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Gaucher disease type 1 (GD1)
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A 47 year old recent heart attack survivor
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
I recently had a heart attack with no real symptoms, it was only picked up from a routine blood test.I have since had many tests and checks and no problems have been found with my heart or arteries but my cholesterol is 12.I am very active and eat a healthy diet and I don’t smoke or drink.The advice
Drakeywilson
in
Cholesterol Support
3 months ago
Afib Medication
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Permanent Afib was diagnosed years ago. No symptoms until heart rate is checked. Doctor prescribed Amiodarone - bad side effects stopped using Bisoprolol - bad side effects stopped using The doctor said to stop using and if I wanted to go med-free and I have no symptoms go for it. Which I have
Jedburgh
in
AF Association
3 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
7 months ago
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What constitutes low heart rate?
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
Recently prescribed bisoprolol 1.25, consultant did say if HR drops to low I should stop taking it. HR is 34/35 when I'm asleep. Should I be concerned about this? HR seems to be okay during the day but difficult to establish because it fluctuates because I have been in constant AFib for two days now
DizzyD
in
Atrial Fibrillation Support
3 months ago
My uncertain heart
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
After an hour of sitting and reading the paper online this morning, I noticed sensations in my chest similar to those that have previously indicated AF. My Wellue told me I was in sinus but the rhythm was irregular and there were PACs and PVCs. I have often noticed that PACs and PVCs in the mornings
Sambaqui
in
AF Association
3 months ago
Ablation
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
I have my new date (26th March) for my ablation at Glenfield Hospital, Leicester, under Professor Andre Ng.Does anyone have any positive experiences to share as I am getting really scared now reading some of the feedback after ablation which is making me doubt my decision. I have paroxysmal AF which
Karendeena
in
AF Association
3 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
AF Association
3 months ago
heart arteries heavily calcified
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
hi I’ve had PV and ET since August 2015 I recently started with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160
Phil1955
in
MPN Voice
3 months ago
Hiccups update.
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
FoieGras
in
Cure Parkinson's
7 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
Partner
in
AF Association
3 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
3 months ago
Patients Day coming to New York, US, Saturday March 09
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
You are invited to attend our Patients Day, taking place on Saturday, March 09, 2024 from 08:00-13:00 EST You have the unique opportunity to meet the medical experts to find out more about your heart health, and, in particular, heart rhythm conditions. DETECT AF with a simple pulse check or
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
I'm struggling with pain and fatigue but feel my rheumatologist will not permit me to have my mabthera infusion
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
It look 5 long years to diagnose my rheumatoid until everything seemed to go. My consultant at the time apologised- I think I was sero- negative.. but then it showed up and I finally got treatment. I have tried various combination of drugs and was finally put on mabthera. My new rheumatologist says
Ardea
in
NRAS
4 months ago
clotting whilst on warfarin for clots in lungs.
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
I’ve been trying to find out why I’ve had breathlessness for 3 years. In 2021 NHS pulmonary consultant arranged Ct scan abd lung function tests. Lung function tests results said good. Ct scan revealed very mild dry bronchiectasis and very mild emphysema - both too mild to be classed as COPD. Was discharged
130396
in
MPN Voice
3 months ago
home from cardioversion
so I had my 2nd cardioversion today, first one lasted over 2 years……so hopefully this one will last a fair while too. Only took one zap and I was back in sinus rhythm. This time I’ve been told to continue my bisoprolol but last time I wasn’t on them at all. Hopefully this wil keep me in sync until I
so I had my 2nd cardioversion today, first one lasted over 2 years……so hopefully this one will last a fair while too. Only took one zap and I was back in sinus rhythm. This time I’ve been told to continue my bisoprolol but last time I wasn’t on them at all. Hopefully this wil keep me in sync until I
Fondant
in
AF Association
3 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
7 months ago
Atrial Fibrillation Association Patients Day On-Demand now!
Is your .... Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations. To view the agenda and register
Is your .... Heart racing? Palpitations? Breathlessness? How do you manage living with AF? Join us from the comfort of your home to hear from medical experts in AF. You will be able to manage living with AF so much better after watching these presentations. To view the agenda and register
TracyAdmin
Partner
in
AF Association
3 months ago
liver biopsy- what does it mean.
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
MouseAddams
in
Advanced Prostate Cancer
7 months ago
Ectopic atrial Bradycardia
My last ECG before I saw EP said that Ectopic atrial Bradycardia treatment shad replaced Afib . I have an ablation scheduled end of month and he didn’t say anything about this? Does anyone have the same thing? I had a cardio version Sept and small Afib Nov but way overdue now for an Afib and wondering
My last ECG before I saw EP said that Ectopic atrial Bradycardia treatment shad replaced Afib . I have an ablation scheduled end of month and he didn’t say anything about this? Does anyone have the same thing? I had a cardio version Sept and small Afib Nov but way overdue now for an Afib and wondering
Krissy55
in
Atrial Fibrillation Support
3 months ago
Confused about cancer
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
pussycat66
in
British Liver Trust
7 months ago
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