Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
4,100 public posts
Filter results
Intra-muscular depo-madrone injection
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
sp22
in
Thyroid UK
4 years ago
Do you have to go to a gastroenterologist or the Endo specialist for intestinal issues?
Morning a good Sunday ladies... Hope you enjoying the sunny day. So I’ve been having more intestinal issues lately but since covid started I had to wait so I can see my GP. My question is who do I have to see for intestinal issues? I’m sure it is connected to endo, and it has been getting worse. I
Morning a good Sunday ladies... Hope you enjoying the sunny day. So I’ve been having more intestinal issues lately but since covid started I had to wait so I can see my GP. My question is who do I have to see for intestinal issues? I’m sure it is connected to endo, and it has been getting worse. I
happyseal
in
Endometriosis UK
4 years ago
Pruning and sensitivity/numbness of fingertips
Hi all, Please all you APS sufferers , do any /all /some of you suffer with pruning in your fingertips also changes in sensitivity, sometimes a little prickling and numbness?? This has only happened since I was diagnosed in Feb ? It's not all the time or even in the bath , but they will just shrivel
Hi all, Please all you APS sufferers , do any /all /some of you suffer with pruning in your fingertips also changes in sensitivity, sometimes a little prickling and numbness?? This has only happened since I was diagnosed in Feb ? It's not all the time or even in the bath , but they will just shrivel
Sevenstar
in
Hughes Syndrome APS Forum
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stabbing ,throbbing pains in head
Hi Everyone New to the forum but not Fibro unfortunately.I ve always had really bad headaches but now having sharp stabbing pains then throbbing...feel like I m going to have a stroke....it wakes me up in early hours of morning.I had been on dosulepin for 20 yrs but taken off abruptly by drs when they
Hi Everyone New to the forum but not Fibro unfortunately.I ve always had really bad headaches but now having sharp stabbing pains then throbbing...feel like I m going to have a stroke....it wakes me up in early hours of morning.I had been on dosulepin for 20 yrs but taken off abruptly by drs when they
Hidden
in
Fibromyalgia Action UK
4 years ago
Les pain after sexual intercourse
Dear all, I'll try to be brief. After a sexual intercourse where I stressed the perineum with the ejaculation (I kinda pushed the ejaculation) I felt in the coming days a heavy pain in my perineum. This pain disappeared and migrated to the legs, with a constant burning sensation. I took many antibiotics
Dear all, I'll try to be brief. After a sexual intercourse where I stressed the perineum with the ejaculation (I kinda pushed the ejaculation) I felt in the coming days a heavy pain in my perineum. This pain disappeared and migrated to the legs, with a constant burning sensation. I took many antibiotics
Samava
in
Pelvic Pain Support Network
4 years ago
Quercetin: New Hype for COVID-19? - Parallels drawn with early data on hydroxychloroquine - MedPage Today - July 1, 2020
This post actually has two parts. This first part is the MedPage Today article referenced in the title. A second post to follow is from a source mentioned in the article. There has been much discussion lately about the use of natural substances and supplements in preventing reducing the effects of
This post actually has two parts. This first part is the MedPage Today article referenced in the title. A second post to follow is from a source mentioned in the article. There has been much discussion lately about the use of natural substances and supplements in preventing reducing the effects of
cujoe
in
Fight Prostate Cancer
4 years ago
Still looking for ND support - Naturopathic Medicine I mean
Searching mode continues for: 1. Naturopathic Med professionals 2. Integrative Med professionals Within a 100-150 mile radius of my home front. Ft. Wayne,IN.... Nalakrats and Tall_Allen have helped. Still looking and will keep on looking
Searching mode continues for: 1. Naturopathic Med professionals 2. Integrative Med professionals Within a 100-150 mile radius of my home front. Ft. Wayne,IN.... Nalakrats and Tall_Allen have helped. Still looking and will keep on looking
depotdoug
in
Prostate Cancer Network
4 years ago
B12 IM injection
What size needle do I need for a IM Vit B12 injection please? I have 21g (0.8mm x 40mm) and 23g (0.6mm x 25mm)...
