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QoL-Lick the spoon
This is an IF, WHEN and NOW thought process. I know many of you have already been through this stage because of your cancer but a few people ( new members and a few regulars) haven’t embraced these ideas. How many of you have probably said to yourself IF this treatment works we’re going to go on a
This is an IF, WHEN and NOW thought process. I know many of you have already been through this stage because of your cancer but a few people ( new members and a few regulars) haven’t embraced these ideas. How many of you have probably said to yourself IF this treatment works we’re going to go on a
MouseAddams
in
Advanced Prostate Cancer
6 months ago
Covid & dosing
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
amala57
in
Thyroid UK
6 months ago
Have COVID - should I get Paxlovid/
I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and otherwise in good health Tested positive yesterday for COVID. Day three of my symptoms are uncomfortable but bearable. Should I get Paxlovid?
I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and otherwise in good health Tested positive yesterday for COVID. Day three of my symptoms are uncomfortable but bearable. Should I get Paxlovid?
Lambo1
in
CLL Support
6 months ago
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Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
8 months ago
Hepatitis B
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
HepBHelp
in
British Liver Trust
8 months ago
Natural cycle FET likely to be cancelled due to ovulation on small follicle. What does this mean about my eggs/ ovaries? Having a wobble
Oh it's been a trial. Last month my cycle was cancelled due to COVID and this month, my bloods show I'm due to ovulate but follicle is only 12mm. I have been quite ill with Covid and pretty stressed getting ready to start a new job but was so hopeful to get this transfer done before Christmas but my
Oh it's been a trial. Last month my cycle was cancelled due to COVID and this month, my bloods show I'm due to ovulate but follicle is only 12mm. I have been quite ill with Covid and pretty stressed getting ready to start a new job but was so hopeful to get this transfer done before Christmas but my
Minniemouse88
in
Fertility Network UK
6 months ago
Covid, strange beast.
I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in remission after stage 4 diagnosis in 2020. My wife last returned from a company business meeting in Malta attended by 500 employees. She and many of her work mates now in bed with Covid. This is the 4th time my wife has had
I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in remission after stage 4 diagnosis in 2020. My wife last returned from a company business meeting in Malta attended by 500 employees. She and many of her work mates now in bed with Covid. This is the 4th time my wife has had
stevesmith1964
in
CLL Support
6 months ago
Fod Map Diet
Good morning have been on Fodmap diet since March . Has been getting less strict as I eat some dairy but my diet is generally getting more and more restricted.Im also a Pescatarian and feel that I aren’t getting enough protein or variation . Main Symptoms are Anxiety,dizziness,tinnitus,Nausea,wind
Good morning have been on Fodmap diet since March . Has been getting less strict as I eat some dairy but my diet is generally getting more and more restricted.Im also a Pescatarian and feel that I aren’t getting enough protein or variation . Main Symptoms are Anxiety,dizziness,tinnitus,Nausea,wind
Imisspizza
in
IBS Network
6 months ago
Afib worse since Ablation
I had Covid in Oct 2022. I was 57 at the time and in really great shape. I exercise everyday, average about 15,000 steps a day and fast 2 to 3 days a week. As my Covid was winding down and I was feeling better I started having Afib Episodes for the first time in my life. They started off
I had Covid in Oct 2022. I was 57 at the time and in really great shape. I exercise everyday, average about 15,000 steps a day and fast 2 to 3 days a week. As my Covid was winding down and I was feeling better I started having Afib Episodes for the first time in my life. They started off
filmguy5
in
AF Association
6 months ago
Adrenal crisis or flare ?
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Cyclo5
in
Thyroid UK
6 months ago
Adrenal Crisis or a Flare?
