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Gaucher disease type 1 (GD1)
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How can I support my brother?
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
My brother has advanced prostate cancer and has had surgery. New tests show it has metastasised in his hip. I want to be able to support him but also don't want to say the wrong thing or add to the stress he is already feeling. I would appreciate ANY advice ~ thank you so much.
wavedancers
in
Advanced Prostate Cancer
7 months ago
New gene links to mHSPC
Article from cancertherapyadvisor.com Genes Linked to Aggressive Prostate Cancer Researchers say they have identified genes that should be considered for gene panel testing in prostate cancer. The researchers found evidence to suggest that variants in BRCA2, ATM, NBN, MSH2, XRCC2, and MRE11A are
Article from cancertherapyadvisor.com Genes Linked to Aggressive Prostate Cancer Researchers say they have identified genes that should be considered for gene panel testing in prostate cancer. The researchers found evidence to suggest that variants in BRCA2, ATM, NBN, MSH2, XRCC2, and MRE11A are
Derf4223
in
Advanced Prostate Cancer
7 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
7 months ago
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PSMA PET Scan result - false positive bone lesion?
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
Daddysgirl83
in
Advanced Prostate Cancer
7 months ago
Tingling
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
HiI have had three lots of brain surgery, the latest being a cranioplasty and clipping of an aneurysm. I am suffering with extreme tingling especialy down one side of my body. Has anybody else experienced this
EHJF
in
Headway
7 months ago
Complementary Therapies - Your Experience?
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
32Percenter
in
Advanced Prostate Cancer
7 months ago
Cold weather flare ups
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Sunshine634
in
LUPUS UK
5 months ago
BCR May Not Be a Strong Surrogate End Point for Prostate Cancer Survival
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
A new study, below [1] & [2]. In 2004 I came across old studies that showed that ADT promotes changes to the androgen receptor [AR] environment. At diagnosis, the AR is invariably "wild type". When ADT failed, AR gene amplification was common. True mutations were rare. {This was sufficient for
pca2004
in
Fight Prostate Cancer
7 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
5 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
4 months ago
Hi new here
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
nannynett
in
Thyroid UK
5 months ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
4 months ago
What Causes Itching
What else besides elevated bilirubin would cause itching with liver disease? My bilirubin level is normal but I itch like crazy sometimes.
What else besides elevated bilirubin would cause itching with liver disease? My bilirubin level is normal but I itch like crazy sometimes.
FlippinOut
in
British Liver Trust
7 months ago
PSA Tests
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Polaris1
in
Advanced Prostate Cancer
7 months ago
Referral
I'm in stage 4 cirrhosis but confused about my doctor referring me to a transplant clinic while in a compensated condition! I thought it had to be absolutely an emergency for a transplant.
I'm in stage 4 cirrhosis but confused about my doctor referring me to a transplant clinic while in a compensated condition! I thought it had to be absolutely an emergency for a transplant.
TyiseChar1
in
British Liver Trust
7 months ago
"Pluvicto"
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Kian28
in
Advanced Prostate Cancer
7 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
4 months ago
Travelling with Insurance
Hi folks, I was diagnosed with Decompensated Cirrhosis 2 years ago and have had regular routine 6 month MRI scans and bloods done which have all shown no features of concern and that my liver has fully recompensated. I mentioned that I was hoping to travel abroad to Spain and asked if I was OK with flying
Hi folks, I was diagnosed with Decompensated Cirrhosis 2 years ago and have had regular routine 6 month MRI scans and bloods done which have all shown no features of concern and that my liver has fully recompensated. I mentioned that I was hoping to travel abroad to Spain and asked if I was OK with flying
Nip1
in
British Liver Trust
7 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
4 months ago
Covid booster vaccination : Graves Disease
Any thoughts pl re having the covid booster vaccination when diagnosed with Graves Disease. I have at age 65 Graves Disease - diagnosed June 2023 - latest bloods - TSH/ T3/T4 in range - so improved, weight increasing ( I became under weight by far!) , and other aspects improving / energy a
Any thoughts pl re having the covid booster vaccination when diagnosed with Graves Disease. I have at age 65 Graves Disease - diagnosed June 2023 - latest bloods - TSH/ T3/T4 in range - so improved, weight increasing ( I became under weight by far!) , and other aspects improving / energy a
Littlefoot1thyroiduk
in
Thyroid UK
7 months ago
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