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New to GCA
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
Just got diagnosed with Giant cell arteritis. Have so many questions and feeling scared. Did the pills help? How long have you been on them? Do you get to a point that you are good and you are cured? Please advise..
viamonv
in
PMRGCAuk
6 years ago
Medications that are BAD for your bones?
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Hidden
in
Osteoporosis Support
6 years ago
Anyone with unexplained infertility prescribed with Femara (Letrozole) ?
We have unexplained infertility and have been prescribed to use Femara (Letrozole) for 3 months. I ovulate naturally, so I was thinking maybe it`s supposed to help the quality of the eggs somehow?! Any of you lovely ladies have used this med before? Any positive result?
We have unexplained infertility and have been prescribed to use Femara (Letrozole) for 3 months. I ovulate naturally, so I was thinking maybe it`s supposed to help the quality of the eggs somehow?! Any of you lovely ladies have used this med before? Any positive result?
Sherry07
in
Fertility Network UK
6 years ago
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Any idea what’s next?
So, I’ve been on hydroxychloroquine for approx 13 years, with methotrexate added in 6 months ago as flares started up after a really dormant time. Whilst I’ve not suffered side effects I also don’t think the methotrexate has helped me at all..... I’ve had steroid jabs to deal with flares during this
So, I’ve been on hydroxychloroquine for approx 13 years, with methotrexate added in 6 months ago as flares started up after a really dormant time. Whilst I’ve not suffered side effects I also don’t think the methotrexate has helped me at all..... I’ve had steroid jabs to deal with flares during this
girli1111
in
NRAS
6 years ago
Are these symptoms b12 deficiency please
Hi im new here too.. advice needed please as im hoping this is b12 deficiency symptoms & not something even worse.sorry its a bit long..in 2015 i suddenly had a dreadful depression hit me out of the blue literally so quick i had been on lansoperazole/omoperazole for years for heartburn indigestion i
Hi im new here too.. advice needed please as im hoping this is b12 deficiency symptoms & not something even worse.sorry its a bit long..in 2015 i suddenly had a dreadful depression hit me out of the blue literally so quick i had been on lansoperazole/omoperazole for years for heartburn indigestion i
cuddlywuddly
in
Pernicious Anaemia Society
6 years ago
Suspected Endometrioma could also be desmoid or Sarcoma??
Hi, I was wondering if anyone has a similar experience or could shed any light on this scary and confusing situation I’m in. It will be 2 years in March since a lump was found on my abdominal wall by ultrasound. The radiologist was unsure but suspected an endometrioma. I am now with a bsge consultant
Hi, I was wondering if anyone has a similar experience or could shed any light on this scary and confusing situation I’m in. It will be 2 years in March since a lump was found on my abdominal wall by ultrasound. The radiologist was unsure but suspected an endometrioma. I am now with a bsge consultant
Daisy3t
in
Endometriosis UK
6 years ago
Pain after laparoscopy
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Had laparoscopy and hysteroscopy + polyp removal last week. All fine (tubes ended up being clear, so no removal), but since the op, I've been experiencing some bad pain down the left wall of my vagina, plus bacterial infection symptoms seem to be returning. Starting to think I have a cyst/abscess, that
Tomorrow_1
in
Fertility Network UK
6 years ago
Looks like I need to watch what I say
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
I like to share my experiences, what I do and how I feel. Whenever that happens it opens up a whole world of replies. It looks like my last post was a step to far for this forum. I am not sorry for what I said, but I will refrain from talking about my experiences in life with PMR. For those of us that
JulianJ
in
PMRGCAuk
6 years ago
Natural Killer Cells (NK) - Endometriosis/not getting colds - anyone else?
Hi, I have Endometriosis, I can ovulate naturally but it’s poor, tried Clomid and Femara for 12 months and a 2.5 years (in total) later I’m still not pregnant. I know there’s a theory that NK Cells are higher in ladies with Endometriosis... does this correlate with not catching colds and viruses?!
Hi, I have Endometriosis, I can ovulate naturally but it’s poor, tried Clomid and Femara for 12 months and a 2.5 years (in total) later I’m still not pregnant. I know there’s a theory that NK Cells are higher in ladies with Endometriosis... does this correlate with not catching colds and viruses?!
Emilyxeliza
in
Fertility Network UK
6 years ago
Emergency Total Hysterectomy
Hello again! Trying to see if there is any such procedure as an emergency total hysterectomy? Have YOU indeed had this as an EMERGENCY PROCEEDURE? I am signed onto the NHS waiting list for said oopherectomy since July 2017, it can't come soon enough. I've been to the A&E department twice since July.
Hello again! Trying to see if there is any such procedure as an emergency total hysterectomy? Have YOU indeed had this as an EMERGENCY PROCEEDURE? I am signed onto the NHS waiting list for said oopherectomy since July 2017, it can't come soon enough. I've been to the A&E department twice since July.
