase 1 successfully met its primary outcome measures, demonstrating that UB-312 was generally well-tolerated and induced anti-aggregated α-synuclein (αSyn) antibody responses in healthy volunteers and PD patients. Specifically, 12 of 13 PD patients who completed dosing developed anti-αSyn antibodies
Farooqji
in
Cure Parkinson's
28 days ago
Wondering if iron dose age should vary depending on weight please?
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Hi I usually take Ferrous fumerate to help with iron levels. I’m wondering if this should vary depending on weight please as when I was ordering Three Arrows which is on its way, it asks for weight to work out a daily dose. Mine came to needing between 20 and 40ish a day. I’ve been & until it arrives
Jo5454
in
Pernicious Anaemia Society
28 days ago
Update on dads visit with his MO today
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Radtech40
in
Advanced Prostate Cancer
6 months ago
Retzius Sparing surgeon recommendations
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
UnexpectedPC
in
Prostate Cancer Network
6 months ago
Frozen transfer tips
Hi everyone. I am preparing for a frozen transfer after my fresh transfer failed in February. I had wanted to wait until my cycle was back too normal . I had become disillusioned with all the acupuncture and reflexology and just all the things I’d stopped doing because of TTC for 3 years . Now I
Hi everyone. I am preparing for a frozen transfer after my fresh transfer failed in February. I had wanted to wait until my cycle was back too normal . I had become disillusioned with all the acupuncture and reflexology and just all the things I’d stopped doing because of TTC for 3 years . Now I
Lemons1986
in
Fertility Network UK
29 days ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
6 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
6 months ago
MRI Results Help Please!
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
DarkStar85
in
Endometriosis UK
6 months ago
asking for advice
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
Imakelace
in
Pelvic Pain Support Network
6 months ago
autoimmune gastritis
hi everyone, anyone have any knowledge on links between hashimotos and gastric mucosal disease/autoimmune atrophic gastritis/ biermans disease / thyroid gastric autoimmune syndrome. I spoke to an immunologist who told me links to the above and the association between hashimotos . I have also been tested
hi everyone, anyone have any knowledge on links between hashimotos and gastric mucosal disease/autoimmune atrophic gastritis/ biermans disease / thyroid gastric autoimmune syndrome. I spoke to an immunologist who told me links to the above and the association between hashimotos . I have also been tested
Rowing2
in
Thyroid UK
30 days ago
Predicting Response to Bipolar Androgen Therapy - A Blood Based Biomarker Approach
Recently there has been a number of posts and subsequent responses from members of Fight Prostate Cancer on Bipolar Androgen Therapy. This very recent UroToday video (see link) in which Professor Samuel Denmeade is interviewed by Alicia Morgans might be of interest to some on this forum. In the
Recently there has been a number of posts and subsequent responses from members of Fight Prostate Cancer on Bipolar Androgen Therapy. This very recent UroToday video (see link) in which Professor Samuel Denmeade is interviewed by Alicia Morgans might be of interest to some on this forum. In the
marnieg46
in
Fight Prostate Cancer
30 days ago
hello
After searching through the web I came across this website. I finally went to go see a GI doctor. He asked what were my symptoms? But before I say, he told me he needed blood work done, colonoscopy, an ultrasound. My symptoms are bloating, excess amounts of gas, constipation, diarrhea. I do have a hard
After searching through the web I came across this website. I finally went to go see a GI doctor. He asked what were my symptoms? But before I say, he told me he needed blood work done, colonoscopy, an ultrasound. My symptoms are bloating, excess amounts of gas, constipation, diarrhea. I do have a hard
32321
in
Colon Cancer Connected
1 month ago
Prostate-as-"PCa Factory" - Reasons for Removal?
While reading the bio of forum member, I noted the following advantage to radical prostatectomy (paraphrased):"
No more PCa factory
" As I have written in multiple posts I am enjoying very effective
triplet therapy
against my high volume metastatic prostate cancer. And because my cancer was
While reading the bio of forum member, I noted the following advantage to radical prostatectomy (paraphrased):"
No more PCa factory
" As I have written in multiple posts I am enjoying very effective
triplet therapy
against my high volume metastatic prostate cancer. And because my cancer was
JohnInTheMiddle
in
Advanced Prostate Cancer
6 months ago
The 2024 Advanced Prostate Cancer Consensus Conference (APCCC) meeting-- Chock full of Testosterone...
Greetings FPC Forum Dwellers, Marnie passed me some solid information on the APCCC...and it is all about testosterone... I got you looking now !!! First, the warmup with a case study and the message that when it comes to testosterone recovery, short term ADT can take 18 months and long term ADT to 2
Greetings FPC Forum Dwellers, Marnie passed me some solid information on the APCCC...and it is all about testosterone... I got you looking now !!! First, the warmup with a case study and the message that when it comes to testosterone recovery, short term ADT can take 18 months and long term ADT to 2
NPfisherman
in
Fight Prostate Cancer
1 month ago
Calprotectin still 1800
Calprotectin test back again after last check in February which was 1800 after having alot of blood loss and diarrhea flare-up yet it is still 1800.Gastro appointment on 1st of July booked to discuss but feel very down by this number as I have been eating nothing but oats, almond milk, fish and rice
Calprotectin test back again after last check in February which was 1800 after having alot of blood loss and diarrhea flare-up yet it is still 1800.Gastro appointment on 1st of July booked to discuss but feel very down by this number as I have been eating nothing but oats, almond milk, fish and rice
Sooty712
in
Crohn's and Colitis Support
1 month ago
10dp5dt and less that 1 on Beta hcg blood test so think this must have failed this time.
my clinic still wants me to continue with PIO injections pessaries and test again at 14 days which I think is a bit excessive and a waste of money, pain and even more anguish. I thought the latest clinics say is 12 days post transfer. Does anyone else clinic say 14 days?
my clinic still wants me to continue with PIO injections pessaries and test again at 14 days which I think is a bit excessive and a waste of money, pain and even more anguish. I thought the latest clinics say is 12 days post transfer. Does anyone else clinic say 14 days?
ladybd
in
Fertility Network UK
1 month ago
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