Acoustic Neuroma Support | HealthUnlocked

I’ve just been diagnosed with AN and am now waiting for my local hospital’s neurologist team to contact me. My AN is pea sized and I am suffering moderate...

After my initial referral to ENT for tinnitus and severe single sided hearing loss in April I finally got an appointment at the beginning of December. The...

I wanted to share a recent change in my medication for Trigeminal Neuralgia caused by the Acoustic Neuroma. I was on Carbamazepine for around 9 months or more...

Hi Guys am looking for Holiday Insurance Company that gives Fair Price's, Taking my missus away to Turkey for her Birthday in March and as you all know it is...

I was diagnoised an Acustic Neroma last year after suffering hearing lose in my right ear. I have been having regular MRIs to check the growth my last one has...

Hi all, I’ve just had my scan results from my first scan since diagnosis and there has been no change in size or appearance of my small AN. As I was really...

Hello everyone, I have a AN and I am on a watch and wait. 2 days ago I got this numbness on the same side as AN. I would describe it as the feeling you get...

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday the 24th of December. Our Support Team will be back from 9am on Thursday the 2nd...

Hi I had accoustic neuroma removed in 2023 but since am still deaf in 1 ear and headaches,spasms and tiredness are debilitating.I have 2x children 1 with...

I don’t know if this will sound familiar to anyone but I recently spent a day in the ED of my local hospital because since Tuesday 26th I’ve been having...

Hi All, I’m just looking for any of your experience in changing roles at work to accommodate your AN. I’m on watch and wait with my first year scan...

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a telephone appointment with my consultant early november and i have to admit i'm...

Is there anyone out there who is fed up with watch and wait? I’m considered to have a small tumour but have symptoms, such as hearing loss and persistent...

Yea had my appointment last week with my AN specialist assistant to get the most unusual news I have ever heard, they started off my going through how long ago...

The wait is almost over—my surgery is in two days. I know it will be long. This will be the first time ever I am going through any surgery. Just wondering...

How long does it take to return to driving after acoustic neuroma surgery? Any personal experiences?

Hi there, I had surgery in 2021 to remove a large AN. My follow-up MRI scans showed that all was well--until the last one, which shows regrowth. It's slight...

Anyone else with experience of a cyst on an AN?We're doing as much research as possible before our appointment this Tuesday Thank you!

I took my first gentamicin injection last Wednesday and will have two more over the next two weeks. My doctor mentioned that I will feel wobbly after these...

My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had...

I have been diagnosed with a large acoustic neuroma (4.6 cm), and unfortunately, surgery is the only option for a tumor of this size. Although I don’t...

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma 8 years ago, he had surgery 6 years ago, life has been living hell since. I...

Hey everyone, first post here and I’m just curious about your thoughts before I bother my nurse. She has recommended this page in the past. Sorry it’s so long...

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going...

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably...

Out of the blue last Friday I received a telephone appointment with my consultation (still haven't seen him face to face) and told the 3rd scan in a row has...

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I...

I wrote facial palsy as on side face dropped followed by weakness and multitude of symptoms. bells was ruled out after twice treatment but weak brow muscle and...

Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options...

hi can I ask at what point do you think this isn’t something to just live with? My headache is constant , hearing almost completely gone, swallowing unusual...