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adenomyosis sufferer
suffering today feeling like i'm going threw labour all over again adenomyosis is awful, i have a 3 procedure operation on 30th may, laparoscopy, histeroscopy polypectomy, has anybody els had this? x #adenomyosis
suffering today feeling like i'm going threw labour all over again adenomyosis is awful, i have a 3 procedure operation on 30th may, laparoscopy, histeroscopy polypectomy, has anybody els had this? x #adenomyosis
kellymiddleton130811
in
Adenomyosis Advice Association
6 years ago
In Focus: Menopause - Non-hormonal medication
Dear All I'm sorry the In Focus posts have reduced lately, I will be back on track in May and we'll be looking at diet, do let me know any topics you would like covered as part of this. To end the topic of menopause, here is some information on non-hormonal medications, which our lovely volunteer Yesim
Dear All I'm sorry the In Focus posts have reduced lately, I will be back on track in May and we'll be looking at diet, do let me know any topics you would like covered as part of this. To end the topic of menopause, here is some information on non-hormonal medications, which our lovely volunteer Yesim
OvacomeSupport
Administrator
in
My Ovacome
6 years ago
All blood values down with platelets
my wife diagnose ITP 2 years back after taking DELTACORTAL for one year we stoped this as that had lots of side effects for one year all the blood values were normal only the platelet count was 20-30 problem started 8 months back when all the values get down our hemotolgist gave some medication venofer
my wife diagnose ITP 2 years back after taking DELTACORTAL for one year we stoped this as that had lots of side effects for one year all the blood values were normal only the platelet count was 20-30 problem started 8 months back when all the values get down our hemotolgist gave some medication venofer
akhurram79
in
ITP Support Association
6 years ago
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Chemical menopause versus surgical Menopause ( both ovaries removed)
Hello I just had a hysterectomy 7 days ago . I had a sub total hysterectomy with ovaries and fibroids removed . The reason was I have stage 4 endometriosis with frozen pelvis . I had chocolate cysts on both ovaries which have reoccurred for the 3rd time following removal . I had open surgery and endometriosis
Hello I just had a hysterectomy 7 days ago . I had a sub total hysterectomy with ovaries and fibroids removed . The reason was I have stage 4 endometriosis with frozen pelvis . I had chocolate cysts on both ovaries which have reoccurred for the 3rd time following removal . I had open surgery and endometriosis
Hidden
in
Healthy Happy Woman
6 years ago
Triple negative and BRCA1 positive
Hi, I am 42 year triple negative and BRCA1 positive. My tumor was 1.9 cm and 1 node involved. I don't have any close family members with known history of breast cancer. Genetic councelor suggested bilateral mastectomy and salpingo oophrectomy. Can anyone suggest which hospital best in India for my situation
Hi, I am 42 year triple negative and BRCA1 positive. My tumor was 1.9 cm and 1 node involved. I don't have any close family members with known history of breast cancer. Genetic councelor suggested bilateral mastectomy and salpingo oophrectomy. Can anyone suggest which hospital best in India for my situation
Arumana
in
Breast Cancer India
6 years ago
Any bowel problems with GPA?
Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness. But the problem continues and have had a couple of episodes of near incontince of faeces. And deep rectal pain. Just wondered if any one else has had similar symptoms.
Hi, for several months now I've had a change in bowel habit. Colonoscopy clear thank goodness. But the problem continues and have had a couple of episodes of near incontince of faeces. And deep rectal pain. Just wondered if any one else has had similar symptoms.
