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Gaucher disease type 1 (GD1)
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Most effective ablation method?
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
I am scheduled to have open heart surgery (OHS) to replace my aortic valve and while my chest is open the surgeon said they believe it would be a good time to perform a Maze ablation for my persistent afib. FYI: I was diagnosed with afib and tach back in 2008 - both were controlled well with flecainide
Jafib
in
Atrial Fibrillation Support
9 days ago
Adrenal cortisol expertise needed
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Hi! I was diagnosed with adrenal fatigue / low cortisol 10-plus years ago and take 10 mg of hydrocortisone (tablet) in the morning and at noon. I just received results of diurnal saliva cortisol test and am surprised/confused at the results. Does this group help with adrenal issues, or is there a different
Rileyfloof
in
Thyroid UK
8 months ago
Zytiga - Lupron
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
I was on Zytiga ( now Abi) with lup for several years and it kept my PSA to undetectable. I am now on 0rg0vyx instead of lup and my PSA remains undetectable after 6 years. Sode effects have been tolerable EXCEPT the I developed osteoporosis of the spin and now have multiple collapsed vertebrae and
Schnab
in
Advanced Prostate Cancer
8 months ago
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Is it common to get laryngitis with aps?
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
I have what seems like laryngitis for 4 weeks now. I'm struggling to talk for long. I'm seeing my ENT doctor Thursday for my ears and hope he will help with my throat (probably won't because it's ear clinic). Just wanted to say I haven't had any sort of virus before this I'm just wondering if aps can
Charts
in
Hughes Syndrome APS Forum
6 months ago
PAF … ? Further echo
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Sniggetts
in
Atrial Fibrillation Support
19 days ago
What I learned about steroids and blood sugar levels from wearing a continuous glucose monitor (CGM) on the ZOE program
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
I’ve just finished using a CGM for 2 weeks as a paying participant in the ZOE study, which I mentioned in a previous post: https://healthunlocked.com/pmrgcauk/posts/149526653/ive-signed-up-for-tim-spectors-zoe-study-looking-at-blood-sugars-and-gut-health Many PMR and GCA patients, self-included, have
tangocharlie
in
PMRGCAuk
11 months ago
Open Heart Surgery Ahead
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Born with a bicuspid valve I guessed this day was coming…just not so soon! I will be 56 when they open my chest on August 15th. I would much rather have the TAVR procedure but at my age the long term planning doesn’t support that method at this time. So, OHD it is. I have significant procedural anxiety
Jafib
in
Atrial Fibrillation Support
21 days ago
OK bloods...Still plateauing??
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Hi again 👋About 7 weeks ago I increased my levo from 50mcg to 75mcg after discussing here. Initially, revved up again. Happy days- more energy, lost a small bit of weight, mood improved etc. I have started slipping back again and thought I'd get my bloods done again before I do anymore 'tinkering'.
Caffeinefreezone
in
Thyroid UK
8 months ago
Weak positive
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Hi there I had a weak positive ANA it said speckled and 1.80 My dr has said no other action needed. Do I have the beginning of lupus. I already have type 1 diabetes, hashimoto and vitiligo. Thanks for any advice
Demilouise
in
LUPUS UK
6 months ago
Low hemoglobin
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
horsie63
in
Kidney Dialysis
8 months ago
8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
6 months ago
Dr. Bianco: video from Thyroid Foundation of Canada
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
from 9 months ago. Somehow it ended up in my youtube feed this morning. He makes the point that L-thyroxine doesn't always manage to result in good fT3 levels and patients need Liothyronine. https://www.youtube.com/watch?v=PGlYO_H4Gdc&t=2682s
gabkad
in
Thyroid UK
6 months ago
24hr Holter
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
Hi, Recently started back on Bisoprolol for palpitations/PVCs after 7yrs off. I'm on low dose, 1.25mg but they've really calmed down what were pretty uncomfortable symptoms (3 A&E visits in one weekend!) Anyhow, have a holter monitor booked for next week and not sure whether to stop the Bisoprolol or
BillyBBalls
in
AF Association
6 months ago
Good morning. Could anyone help? Thank you
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Helen-NRAS
Moderator
in
NRAS
6 months ago
Previous Heart attack/stent
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
Frazzelena
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
serum lipids
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Lottyplum
in
Thyroid UK
6 months ago
Reducing cholesterol
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
Tellingfibs
in
Atrial Fibrillation Support
6 months ago
Switching from Disopyramide to Bisoprolol - any advice?
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
DE-AF
in
AF Association
6 months ago
Cramps
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
Doggie123-UK
in
Arthritis Action
6 months ago
Bisoprolol
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
NAC1
in
AF Association
6 months ago
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