What size needle do I need for a IM Vit B12 injection please? I have 21g (0.8mm x 40mm) and 23g (0.6mm x 25mm)...
Jm333
in
Pernicious Anaemia Society
4 years ago
New Treatments, Trials or Pain Relief...!!!!!!!
Anyone know of any New Treatments, Trials, or Pain Relief to attempt to control Neuropathy Pain???
Anyone know of any New Treatments, Trials, or Pain Relief to attempt to control Neuropathy Pain???
sjmesq
in
Neuropathy Support
4 years ago
Magnesium which is the best form ?
I currently take Magnesium glycinate made by Barefoot Nutrition as this has no additives or fillers but would Magnesium Citrate be ok instead I’m not really sure how much difference it would make, has anyone used either and have any idea which is best for hypo and sleep ? Thanks in advance 👍
I currently take Magnesium glycinate made by Barefoot Nutrition as this has no additives or fillers but would Magnesium Citrate be ok instead I’m not really sure how much difference it would make, has anyone used either and have any idea which is best for hypo and sleep ? Thanks in advance 👍
Yellow1955
in
Thyroid UK
4 years ago
Lyrica dose
I take Sifrol 0,25mg per day which gives me partial absence of symptoms for some of the time. I was prescribed 0.25mg twice daily but after experiencing augmentation a while ago would rather stay on the once a day dose. My GP has prescribed Lyrica 200mg at night or 100mg twice daily. I don't feel
I take Sifrol 0,25mg per day which gives me partial absence of symptoms for some of the time. I was prescribed 0.25mg twice daily but after experiencing augmentation a while ago would rather stay on the once a day dose. My GP has prescribed Lyrica 200mg at night or 100mg twice daily. I don't feel
kelirock
in
Restless Legs Syndrome
4 years ago
AZD4635 with Xtandi
Getting ready to do a clinical trial with AZD4635 and Xtandi. Just checking to see if anyone has did this clinical trial and if so how is it going. Xtandi alone did not work for me so hoping the combination of the two will. The LU 177 was great but I’m about 18 months out from my last treatment and PSA
Getting ready to do a clinical trial with AZD4635 and Xtandi. Just checking to see if anyone has did this clinical trial and if so how is it going. Xtandi alone did not work for me so hoping the combination of the two will. The LU 177 was great but I’m about 18 months out from my last treatment and PSA
Hidden
in
Fight Prostate Cancer
4 years ago
Fibromyalgia Article in the Guardian
🙌🏽 We’re supporting the Managing Pain campaign from Health Awareness. Learn more about the effects of fibromyalgia from our Chair, Des Quinn. Read it online below or in the The Guardian today. #ManagingPain #Fibromyalgia 👉 https://bit.ly/37S8sdp
🙌🏽 We’re supporting the Managing Pain campaign from Health Awareness. Learn more about the effects of fibromyalgia from our Chair, Des Quinn. Read it online below or in the The Guardian today. #ManagingPain #Fibromyalgia 👉 https://bit.ly/37S8sdp
FMA_Reece
Administrator
in
Fibromyalgia Action UK
4 years ago
Struggle with fibre
Hi it seems that any kind of fibrous food sets my IBS off, and fatty foods give me heartburn. Do you think there may be a reason for this? I am taking some probiotics and will take Imodium regularly, although on lockdown haven’t needed to. So really just asking if anyone else is the same and what foods
Hi it seems that any kind of fibrous food sets my IBS off, and fatty foods give me heartburn. Do you think there may be a reason for this? I am taking some probiotics and will take Imodium regularly, although on lockdown haven’t needed to. So really just asking if anyone else is the same and what foods
huggit
in
IBS Network
4 years ago
Would be grateful if anyone has experienced any of this could give me some advice x
Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at 18 with lupus, raynaulds, livedo and a few others.. she manages relatively well however been having massive flare since beginning of march. Pain meds have been increased and making her so sick.. was eventually given kenolog
Hi there hope you are all managing well. I am mum to a 20 year old diagnosed at 18 with lupus, raynaulds, livedo and a few others.. she manages relatively well however been having massive flare since beginning of march. Pain meds have been increased and making her so sick.. was eventually given kenolog
Ambennett
in
LUPUS UK
4 years ago
Weak ankle....?