ludo
in
Vasculitis UK
6 years ago
After surgery now
I thought it would be time to post here how I am doing after surgery. I had surgery on April the 5th 8 am and it took 4 hours. I didn't feel much pain to be honest or they kept it controlled during the time I was in hospital, which I left Sunday - 3 days after surgery. According to the doctors the surgery
I thought it would be time to post here how I am doing after surgery. I had surgery on April the 5th 8 am and it took 4 hours. I didn't feel much pain to be honest or they kept it controlled during the time I was in hospital, which I left Sunday - 3 days after surgery. According to the doctors the surgery
Paulo1968
in
Prostate Cancer And Gay Men
6 years ago
Painful lumps, MRI and that What if feeling
With a BRCA 1 status, and history of Stage 1, grade 3 Triple Neg. cancer, I feel a little cast to sea without clear direction as to how to best monitor my body for recurrence. I had a non-nipple sparing double mastectomy and oophorectomy, so I know I've done due diligence surgically. I know this genetic
With a BRCA 1 status, and history of Stage 1, grade 3 Triple Neg. cancer, I feel a little cast to sea without clear direction as to how to best monitor my body for recurrence. I had a non-nipple sparing double mastectomy and oophorectomy, so I know I've done due diligence surgically. I know this genetic
MelissaEppardCoach
in
SHARE Breast Cancer Support
6 years ago
Lymphedemajourney
I’ve just had a flare up of my secondary lymphedema due to radical mastectomy and 14 lymph node removal. It will be 2 years May 16, 2018 since my surgery. I’ve been able to control lymphedema with compression sleeve. But now I’ve had this flare up—swelling, upper arm & elbow redness & hot. Also spots
I’ve just had a flare up of my secondary lymphedema due to radical mastectomy and 14 lymph node removal. It will be 2 years May 16, 2018 since my surgery. I’ve been able to control lymphedema with compression sleeve. But now I’ve had this flare up—swelling, upper arm & elbow redness & hot. Also spots
Hidden
in
LSN
6 years ago
Lymph Node Dissection [LND] & Salvage Radiotherapy [sRT].
New Mayo study below [1]. For article, see [2]. When radical prostatectomy (RP) is a primary treatment option, it offers better 10 year survival than radiation. And if it fails, there is always salvage radiation therapy (sRT), which, however, is not offered with curative intent. "Up to 50% of patients
New Mayo study below [1]. For article, see [2]. When radical prostatectomy (RP) is a primary treatment option, it offers better 10 year survival than radiation. And if it fails, there is always salvage radiation therapy (sRT), which, however, is not offered with curative intent. "Up to 50% of patients
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Bowel endometriosis and hysterectomy
After 5 laparoscopy and a bowel section I am finally at the end and can take no more!! I have to have another bowel section and want a full hysterectomy at the same time. I have been advised by gynacologist to have an oophorectomy to just remove ovaries as if I have a hysterectomy then it has to be removed
After 5 laparoscopy and a bowel section I am finally at the end and can take no more!! I have to have another bowel section and want a full hysterectomy at the same time. I have been advised by gynacologist to have an oophorectomy to just remove ovaries as if I have a hysterectomy then it has to be removed
Maria365
in
Endometriosis UK
6 years ago
General Anaesthetic While Taking Prednisolone
I have been told I need a hernia repair operation involving general anaesthetic. I am presently taking 9mg Prednisolone daily and wonder if it is safe to have the operation. Has anyone had experience of this? I have had Temporal Arteritis since March 2016 and was down to 2mg Prednisolone daily when
I have been told I need a hernia repair operation involving general anaesthetic. I am presently taking 9mg Prednisolone daily and wonder if it is safe to have the operation. Has anyone had experience of this? I have had Temporal Arteritis since March 2016 and was down to 2mg Prednisolone daily when
Maur1
in
PMRGCAuk
6 years ago
Advice on recovery time and pain?
