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Slow burn flare, following latest Covid vaccine.
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
SheffieldJane
in
PMRGCAuk
9 months ago
Covid Jab.
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
DodgeDhanda
in
Anxiety and Depression Support
9 months ago
Covid vaccine after ribuximub
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
artists
in
Vasculitis UK
9 months ago
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Dry achey eyes
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
10 months ago
Has anyone succeeded using bluetooth microphone to amplify patients voice so it can be heard on bluetooth hearing aids?
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Legobuilder
in
PSP Association
4 months ago
Left Ventricle?
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Yankee71
in
British Heart Foundation
9 months ago
Enerzair Inhaler
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
Has anyone come across this inhaler? I’ve gone from Fostair to Relvar and now to this. Haven’t started it yet but does this suggest I’m now on triple therapy? It’s a bit disconcerting to be on what appears to be a pretty strong inhaler a year into chronic bronchitis. I feel it leaves little room to up
PW_R
in
Lung Conditions Community Forum
1 year ago
my egfr jumped
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
tresa56
in
Kidney Disease
9 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
6 months ago
Ear infection
Hi everyone I post about my ear infection before you know. Still I have infection fluid in my ear. 2 weeks ago ENT community service did micro-suction in my ear I feel bit okay but again fluid coming and feel really uncomfortable . I went Gp last monday they put me again antibiotics co amoxiclav
Hi everyone I post about my ear infection before you know. Still I have infection fluid in my ear. 2 weeks ago ENT community service did micro-suction in my ear I feel bit okay but again fluid coming and feel really uncomfortable . I went Gp last monday they put me again antibiotics co amoxiclav
sun_1234
in
Tinnitus UK
11 months ago
ICU survivor 7 months later
Hi, Just to introduce myself to this fabulous group, I am a survivor of ICU from January this year. I attended an outpatient appointment expecting to have dressings applied to my foot and possibly having a cast within 24 hours I was on the operating table having a life-saving operation. Unbeknown to
Hi, Just to introduce myself to this fabulous group, I am a survivor of ICU from January this year. I attended an outpatient appointment expecting to have dressings applied to my foot and possibly having a cast within 24 hours I was on the operating table having a life-saving operation. Unbeknown to
Hammer65
in
ICUsteps
11 months ago
Steroid injections
I am waiting for a private appointment x 2 for steroid injections at the back of my head-one left and one right done on different dates. Just wondering if i take my normal Pred each time. I am currently on 3.5mg.
I am waiting for a private appointment x 2 for steroid injections at the back of my head-one left and one right done on different dates. Just wondering if i take my normal Pred each time. I am currently on 3.5mg.
Purplegloss
in
PMRGCAuk
9 months ago
Covid
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Blackwolf_7619
in
British Heart Foundation
9 months ago
Am I at a higher risk from Covid ?
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Scarlett500
in
MPN Voice
9 months ago
Covid booster..good news story
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
greynot
in
NRAS
9 months ago
New research - COVID-19 Tied to Autoimmune Disease Risk
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
MDT1
in
PMRGCAuk
9 months ago
Xstich
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
my husband has pulmonary fibrosis, since having pneumonia last November the coughing has got worse and he is bringing up phlegm. He’s now having trouble swallowing food mainly his dinner, he chews & chews the food but can’t swallow it, he recently had a gastroendoscopy with polyps found in the stomach
Xrossstich
in
Lung Conditions Community Forum
1 year ago
detailed lecture on why t-cell response to covid or other pathogens can be more important then antibodies
Hi everyone , i posted a link to a dr. campbell recently about a new experimental vaccine for skin cancer etc. ... just for the record ; he is not someone i go to for detailed medical information none the less ; thank you to those who responded to my post .. Here is a link to my favorite medical
Hi everyone , i posted a link to a dr. campbell recently about a new experimental vaccine for skin cancer etc. ... just for the record ; he is not someone i go to for detailed medical information none the less ; thank you to those who responded to my post .. Here is a link to my favorite medical
craterlake
in
CLL Support
9 months ago
Covid Vax when Sick?
Does anyone know whether it's advisable to get vaccinated when you're ill with something else? For the last week I've been laid out with either a cold or allergies (leaning toward the latter based on symptoms) and I'm scheduled to get a combo covid/flu vax tomorrow. I really want to get that done ASAP
Does anyone know whether it's advisable to get vaccinated when you're ill with something else? For the last week I've been laid out with either a cold or allergies (leaning toward the latter based on symptoms) and I'm scheduled to get a combo covid/flu vax tomorrow. I really want to get that done ASAP
Amberesque
in
CLL Support
9 months ago
Rapid Onset of Symptoms
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
Hello, I was wondering if anyone can help me…. My dad has been diagnosed with PSP only a few months ago but has had symptoms for about 18months. His recent symptoms were textbook stage 2 but quite independent ….. this past Sunday morning he woke up feeling a bit off and then suddenly lost feeling in
IPinkie
in
PSP Association
4 months ago
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