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Gaucher disease type 1 (GD1)
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Post ablation (1 week) and back in AFib. How often is this likely to happen over next few weeks?
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Sorre1
in
AF Association
5 months ago
Limbo period after BCR post RP and SRT and prior to PSA enough for PSMA PET?
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
Quick background: RP 2/02, Meyers' PSA suppression until 2016 when PSA jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable PSA until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5. I have talked to a uro friend and seen my rad-onc and the plan seems to be to wait
bldn10
in
Advanced Prostate Cancer
8 months ago
Newly diagnosed PAF by GP
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Hi everyone, i was diagnosed with PAF by GP after 24hr holter monitor and referred to cardiology in July. Still waiting for cardio appt but have had s 72hr monitor in the meantime. No idea about results of that yet. My question is how do you all tell what is an Afib episode and what is eptopics or other
Tropicaltaurus
in
AF Association
5 months ago
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Seeking advice - underactive thyroid
so my doctors have queried that I may have an under active thyroid and have recently been tested for the antibodies, can someone explain if my result is in range or if not, can you explain it to me - normal ranges etc. Serum thyroid peroxidase antibody concentration (XabCy) 21 kU/L [0 - 75] what is
so my doctors have queried that I may have an under active thyroid and have recently been tested for the antibodies, can someone explain if my result is in range or if not, can you explain it to me - normal ranges etc. Serum thyroid peroxidase antibody concentration (XabCy) 21 kU/L [0 - 75] what is
Klpanda080907
in
Thyroid UK
6 months ago
Liver Transplant - Lest we forget
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
When a person embarks on a liver journey, there are many people involved in their treatment over possibly many years. There are a multitude of medical professionals who become involved. These may range from the gastroenterologist who in turn refers their patient to a hepatologist. All the imagery people
Richard-Allen
in
British Liver Trust
8 months ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
8 months ago
Post Ablation Hypertension
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
I'm a male, age 88 who had persistent AF of unknown cause for 3 years, at the time on Dyazide and 10 mg Bystolic for mild essential hypertension. I had a successful RF ablation in May 2023, after which Dyazide was replaced by 20 mg Lasix, and the Bystolic was increased to 30 mg. Immediately after the
RevDoc
in
AF Association
5 months ago
Has anyone ever been told that ablation will not work for them?
Hi all i am quite baffled as to why private cardiologist has referred me to one of his colleagues for ablation. I have been told numerous times, by nhs cardiologists, that ablation will not work to treat my afib. If fact one previous doctor said, "Ablation is out of the question due to extent of enlarged
Hi all i am quite baffled as to why private cardiologist has referred me to one of his colleagues for ablation. I have been told numerous times, by nhs cardiologists, that ablation will not work to treat my afib. If fact one previous doctor said, "Ablation is out of the question due to extent of enlarged
DizzyD
in
Atrial Fibrillation Support
5 months ago
Books on Pernicious Anemia
Hi everyone, could you tell me which is Martin's most informative book, thanks
Hi everyone, could you tell me which is Martin's most informative book, thanks
Helliborous
in
Pernicious Anaemia Society
6 months ago
Webinar on financial planning with lupus
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Monday 20th November at 5:30pm we are hosting a webinar with specialist financial planners from the Stonewood Group. They will talk through some information, and you will have the opportunity to ask them questions. The topics discussed will come directly from what people highlighted was important in
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Rash on Feet
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
hello everyone, I recently just joined after discovering this. For the last few days I’ve been suffering burning on the top of my feet as well as swelling in my feet and ankles. I’ve been diagnosed with Lupus earlier this year as well as raynauds and sjogrens. I’m starting to get concerned with my current
Hidden
in
LUPUS UK
6 months ago
Advice
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
I'm seeing a neurologist for balance problems and occasional slurring of words. I was diagnosed with Pernicious Anaemia (currently on B12 injections) in July this year and have had vitiligo for over 20 years. One of the blood test done was for TPO antibodies with were 78 which apparently had been
Mark2027
in
Thyroid UK
6 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
3 months ago
My journey
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
I wanted to share some things that have helped me over the years since my weight loss surgery in 2017. When I started this journey I had ballooned to 312 pounds on my 5'7" Frame. I was, and still am, an emotional eater...struggle with it every day.....what I've found that has helped me the most is
mizzou7016
Visitor
in
Weight Loss Support
5 months ago
liver and black pudding
had liver today and black pudding , and for some reason I started getting cramps then I had to rush to the toilet, i had diarrhoea and it seemed like it was very dark brown , can anyone tell me if eating liver and black pudding can make your stools be dark in colour as I’m a little worried , without
had liver today and black pudding , and for some reason I started getting cramps then I had to rush to the toilet, i had diarrhoea and it seemed like it was very dark brown , can anyone tell me if eating liver and black pudding can make your stools be dark in colour as I’m a little worried , without
Prettywoman73
in
IBS Network
8 months ago
paroxysmal atrial fibrillation
I have posted re my paroxysmal AF with episodes very fast heart rate requiring treatment in hospital, but am now concerned about ever getting the Ablation I am waiting for. Have just found a letter August, which says “we’ll consider ablation if another very fast heart rate episode occurs”. Well so
I have posted re my paroxysmal AF with episodes very fast heart rate requiring treatment in hospital, but am now concerned about ever getting the Ablation I am waiting for. Have just found a letter August, which says “we’ll consider ablation if another very fast heart rate episode occurs”. Well so
carkat22
in
AF Association
5 months ago
Amiodarone and AF
I had cardioversion in August at Bart’s to restore sinus rhythm after being in persistent AF for 6 months. Been on amiodarone and pleased to report not a single flutter since. Had transformed my life. Cardiologist wants to reduce my dose and later change me to another drug. Does anyone have experience
I had cardioversion in August at Bart’s to restore sinus rhythm after being in persistent AF for 6 months. Been on amiodarone and pleased to report not a single flutter since. Had transformed my life. Cardiologist wants to reduce my dose and later change me to another drug. Does anyone have experience
Midnight2022
in
Atrial Fibrillation Support
5 months ago
ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful. We are not too far off the total number of interviewees we need at this stage. But have had very
RupertW-SUMS
in
LUPUS UK
6 months ago
Lupus information and stories
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
https://lupusnewstoday.com/category/news/ This link works I hope. If you are not aware of it, it could be helpful and real time stories of people with lupus.
MrsMarigold
in
LUPUS UK
6 months ago
What is the best app for lupus diet.
I’m struggling with my weight and what to avoid .
I’m struggling with my weight and what to avoid .
Gabriel8
in
LUPUS UK
6 months ago
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