Hi I was hoping for some advice on recovery time and pain really. They think I might have endo due to my symptoms and are also doing fertility test as I am 35 and still haven't been able to conceive. I am booked in on Tuesday for a laparoscopy, hystoscopy, dye test and if they find any endometriosis
Hi I was hoping for some advice on recovery time and pain really. They think I might have endo due to my symptoms and are also doing fertility test as I am 35 and still haven't been able to conceive. I am booked in on Tuesday for a laparoscopy, hystoscopy, dye test and if they find any endometriosis
Donna_24
in
Endometriosis UK
6 years ago
Surgical menopause has left me different
Hi there, I had surgery many times to do with my reproductive organs having my first partial hysterectomy of my uterus and cervix at 26 years old due to complications after the birth of my only child. I recently in 2014 had full hysterectomy removing both ovaries due to so many adhesions and massive
Hi there, I had surgery many times to do with my reproductive organs having my first partial hysterectomy of my uterus and cervix at 26 years old due to complications after the birth of my only child. I recently in 2014 had full hysterectomy removing both ovaries due to so many adhesions and massive
LosLabido
in
My Ovacome
6 years ago
New here - found out today I have to have salpingo-oophorectomy :/
Hello <tentative wave> My name is Joh and I am 45 years old. When I was 19, I was rushed to hospital with suspected appendicitis but it turned out to be an issue with large cysts on my ovaries and I had a number of ovarian cystectomies /operative laparoscapies over the following couple of years. In
Hello <tentative wave> My name is Joh and I am 45 years old. When I was 19, I was rushed to hospital with suspected appendicitis but it turned out to be an issue with large cysts on my ovaries and I had a number of ovarian cystectomies /operative laparoscapies over the following couple of years. In
Joh45
in
Endometriosis UK
6 years ago
Why can’t i talk about this cancer?
I have been following these posts, but this is the first time I’ve posted anything. I was diagnosed in Jan 2017 with MBC. My Mets are to the sternum, spine, pelvis and hip, with two spots on my liver and two on my skull. I’ve had what some consider a miraculous recovery when my pet scan last April
I have been following these posts, but this is the first time I’ve posted anything. I was diagnosed in Jan 2017 with MBC. My Mets are to the sternum, spine, pelvis and hip, with two spots on my liver and two on my skull. I’ve had what some consider a miraculous recovery when my pet scan last April
Voneill
in
SHARE Metastatic Breast Cancer
6 years ago
Gallbladder removal
I’ve been sick for two months. Started out gettin dizzy and nauseous. Lost appetite and couldn’t eat for weeks. Had to force myself to eat a little bit was difficult. Lost almost 30 pounds. Was in and out of the er with no answers. Back pain and acid reflux galore. Then they found gallstones and did
I’ve been sick for two months. Started out gettin dizzy and nauseous. Lost appetite and couldn’t eat for weeks. Had to force myself to eat a little bit was difficult. Lost almost 30 pounds. Was in and out of the er with no answers. Back pain and acid reflux galore. Then they found gallstones and did
Trish1220
in
PBC Foundation
6 years ago
Hi from a newbie
Hi. Just wanted to introduce myself. I have had endo for 20 years and managed to manage it over the years with prescription and over counter pain relief. Only ever had the one lap as don’t really like operations ( who does!) but maybe coming back to bit me now. I’ve had 2 cycles of failed IVF in between
Hi. Just wanted to introduce myself. I have had endo for 20 years and managed to manage it over the years with prescription and over counter pain relief. Only ever had the one lap as don’t really like operations ( who does!) but maybe coming back to bit me now. I’ve had 2 cycles of failed IVF in between
Hidden
in
Endometriosis UK
6 years ago
Clinical Trials
With the weekly emails from the NKF regarding clinical studies, I thought I would share my story. When I had my kidney transplant on 10/15/99 I was #1 in a clinical double blind drug study. Double blind meant that no one knew which drug I was given. Back then, at U of WI they put transplant patients
With the weekly emails from the NKF regarding clinical studies, I thought I would share my story. When I had my kidney transplant on 10/15/99 I was #1 in a clinical double blind drug study. Double blind meant that no one knew which drug I was given. Back then, at U of WI they put transplant patients
WYOAnne
NKF Ambassador
in
Kidney Transplant
6 years ago
Thyroid adrenal pineal ?? What is it urrggg!!! Help lol
Hi I have constant lower back ache joint pain and nausea I can’t gain weight and have ibs - just sent off to confirm is ibs not ibd so that’s not confirmed - prev diagnosis of PCOS total hysto inc bilateral salphingo oopherectomy two yrs ago didn’t stop night sweats and symptoms - underweight and feeling
Hi I have constant lower back ache joint pain and nausea I can’t gain weight and have ibs - just sent off to confirm is ibs not ibd so that’s not confirmed - prev diagnosis of PCOS total hysto inc bilateral salphingo oopherectomy two yrs ago didn’t stop night sweats and symptoms - underweight and feeling
lostmyoldlogin
in
Thyroid UK
6 years ago
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