Hi all, Has anyone had what seems like an ankle strain/sprain but slow to get better? It's a new symptom for me. What helped you? I went to Dr, wearing ankle brace and doing some exercises for strengthening. It's only is one ankle. I have cmt (genetic testing didn't show what kind), have weakness in
Hi all, Has anyone had what seems like an ankle strain/sprain but slow to get better? It's a new symptom for me. What helped you? I went to Dr, wearing ankle brace and doing some exercises for strengthening. It's only is one ankle. I have cmt (genetic testing didn't show what kind), have weakness in
Mylifeascim
in
Charcot-Marie-Tooth UK
4 years ago
Cluneal nerve entrapment? Sacrum/buttock pain
Hi, Is there anyone who suffers with nerve pain over the sacrum and top of buttocks? I’ve searched a few posts and believe it to be Cluneal nerve entrapment possibly. There is such an agonising ache over my sacrum and SI area and goes into top of my buttocks. It was pins and needles and felt burning
Hi, Is there anyone who suffers with nerve pain over the sacrum and top of buttocks? I’ve searched a few posts and believe it to be Cluneal nerve entrapment possibly. There is such an agonising ache over my sacrum and SI area and goes into top of my buttocks. It was pins and needles and felt burning
Westie08
in
Pelvic Pain Support Network
4 years ago
pilonidal
Has anyone ever had pilonidal ? I have a cut that could otherwise be a fissure towards the top of my but rather than on the anus anyone ever have bleeding with motions? had rectal bleeding before and treated it with internal suppository now its back
Has anyone ever had pilonidal ? I have a cut that could otherwise be a fissure towards the top of my but rather than on the anus anyone ever have bleeding with motions? had rectal bleeding before and treated it with internal suppository now its back
Hidden
in
IBS Network
4 years ago
uPSA < 0.003 ng/ml PSA: How low should it go?
My last measured test level PSA 0.007ng/ml And radiotherapy still works and can further reduce PSA. Now I take an eligard which also lowers the PSA. I have an idea to start taking Casodex 150 for a double blockade. My goal is to lower uPSA further and reach a level of uPSA <0.003 where the cancer
My last measured test level PSA 0.007ng/ml And radiotherapy still works and can further reduce PSA. Now I take an eligard which also lowers the PSA. I have an idea to start taking Casodex 150 for a double blockade. My goal is to lower uPSA further and reach a level of uPSA <0.003 where the cancer
Vasili
in
Fight Prostate Cancer
4 years ago
A biochemical definition of cure after brachytherapy for prostate cancer - Radiotherapy and Oncology, Published: April 27, 2020
Looks like 4 years of <0.2 PSA post-treatment gets you a "biochemical cure". (= disease-free beyond 10 years.)
[i]Study Highlights[/i] [i]• Close to 80% of men 4–5 years after LDR prostate brachytherapy will achieve a PSA of 0.2 ng/ml or less.[/i] [i]• PSA ≤ 0.2 ng/ml is associated with 97–99%
Looks like 4 years of <0.2 PSA post-treatment gets you a "biochemical cure". (= disease-free beyond 10 years.)
[i]Study Highlights[/i] [i]• Close to 80% of men 4–5 years after LDR prostate brachytherapy will achieve a PSA of 0.2 ng/ml or less.[/i] [i]• PSA ≤ 0.2 ng/ml is associated with 97–99%
cujoe
in
Fight Prostate Cancer
4 years ago
1
...
67
68
69
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
712 results
Fibromyalgia Action UK
324 results
Pernicious Anaemia Society
268 results
View top 10 communities
Sort by
Most Relevant
Newest