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday afternoon
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday afternoon
Cyclo5
in
PMRGCAuk
6 months ago
P.AFib and Covid
no doubt this question has been answered a few times but since showing positive with Covid this morning I have had two episodes close together which is unusual. Should I just go with them until my Covid test is negative and then see what happens? All your experiences will help me decide. Thank you.
no doubt this question has been answered a few times but since showing positive with Covid this morning I have had two episodes close together which is unusual. Should I just go with them until my Covid test is negative and then see what happens? All your experiences will help me decide. Thank you.
Botolph
in
British Heart Foundation
6 months ago
Rituximab and Flu/Cold
Hello good people. Any tips on dealing with a cold while on Rituximab. Do the same guidelines for Covid apply? Many thanks 😊
Hello good people. Any tips on dealing with a cold while on Rituximab. Do the same guidelines for Covid apply? Many thanks 😊
ks1966
in
NRAS
1 year ago
unsure
thank you all for your responses on my last post. I am feeling better, but still congested. My boyfriend wants to come over but I’m so fearful I’ll get him sick, or that I actually have Covid and I’ll give it to him. I could go buy more Covid tests, but my friends told me that I shouldn’t because then
thank you all for your responses on my last post. I am feeling better, but still congested. My boyfriend wants to come over but I’m so fearful I’ll get him sick, or that I actually have Covid and I’ll give it to him. I could go buy more Covid tests, but my friends told me that I shouldn’t because then
Daisy425
in
Anxiety and Depression Support
6 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
8 months ago
My Grim anniversary, Vaccine Type and Timing
With multiple fall vaccines now in use it seems timely to share our experience and advice on the timing of them. This has been discussed briefly in various threads. I invite comments on the below: In the past there was just an annual flu shot and its timing was just "sometime in the fall". No other
With multiple fall vaccines now in use it seems timely to share our experience and advice on the timing of them. This has been discussed briefly in various threads. I invite comments on the below: In the past there was just an annual flu shot and its timing was just "sometime in the fall". No other
EPguy
in
MPN Voice
6 months ago
My our Journey so far.
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
A BIG Hi to you all. I’d like to introduce myself. My nick name is Big H and my journey started in 2021 with a covid pneumonia. I was in a pub when we were allowed to go out, it’s the only place I had attended before contracting Covid Pneumonia. I just remember it was like having the worse flu and
BigH63
in
ICUsteps
7 months ago
COVID OCD!!! HELP
I have had every kind of OCD ever...but since Covid started....I can no longer function! I don't care about getting it ( I have had it) , but take care of my very old and sick parents...CAN't bear the thought of giving it to them!!!Can't stop washing (to the point that my hands BLEED) and sanitizing
I have had every kind of OCD ever...but since Covid started....I can no longer function! I don't care about getting it ( I have had it) , but take care of my very old and sick parents...CAN't bear the thought of giving it to them!!!Can't stop washing (to the point that my hands BLEED) and sanitizing
ocder
in
My OCD Community
6 months ago
covid?
I was really congested so I took a Covid test. Unsure if there’s a faint line in the first picture. I took another test and was negative. I’m supposed to see my boyfriend but I’m so worried. I don’t think I can handle isolation again. Do you see a faint line in the first test?
I was really congested so I took a Covid test. Unsure if there’s a faint line in the first picture. I took another test and was negative. I’m supposed to see my boyfriend but I’m so worried. I don’t think I can handle isolation again. Do you see a faint line in the first test?
Daisy425
in
Anxiety and Depression Support
6 months ago
Provenge Reaction
Hi Brothers, I don’t post much on here. Yesterday I had my third and final Provenge infusion. I did really well with the first two infusions except for a racing heart which subsided. Today I woke up and my joints were all aching, I had a headache and REALLY bad chills which have finally morphed into
Hi Brothers, I don’t post much on here. Yesterday I had my third and final Provenge infusion. I did really well with the first two infusions except for a racing heart which subsided. Today I woke up and my joints were all aching, I had a headache and REALLY bad chills which have finally morphed into
MJCA
in
Advanced Prostate Cancer
1 year ago
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