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Gaucher disease type 1 (GD1)
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Not PMR
I have been told that I don't have PMR from my rheumatologist but rheumatoid arthritis so must I leave this invaluable site and find one more suitable for my ailment? If so I will be sorry to miss my family of helpers.
I have been told that I don't have PMR from my rheumatologist but rheumatoid arthritis so must I leave this invaluable site and find one more suitable for my ailment? If so I will be sorry to miss my family of helpers.
Petertaffy
in
PMRGCAuk
6 months ago
travelling as Lupus patient
hi everyone, Been long time since I wrote here. please I will like some advice regarding travelling in Africa. I have been here in Europe for over 15 years and I haven’t been to Africa all this years. Was diagnosed with lupus 2018 in Italy. I wanted to ask for any advice on sun cream and any
hi everyone, Been long time since I wrote here. please I will like some advice regarding travelling in Africa. I have been here in Europe for over 15 years and I haven’t been to Africa all this years. Was diagnosed with lupus 2018 in Italy. I wanted to ask for any advice on sun cream and any
Saralife
in
LUPUS UK
6 months ago
Is this website BULLSH*T?
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
NewGuywithPD
in
Cure Parkinson's
8 months ago
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PSA increase.
My PSA has increased from .13 to .73 in 3 1/2 months. Does this mean I am castrate resistant. Or does it need to increase over a couple more samples first. Can my PSA change this much for other reasons. I am currently on Lupron. Thanks for any input.
My PSA has increased from .13 to .73 in 3 1/2 months. Does this mean I am castrate resistant. Or does it need to increase over a couple more samples first. Can my PSA change this much for other reasons. I am currently on Lupron. Thanks for any input.
Letsfish
in
Advanced Prostate Cancer
8 months ago
AFIB and my exercise
I am 81 years old and work out using HIT on average about 50 minutes a day usually for six days a week. My heart rate goes from 65 when I start to a max of 140, up and down durning the workout . Mostly resistant training with weights. About a week ago I noticed after my third set of exercises ,my Apple
I am 81 years old and work out using HIT on average about 50 minutes a day usually for six days a week. My heart rate goes from 65 when I start to a max of 140, up and down durning the workout . Mostly resistant training with weights. About a week ago I noticed after my third set of exercises ,my Apple
Stetson
in
AF Association
5 months ago
Haemophilus influenzae
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
When I get a chest infection it is alway with the HIB bacteria, usually Doxycycline taken for two weeks rids it ,this time two weeks of Doxycycline plus another two weeks of Amoxicillin still hasn't gone had results of sputum test yesterday saying I've still got Hib.My gp has given me another two weeks
Alice70
in
Lung Conditions Community Forum
8 months ago
Can azathioprine cause chest pains?
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side especially after excretion. I had various tests and scans but they are all negative. I had Covid last September and had to stop taking the azathioprine
JanJan63
in
LUPUS UK
5 months ago
Switching from Bisoprolol to Carvedilol - side affects, time to adjust?
Afternoon all, Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily
Afternoon all, Background is I had 2 ablations in 2019 but Afib started coming back in 2021 so I was put onto flecainide and bisoprolol. The flec ended up causing more issues but since stopping flecainide and staying on bisoprolol I've been doing pretty well. I was on a very low does of 1.25mg daily
kitenski
in
AF Association
5 months ago
Distortion of Hba1c test with levo
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Hi Someone asked me to give further info about my claim that HbA1c tests cannot be relied upon if you are being treated with levothyroxine. I can't find that request now so I'm starting a new thread. The clearest statement is on the American Thyroid Association website.
WHAT ARE THE IMPLICATIONS
Pearlteapot
in
Thyroid UK
11 months ago
Liver cirrhosis and diabetes type 2
Hi.I was diagnosed with a enlarged liver in 2019..By 2020 I was diagnosed with fatty liver disease and in less than 3 years I now have liver cirrhosis.. Only found out 5 days ago and I've been in tears.. Had fibroscan and it came back as f4 and 23.5kpa. My ggt blood test was raised Haven't drank alcohol
Hi.I was diagnosed with a enlarged liver in 2019..By 2020 I was diagnosed with fatty liver disease and in less than 3 years I now have liver cirrhosis.. Only found out 5 days ago and I've been in tears.. Had fibroscan and it came back as f4 and 23.5kpa. My ggt blood test was raised Haven't drank alcohol
Ringlet48
in
British Liver Trust
8 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
6 months ago
Patient Day coming to Baltimore, Saturday March 02
A unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation. You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE
A unique opportunity to meet local medical experts to find out more about your heart health and in particular, heart rhythm conditions, such as atrial fibrillation. You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE
TracyAdmin
Partner
in
AF Association
5 months ago
prostate metastasis
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
hello - please excuse me if I don’t use correct medical terms - I’m learning! My husband was diagnosed almost a year ago with stage 4 (via prostate biopsy) prostate cancer that had metastasized….. multiple bone areas affected per his 2 Nuclear Bone Scans, Cat Scans etc - his PSA was off the rails = 1343
Myshadowgirl1
in
Advanced Prostate Cancer
8 months ago
Arrhythmia Alliance Patient Day coming to Baltimore, Saturday March 02
Unique opportunity to meet local experts to find out more about your heart health and in particular, heart rhythm conditions, such as SVT and AF You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE EKG https://heartrhythmalliance.org
Unique opportunity to meet local experts to find out more about your heart health and in particular, heart rhythm conditions, such as SVT and AF You will also have the chance to meet others living with these conditions. Breakfast, lunch, and a chance to speak to the experts + FREE EKG https://heartrhythmalliance.org
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
5 months ago
Rheumatology consultant with specialist interest in Lupus
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Hello, is anyone in the Humberside/ Lincolnshire area under a n NHS Rheumatologist that has a special interest in SLE. ( Lupus) I have moved house and need to find a new rheumatologist. Many thanks
Jenfy34
in
LUPUS UK
6 months ago
IBS and Coeliac
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
I have managed my Coeliac disease since 2009 but last year had a colonoscopy which confirmed my new symptoms were IBS D!! I struggle to know what to eat and feel my quality of life has taken a dive. I have never been someone who gets down but this is seriously effecting my mental health. Two weeks ago
Mollydav
in
IBS Network
6 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
8 months ago
Heart rate monitor results - another update
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
We had our second private consultation today for mum. Mum had the Zio XT monitor for a week. She has permanent AF and HF and the past couple of months have been so difficult as mum hasn’t felt good pretty much every day. The consultant said mum’s average heart rate is around 80 bpm, but the monitor
Nickybhf
in
AF Association
5 months ago
Donepezil as an aid for PSP
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Hi all you good people, A couple of weeks ago a fellow traveller here wrote about her husband with PSP that as his cognition and swallowing declined, his Doctor prescribed Donepezil. Originally, he was on 10 mg of Donepezil which improved his swallowing, alertness and cognition. Two years later when
Richard33
in
PSP Association
8 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
8 months ago
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