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Warts and all
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
I consider myself fortunate, now in year 12 on BTK inhibitors with low, but adequate blood counts and a reasonably good quality of life that includes travel and a range of physical activities like biking and kayaking. This after Fludarabine/Cytoxan/Rituximab x 5 with only a brief response. Starting
Bluesinthenight
in
CLL Support
38 minutes ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
7 days ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
9 days ago
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Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
11 days ago
Buprenorphine patch and swimming
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
Dear Everyone, About 3 months ago, I started withdrawing from Neupro with the help of Buprenorphine. Buprenorphine is only available as a patch in Brasil where I live. I am now free of any dopamine agonist for over 2 months and continue to use Buprenorphine to effectively control my RLS. The quality
RiversW
in
Restless Legs Syndrome
17 days ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
21 days ago
Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Cookiebum24
in
Restless Legs Syndrome
27 days ago
dipyridamole
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
707twitcher
in
Restless Legs Syndrome
28 days ago
Buprenorphine...help with prescription please!!
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the pharmacy is saying something about it is for pain but since this new neurologist isn't a pain doctor, he said he can't prescribe it that way even though
LanaCSR
in
Restless Legs Syndrome
1 month ago
touched a nerve
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
HipHop1972
in
Restless Legs Syndrome
2 months ago
this might help
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
Tina2479
in
BASHH
2 months ago
Round 50?
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
erinjee
in
Restless Legs Syndrome
2 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
2 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
2 months ago
Recurrent vaginal thrush- need urgent help
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
Rita89
in
Women's Health
2 months ago
Aciclovir as prevention for shingles
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
RamsesII
in
CLL Support
2 months ago
Bad reaction to progynova
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
keepfaith1982
in
Fertility Network UK
3 months ago
Hepatic Peliosis (What is it?)
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
kevpwalker
in
British Liver Trust
3 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
3 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
3 months ago
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