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Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
7 months ago
Shingles vaccination - or not?
Hi all, hope to get some helpful advice on subject of shingles vaccination. Shingrix is available in my country (Norway) so I enquired of my GP about any recommendation in the light of my long-term polymyalgia (7+ years, maintained on 2.5 mg daily pred for about a year but unbelievably resistant to even
Hi all, hope to get some helpful advice on subject of shingles vaccination. Shingrix is available in my country (Norway) so I enquired of my GP about any recommendation in the light of my long-term polymyalgia (7+ years, maintained on 2.5 mg daily pred for about a year but unbelievably resistant to even
11541stella
in
PMRGCAuk
9 months ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
7 months ago
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Otomize ear spray
HiI have an outer ear infection in both ears and I've been prescribed Otomize ear spray but it's making me feel really sick when I use it, has anyone else had this experience? I don't know if it's helping my tinnitus as I only started taking it yesterday afternoon. I'm currently using a hot water bottle
HiI have an outer ear infection in both ears and I've been prescribed Otomize ear spray but it's making me feel really sick when I use it, has anyone else had this experience? I don't know if it's helping my tinnitus as I only started taking it yesterday afternoon. I'm currently using a hot water bottle
Coxy00
in
Tinnitus UK
9 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
7 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
3 months ago
update on rls treatment
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Gp has put me on 20mg Norspan patches and I am having acupunture and reflexology as well. Shumbah has suggested applying the sesame oil on troublesome leg....I have started that and will keep you informed....I have only been doing it for a week, but I think it is having some effect. The tugging, pulling
Hidden
in
Restless Legs Syndrome
9 months ago
Fever for 5 weeks (viral meningitis)
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Roosvanderv
in
Meningitis Now
7 months ago
My story
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hi, it all started by going into hospital for day surgery for Hemorrhoids. Within 36 hours my wife had taken me back to A & E with a high heart rate and low blood pressure. I was also in a lot of pain, which I put down to the surgery for Hemorrhoids. I was soon in majors and within a few hours I was
Hikingman
in
ICUsteps
9 months ago
Greater use of Benlysta, Saphnelo seen in US, EU to treat lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
Goal to reduce long-term glucocorticoids use to prevent side effects
In both the U.S. and Europe, clinicians want to limit treatment with glucocorticoids — steroid hormones whose long-term use for autoimmune diseases is tied to serious side effects — among people with moderate to severe lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
Covid has just hit our Thanksgiving plans!
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
My daughter just called to tell me she was just diagnosed with covid and can't come to our family gathering😪! She's a teacher and during the school year I rarely see her--she's too far away for me to go to her! This comes on top of the news that I do in fact have another met on my brain, likely
PJBinMI
in
SHARE Metastatic Breast Cancer
7 months ago
When to restart Biologics after Covid Infection
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Tested positive for Covid ( for the first time) last Wednesday. Was able to access Antivirals by Friday and by Monday was testing negative. Finished Paxlovid this morning. Should have injected Abatacept at the weekend but obviously didn’t! Just wondering what people have been advised re timing of restarting
Intheend
in
NRAS
7 months ago
Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
7 months ago
Night sweats worse and facial flushing after steroid injection
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
Gwelos
in
AF Association
8 months ago
Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
9 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
7 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
8 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
7 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
7 months ago
Taste loss
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
Rich806
in
Acoustic Neuroma Support
9 months ago
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