Hidden
in
Pelvic Pain Support Network
6 years ago
Websites - useful stuff, articles, resources
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I didn't know how to add a Word doc so I copied and pasted. . Articles on: Few side effects due to PMR compared with an age-matched cohort not taking
Insight329
in
PMRGCAuk
6 years ago
Feeling worse during loading shots, is this normal?
I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for the length. I been having all major symptoms of B12 deficiency, including neurological and vision. My PCP sent me to Opthamologist, who referred
I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for the length. I been having all major symptoms of B12 deficiency, including neurological and vision. My PCP sent me to Opthamologist, who referred
Kat7
in
Pernicious Anaemia Society
6 years ago
oophorectomy
I'm booked in for my oophorectomy on Thursday and I'm starting to get a bit nervous. The op itself doesnt bother me in the slightest, it's more the life changing impact of early menopause that I'm concerned about. I have been pushing for something to be done about my endo since I was 20 (now 36). I've
I'm booked in for my oophorectomy on Thursday and I'm starting to get a bit nervous. The op itself doesnt bother me in the slightest, it's more the life changing impact of early menopause that I'm concerned about. I have been pushing for something to be done about my endo since I was 20 (now 36). I've
TillyMint83
in
Endometriosis UK
6 years ago
Oophorectomy experiences?
Hello, I had a hysterectomy 2 and a half years ago and now I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting
Hello, I had a hysterectomy 2 and a half years ago and now I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting
Sylv_99
in
Healthy Happy Woman
6 years ago
Hysterectomy yesterday
I had a total hysterectomy and bilateral salpingo oopherectomy yesterday at 3pm. The surgeon said my endometriosis was quite extensive and my ovaries and womb were stuck to my pelvis. I think thats what he said, i was a bit woozy. Op took less than an hour but recovery a further hour then back on the
I had a total hysterectomy and bilateral salpingo oopherectomy yesterday at 3pm. The surgeon said my endometriosis was quite extensive and my ovaries and womb were stuck to my pelvis. I think thats what he said, i was a bit woozy. Op took less than an hour but recovery a further hour then back on the
Jack44
in
Endometriosis UK
6 years ago
Oophorectomy experiences?
Hello, I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting hrt. I’ve read that surgical menopause is quite
Hello, I’m booked in for an oophorectomy to remove both ovaries laparoscopically and I just wondered if anyone else had had this done and what your experiences were like. I’m most interested in how long the recovery was and how you got on with starting hrt. I’ve read that surgical menopause is quite
Sylv_99
in
Endometriosis UK
6 years ago
Worsening Pain Upper Right Quadrant After Choleycystectomy
Just wondering about some symptoms after my cholecystectomy which I had at the end of October. I had an open surgery (seven hours) due to the gangrene, adhesions and collapsed common bile duct. Over the weeks since I have been gradually getting better but still disturbed by pain in the right upper quadrant
Just wondering about some symptoms after my cholecystectomy which I had at the end of October. I had an open surgery (seven hours) due to the gangrene, adhesions and collapsed common bile duct. Over the weeks since I have been gradually getting better but still disturbed by pain in the right upper quadrant
LiziJ
in
British Liver Trust
6 years ago
Pain below left rib after gallbladder removal
Hi, I'm new here. I had my gallbladder removed 4/12/17, and have a sharpe pain below my left rib and still get breathless. It was done by keyhole surgery, which I thought was supposed to be quicker recovery. I'm having to sleep propped up as lying on my sides is too painful. Does anybody else have this
Hi, I'm new here. I had my gallbladder removed 4/12/17, and have a sharpe pain below my left rib and still get breathless. It was done by keyhole surgery, which I thought was supposed to be quicker recovery. I'm having to sleep propped up as lying on my sides is too painful. Does anybody else have this
Nanapenny
in
Pain Concern
6 years ago
Happy New Year
Hi all, I’ve just joined. I’ve tested positive for BRCA2 and will have bilateral salpingo oopherectomy in March in London. Strong cancer history in my family. I’m keen to hear from other ladies about their recovery experiences and life after BSO surgery. I’m almost 49. Thank you.
Hi all, I’ve just joined. I’ve tested positive for BRCA2 and will have bilateral salpingo oopherectomy in March in London. Strong cancer history in my family. I’m keen to hear from other ladies about their recovery experiences and life after BSO surgery. I’m almost 49. Thank you.
GabeOD
in
My Ovacome
6 years ago
Endo diet
Hello ladies, Happy New Year to you. I'm on day 1 of the Endo diet. Carolyn specifically recommends you remove the following from your diet:- Sugar, red meat, processed salt, dairy products, wheat & rye, tea coffee and fizzy (anything with caffeine), margarine, sit products, tinned food, manufactured
Hello ladies, Happy New Year to you. I'm on day 1 of the Endo diet. Carolyn specifically recommends you remove the following from your diet:- Sugar, red meat, processed salt, dairy products, wheat & rye, tea coffee and fizzy (anything with caffeine), margarine, sit products, tinned food, manufactured
Kaiser_susie
in
Endometriosis UK
6 years ago
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